Literature DB >> 22223261

[Types of medical registries - definitions, methodological aspects and quality of the scientific work with registries].

Stefan Mathis-Edenhofer1, Brigitte Piso.   

Abstract

This work presents a comprehensive list of registry definitions including broader and narrower definitions. Compared to each other different methodological issues can be identified. Some of these issues are common for all registry types; some can be assigned more easily to a specific registry type. Instruments for evaluating the quality of registers reflect many of the mentioned aspects. Generally, and especially at registers with a descriptive or exploratory research dimension it is important to consider their intended purpose and in about it was achieved. This includes, for instance, whether the purpose and the methodology are coordinated. From the start of registration an initiator should be - based on the purpose - aware of the methodological dimension of the registry. This helps to apply the correct type of the registry, the appropriate guidance and, ultimately, the arguments for the effort (cost-benefit ratio).

Mesh:

Year:  2011        PMID: 22223261     DOI: 10.1007/s10354-011-0040-5

Source DB:  PubMed          Journal:  Wien Med Wochenschr        ISSN: 0043-5341


  19 in total

Review 1.  Potential use of routine databases in health technology assessment.

Authors:  J Raftery; P Roderick; A Stevens
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3.  Use of a prototype acute stroke registry to improve care: profile of receptive stroke programs.

Authors:  Valerie T Stewart
Journal:  Am J Prev Med       Date:  2006-11-07       Impact factor: 5.043

4.  It is "the noise of practice".

Authors:  Jürgen Windeler
Journal:  J Clin Epidemiol       Date:  2010-02-20       Impact factor: 6.437

Review 5.  Registry evaluation methods: a review and case study.

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Journal:  Epidemiol Rev       Date:  1980       Impact factor: 6.222

6.  Record linkage in the Cancer Registry of Tyrol, Austria.

Authors:  W Oberaigner; W Stühlinger
Journal:  Methods Inf Med       Date:  2005       Impact factor: 2.176

7.  [The Austrian Stroke-Unit-Registry].

Authors:  Christine Hofer; Stefan Kiechl; Wilfried Lang
Journal:  Wien Med Wochenschr       Date:  2008

Review 8.  Evaluation of data quality in the cancer registry: principles and methods Part II. Completeness.

Authors:  D Max Parkin; Freddie Bray
Journal:  Eur J Cancer       Date:  2009-01-06       Impact factor: 9.162

Review 9.  Improving the quality of cancer registration data.

Authors:  D Brewster
Journal:  J R Soc Med       Date:  1995-05       Impact factor: 5.344

10.  The missed lessons of Sir Austin Bradford Hill.

Authors:  Carl V Phillips; Karen J Goodman
Journal:  Epidemiol Perspect Innov       Date:  2004-10-04
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  2 in total

Review 1.  [What can and cannot be achieved by registries : Perspective of the registry working group of the German Network of Health Services Research].

Authors:  E A M Neugebauer; J Stausberg
Journal:  Unfallchirurg       Date:  2016-06       Impact factor: 1.000

2.  Implementation of a population-based epidemiological rare disease registry: study protocol of the amyotrophic lateral sclerosis (ALS)--registry Swabia.

Authors:  Gabriele Nagel; Hatice Unal; Angela Rosenbohm; Albert C Ludolph; Dietrich Rothenbacher
Journal:  BMC Neurol       Date:  2013-02-17       Impact factor: 2.474

  2 in total

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