AIM: To systematically review the literature published since 1999 on paediatric health-related quality of life (HRQL) in relation to parent-child agreement. METHODS: Literature searches used to identify studies which evaluated parent-child agreement for child HRQL measures. RESULTS: Nineteen studies were identified, including four HRQL instruments. The Pediatric Quality of Life Inventory (PedsQL) was most commonly used. Differences in parent-child agreement were noted between domains for different measures. The impact of child and parent characteristics were not consistently considered; however parents of children in a nonclinical sample tended to report higher child HRQL scores than children themselves, while parents of children with health conditions tended to underestimate child HRQL. CONCLUSION: Despite increasing numbers of studies considering children's HRQL, information about variables contributing to parent-child agreement levels remains limited. Authors need to consistently provide evidence for reliability and validity of measures, and design studies to systematically investigate variables that impact on levels of parent-child agreement.
AIM: To systematically review the literature published since 1999 on paediatric health-related quality of life (HRQL) in relation to parent-child agreement. METHODS: Literature searches used to identify studies which evaluated parent-child agreement for child HRQL measures. RESULTS: Nineteen studies were identified, including four HRQL instruments. The Pediatric Quality of Life Inventory (PedsQL) was most commonly used. Differences in parent-child agreement were noted between domains for different measures. The impact of child and parent characteristics were not consistently considered; however parents of children in a nonclinical sample tended to report higher child HRQL scores than children themselves, while parents of children with health conditions tended to underestimate child HRQL. CONCLUSION: Despite increasing numbers of studies considering children's HRQL, information about variables contributing to parent-child agreement levels remains limited. Authors need to consistently provide evidence for reliability and validity of measures, and design studies to systematically investigate variables that impact on levels of parent-child agreement.
Authors: James W Varni; Tasha M Burwinkle; Sandra A Sherman; Kanela Hanna; Susan J Berrin; Vanessa L Malcarne; Henry G Chambers Journal: Dev Med Child Neurol Date: 2005-09 Impact factor: 5.449
Authors: Andrea Poretti; Michael A Grotzer; Karin Ribi; Eugen Schönle; Eugen Boltshauser Journal: Dev Med Child Neurol Date: 2004-04 Impact factor: 5.449
Authors: M G Sawyer; J N Whitham; D M Roberton; J E Taplin; J W Varni; P A Baghurst Journal: Rheumatology (Oxford) Date: 2003-10-17 Impact factor: 7.580
Authors: Maureen Hack; Mark Schluchter; Christopher B Forrest; H Gerry Taylor; Dennis Drotar; Grayson Holmbeck; Eric Youngstrom; Seunghee Margevicius; Laura Andreias Journal: Pediatrics Date: 2012-06-04 Impact factor: 7.124
Authors: James W Varni; Christine A Limbers; Lisa G Sorensen; Katie Neighbors; Karen Martz; John C Bucuvalas; Estella M Alonso Journal: Qual Life Res Date: 2010-12-24 Impact factor: 4.147
Authors: Joost Felius; Danielle L Chandler; Jonathan M Holmes; Raymond H Chu; Stephen R Cole; Michael Hill; Kristine Huang; Marjean Taylor Kulp; Elizabeth L Lazar; Noelle S Matta; Michele Melia; David K Wallace Journal: J AAPOS Date: 2010-10 Impact factor: 1.220
Authors: Galen E Switzer; Jessica Bruce; Deidre M Kiefer; Hati Kobusingye; Rebecca Drexler; RaeAnne M Besser; Dennis L Confer; Mary M Horowitz; Roberta J King; Bronwen E Shaw; Suzanna M van Walraven; Lori Wiener; Wendy Packman; James W Varni; Michael A Pulsipher Journal: J Pediatr Date: 2016-08-10 Impact factor: 4.406
Authors: Mark A Ferro; Saad A Qureshi; Lilly Shanahan; Christiane Otto; Ulrike Ravens-Sieberer Journal: Qual Life Res Date: 2021-07-31 Impact factor: 4.147