Literature DB >> 21309908

The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual.

Denise Chrysler1, Harry McGee, Janice Bach, Ed Goldman, Peter D Jacobson.   

Abstract

Mesh：

Year:  2011        PMID： 21309908     DOI： 10.1111/j.1748-720X.2011.00577.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


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  9 in total

1.  From newborn screening to population health research: implementation of the Michigan BioTrust for health.

Authors:  Carrie Langbo; Janice Bach; Mary Kleyn; Frances Pouch Downes
Journal:  Public Health Rep       Date:  2013 Sep-Oct       Impact factor: 2.792

2.  Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.

Authors:  Shannon Cunningham; Kieran C O'Doherty; Karine Sénécal; David Secko; Denise Avard
Journal:  J Community Genet       Date:  2014-12-23

Review 3.  The role of religious values in decisions about genetics and the public's health.

Authors:  Stephen M Modell; Toby Citrin; Susan B King; Sharon L R Kardia
Journal:  J Relig Health       Date:  2014-06

4.  Effect of deliberation on the public's attitudes toward consent policies for biobank research.

Authors:  Tom Tomlinson; Raymond G De Vries; H Myra Kim; Linda Gordon; Kerry A Ryan; Chris D Krenz; Scott Jewell; Scott Y H Kim
Journal:  Eur J Hum Genet       Date:  2018-01-18       Impact factor: 4.246

5.  'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.

Authors:  J E Platt; T Platt; D Thiel; S L R Kardia
Journal:  Public Health Genomics       Date:  2013-06-21       Impact factor: 2.000

6.  Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies.

Authors:  Beth A Tarini; John D Lantos
Journal:  Per Med       Date:  2013-01-01       Impact factor: 2.512

7.  The use of newborn screening dried blood spots for research: the parental perspective.

Authors:  Li-Ming Gong; Wen-Jun Tu; Jian He; Xiao-Dong Shi; Xin-Yu Wang; Ying Li
Journal:  J Bioeth Inq       Date:  2012-03-21       Impact factor: 1.352

8.  We need to think about data governance for dementia research in a digital era.

Authors:  Richard Milne; Carol Brayne
Journal:  Alzheimers Res Ther       Date:  2020-01-31       Impact factor: 6.982

9.  What can data trusts for health research learn from participatory governance in biobanks?

Authors:  Richard Milne; Annie Sorbie; Mary Dixon-Woods
Journal:  J Med Ethics       Date:  2021-03-19       Impact factor: 5.926
  9 in total

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