Literature DB >> 24517912

Health research 2.0: The use in research of personal fitness or health data shared on social network raises both scientific and ethical concerns.

Katrin Weigmann1.   

Abstract

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Year:  2014        PMID： 24517912      PMCID： PMC3989687          DOI： 10.1002/embr.201438510

Source DB:  PubMed          Journal:  EMBO Rep        ISSN： 1469-221X            Impact factor:   8.807


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  12 in total

1.  Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.

Authors:  Paul Wicks; Timothy E Vaughan; Michael P Massagli; James Heywood
Journal:  Nat Biotechnol       Date:  2011-04-24       Impact factor: 54.908

2.  Informed consent: a broken contract.

Authors:  Erika Check Hayden
Journal:  Nature       Date:  2012-06-20       Impact factor: 49.962

3.  Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

Authors:  Heidi C Howard; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Rep       Date:  2010-07-16       Impact factor: 8.807

Review 4.  Predictive, personalized, preventive, participatory (P4) cancer medicine.

Authors:  Leroy Hood; Stephen H Friend
Journal:  Nat Rev Clin Oncol       Date:  2011-03       Impact factor: 66.675

5.  Consent and internet-enabled human genomics.

Authors:  Greg Gibson; Gregory P Copenhaver
Journal:  PLoS Genet       Date:  2010-06-24       Impact factor: 5.917

6.  Lithium delays progression of amyotrophic lateral sclerosis.

Authors:  Francesco Fornai; Patrizia Longone; Luisa Cafaro; Olga Kastsiuchenka; Michela Ferrucci; Maria Laura Manca; Gloria Lazzeri; Alida Spalloni; Natascia Bellio; Paola Lenzi; Nicola Modugno; Gabriele Siciliano; Ciro Isidoro; Luigi Murri; Stefano Ruggieri; Antonio Paparelli
Journal:  Proc Natl Acad Sci U S A       Date:  2008-02-04       Impact factor: 11.205

7.  Crowdsourced health research studies: an important emerging complement to clinical trials in the public health research ecosystem.

Authors:  Melanie Swan
Journal:  J Med Internet Res       Date:  2012-03-07       Impact factor: 5.428

8.  Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson's disease.

Authors:  Chuong B Do; Joyce Y Tung; Elizabeth Dorfman; Amy K Kiefer; Emily M Drabant; Uta Francke; Joanna L Mountain; Samuel M Goldman; Caroline M Tanner; J William Langston; Anne Wojcicki; Nicholas Eriksson
Journal:  PLoS Genet       Date:  2011-06-23       Impact factor: 5.917

9.  "Trust is not something you can reclaim easily": patenting in the field of direct-to-consumer genetic testing.

Authors:  Sigrid Sterckx; Julian Cockbain; Heidi Howard; Isabelle Huys; Pascal Borry
Journal:  Genet Med       Date:  2012-11-22       Impact factor: 8.822

10.  Research conducted using data obtained through online communities: ethical implications of methodological limitations.

Authors:  A Cecile J W Janssens; Peter Kraft
Journal:  PLoS Med       Date:  2012-10-23       Impact factor: 11.069
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  3 in total

Review 1.  Automated Decision-Making and Big Data: Concerns for People With Mental Illness.

Authors:  Scott Monteith; Tasha Glenn
Journal:  Curr Psychiatry Rep       Date:  2016-12       Impact factor: 5.285

Review 2.  Privacy in the digital world: medical and health data outside of HIPAA protections.

Authors:  Tasha Glenn; Scott Monteith
Journal:  Curr Psychiatry Rep       Date:  2014-11       Impact factor: 5.285

3.  Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality.

Authors:  Oliver Feeney; Pascal Borry; Heike Felzmann; Lucia Galvagni; Ari Haukkala; Michele Loi; Salvör Nordal; Vojin Rakic; Brígida Riso; Sigrid Sterckx; Danya Vears
Journal:  J Community Genet       Date:  2017-10-24
  3 in total

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