| Literature DB >> 21574070 |
Abstract
While the availability of genome tests on the internet has given rise to heated debates about the likely impact on personal genome information on test-takers, on insurance, and on healthcare systems, in this article I argue that a more tangible effect of personal genomics is that it has started to change how participation in disease research is conceived and enacted. I examine three models of research participation that personal genomics customers are encouraged to engage in. I conclude with an evaluation of the pitfalls and benefits of "crowdsourcing" genetic disease research in the context of personal genomics.Entities:
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Year: 2011 PMID: 21574070 DOI: 10.1080/08989621.2011.575032
Source DB: PubMed Journal: Account Res ISSN: 0898-9621 Impact factor: 2.622