OBJECTIVES: To compare the self-reported health of extremely low-birth-weight (ELBW; <1 kg) preterm children with that of normal-birth-weight (NBW) control children and the children's perspective with that of their parents. DESIGN: We administered questionnaires to the ELBW and NBW children and their parents from March 1, 2000, through February 2003. SETTING: A children's hospital. PARTICIPANTS: Two hundred two ELBW children and 176 NBW children aged 8 years of similar sociodemographic status. MAIN EXPOSURE: Birth weight of less than 1 kg. MAIN OUTCOME MEASURES: The Child Health and Illness Profile-Child Edition child and parent reports. RESULTS: There was poor agreement between the parent and child ratings of health for the ELBW and NBW cohorts. The ELBW children rated their health as similar to that of NBW children. In contrast, parents of ELBW children reported significantly poorer health for their children than parents of NBW controls, including poorer satisfaction with health, comfort, and achievement and less risk avoidance. CONCLUSIONS: There is poor agreement between child and parent reports of health. At 8 years of age, ELBW children rate their health as similar to that of NBW controls. Their parents, however, report significantly poorer health. Both perspectives need to be considered when making health care decisions.
OBJECTIVES: To compare the self-reported health of extremely low-birth-weight (ELBW; <1 kg) preterm children with that of normal-birth-weight (NBW) control children and the children's perspective with that of their parents. DESIGN: We administered questionnaires to the ELBW and NBW children and their parents from March 1, 2000, through February 2003. SETTING: A children's hospital. PARTICIPANTS: Two hundred two ELBW children and 176 NBW children aged 8 years of similar sociodemographic status. MAIN EXPOSURE: Birth weight of less than 1 kg. MAIN OUTCOME MEASURES: The Child Health and Illness Profile-Child Edition child and parent reports. RESULTS: There was poor agreement between the parent and child ratings of health for the ELBW and NBW cohorts. The ELBW children rated their health as similar to that of NBW children. In contrast, parents of ELBW children reported significantly poorer health for their children than parents of NBW controls, including poorer satisfaction with health, comfort, and achievement and less risk avoidance. CONCLUSIONS: There is poor agreement between child and parent reports of health. At 8 years of age, ELBW children rate their health as similar to that of NBW controls. Their parents, however, report significantly poorer health. Both perspectives need to be considered when making health care decisions.
Authors: Anne W Riley; David Coghill; Christopher B Forrest; Maria J Lorenzo; Stephen J Ralston; Georg Spiel Journal: Eur Child Adolesc Psychiatry Date: 2006-12 Impact factor: 4.785
Authors: Lisa M Ingerski; Avani C Modi; Korey K Hood; Ahna L Pai; Meg Zeller; Carrie Piazza-Waggoner; Kimberly A Driscoll; Marc E Rothenberg; James Franciosi; Kevin A Hommel Journal: J Pediatr Date: 2010-02-01 Impact factor: 4.406
Authors: Bente J Vederhus; Trond Markestad; Geir E Eide; Marit Graue; Thomas Halvorsen Journal: Health Qual Life Outcomes Date: 2010-05-23 Impact factor: 3.186
Authors: L Rajmil; M D Estrada; M Herdman; V Serra-Sutton; C Tebé; J Izaguirre; J A Alda; J Alonso; A W Riley; C B Forrest; B Starfield Journal: An Pediatr (Barc) Date: 2009-05-07 Impact factor: 1.500
Authors: Maureen Hack; Hudson G Taylor; Mark Schluchter; Laura Andreias; Dennis Drotar; Nancy Klein Journal: J Dev Behav Pediatr Date: 2009-04 Impact factor: 2.225
Authors: Maureen Hack; Mark Schluchter; Christopher B Forrest; H Gerry Taylor; Dennis Drotar; Grayson Holmbeck; Eric Youngstrom; Seunghee Margevicius; Laura Andreias Journal: Pediatrics Date: 2012-06-04 Impact factor: 7.124