Literature DB >> 21292724

Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study.

Sheana S Bull1, Lindsey T Breslin, Erin E Wright, Sandra R Black, Deborah Levine, John S Santelli.   

Abstract

OBJECTIVE: To consider issues related to research with youth on social networking sites online.
METHODS: Description of the data collection process from 1,588 participants in a randomized controlled trial testing the efficacy of HIV prevention education delivered on Facebook. Using respondent-driven sampling, staff-recruited participants are encouraged to recruit up to three friends to enroll in the study.
RESULTS: Researchers should (a) consider whether an online social networking site is an appropriate place to implement a research study; (b) offer opportunities to review informed consent documents at multiple times and in multiple locations throughout the study; and (c) collect data outside the social networking site and store it behind secure firewalls to ensure it will not be accessible to any person on the social networking site.
CONCLUSIONS: Online social networks are growing in popularity. Conducting research on social media sites requires deliberate attention to consent, confidentiality, and security.

Entities:  

Mesh:

Year:  2011        PMID: 21292724      PMCID: PMC3199441          DOI: 10.1093/jpepsy/jsq126

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  29 in total

1.  Factors associated with the content of sex education in U.S. public secondary schools.

Authors:  David J Landry; Jacqueline E Darroch; Susheela Singh; Jenny Higgins
Journal:  Perspect Sex Reprod Health       Date:  2003 Nov-Dec

2.  Methodological issues in the recruitment of ethnic minority subjects to research via the Internet: a discussion paper.

Authors:  Eun-Ok Im; Wonshik Chee
Journal:  Int J Nurs Stud       Date:  2005-11       Impact factor: 5.837

Review 3.  Abstinence and abstinence-only education: a review of U.S. policies and programs.

Authors:  John Santelli; Mary A Ott; Maureen Lyon; Jennifer Rogers; Daniel Summers; Rebecca Schleifer
Journal:  J Adolesc Health       Date:  2006-01       Impact factor: 5.012

4.  Racial disparities in health information access: resilience of the Digital Divide.

Authors:  Daniel P Lorence; Heeyoung Park; Susannah Fox
Journal:  J Med Syst       Date:  2006-08       Impact factor: 4.460

5.  Evaluating recruitment among female sex workers and injecting drug users at risk for HIV using respondent-driven sampling in Estonia.

Authors:  Anneli Uusküla; Lisa G Johnston; Mait Raag; Aire Trummal; Ave Talu; Don C Des Jarlais
Journal:  J Urban Health       Date:  2010-02-04       Impact factor: 3.671

Review 6.  Innovation in sexually transmitted disease and HIV prevention: internet and mobile phone delivery vehicles for global diffusion.

Authors:  Dallas Swendeman; Mary Jane Rotheram-Borus
Journal:  Curr Opin Psychiatry       Date:  2010-03       Impact factor: 4.741

7.  Effectiveness of mobile and internet intervention in patients with obese type 2 diabetes.

Authors:  Suk-Il Kim; Hee-Seung Kim
Journal:  Int J Med Inform       Date:  2007-09-18       Impact factor: 4.046

8.  Display of health risk behaviors on MySpace by adolescents: prevalence and associations.

Authors:  Megan A Moreno; Malcolm R Parks; Frederick J Zimmerman; Tara E Brito; Dimitri A Christakis
Journal:  Arch Pediatr Adolesc Med       Date:  2009-01

9.  HIV stigma and social support among African Americans.

Authors:  Frank H Galvan; E Maxwell Davis; Denedria Banks; Eric G Bing
Journal:  AIDS Patient Care STDS       Date:  2008-05       Impact factor: 5.078

10.  Race, gender, and information technology use: the new digital divide.

Authors:  Linda A Jackson; Yong Zhao; Anthony Kolenic; Hiram E Fitzgerald; Rena Harold; Alexander Von Eye
Journal:  Cyberpsychol Behav       Date:  2008-08
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  37 in total

1.  Harnessing Online Peer Education (HOPE): integrating C-POL and social media to train peer leaders in HIV prevention.

Authors:  Devan Jaganath; Harkiran K Gill; Adam Carl Cohen; Sean D Young
Journal:  AIDS Care       Date:  2011-12-07

2.  Online Social Networking, Sexual Risk and Protective Behaviors: Considerations for Clinicians and Researchers.

Authors:  Ian W Holloway; Shannon Dunlap; Homero E Del Pino; Keith Hermanstyne; Craig Pulsipher; Raphael J Landovitz
Journal:  Curr Addict Rep       Date:  2014-09

Review 3.  Web 2.0 for health promotion: reviewing the current evidence.

Authors:  Wen-ying Sylvia Chou; Abby Prestin; Claire Lyons; Kuang-yi Wen
Journal:  Am J Public Health       Date:  2012-11-15       Impact factor: 9.308

4.  Incorporating guidelines for use of mobile technologies in health research and practice.

Authors:  Sean D Young; Ian W Holloway; Dallas Swendeman
Journal:  Int Health       Date:  2014-04-08       Impact factor: 2.473

5.  Do adult men with untreated hypospadias have adverse outcomes? A pilot study using a social media advertised survey.

Authors:  Bruce Schlomer; Benjamin Breyer; Hillary Copp; Laurence Baskin; Michael DiSandro
Journal:  J Pediatr Urol       Date:  2014-02-24       Impact factor: 1.830

6.  Ethical Issues in Social Media Research for Public Health.

Authors:  Ruth F Hunter; Aisling Gough; Niamh O'Kane; Gary McKeown; Aine Fitzpatrick; Tom Walker; Michelle McKinley; Mandy Lee; Frank Kee
Journal:  Am J Public Health       Date:  2018-01-18       Impact factor: 9.308

7.  A Web 2.0 and Epidemiology Mash-Up: Using Respondent-Driven Sampling in Combination with Social Network Site Recruitment to Reach Young Transwomen.

Authors:  Sean Arayasirikul; Yea-Hung Chen; Harry Jin; Erin Wilson
Journal:  AIDS Behav       Date:  2016-06

8.  Social networking and online recruiting for HIV research: ethical challenges.

Authors:  Brenda L Curtis
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

9.  Evaluating the Internet as a sexually transmitted disease risk environment for teens: findings from the communication, health, and teens study.

Authors:  Eric R Buhi; Natalie Klinkenberger; Mary McFarlane; Rachel Kachur; Ellen M Daley; Julie Baldwin; Heather D Blunt; Shana Hughes; Christopher W Wheldon; Cornelis Rietmeijer
Journal:  Sex Transm Dis       Date:  2013-07       Impact factor: 2.830

10.  Ethical Considerations in Recruiting Online and Implementing a Text Messaging-Based HIV Prevention Program With Gay, Bisexual, and Queer Adolescent Males.

Authors:  Michele L Ybarra; Tonya L Prescott; Gregory L Phillips; Jeffrey T Parsons; Sheana S Bull; Brian Mustanski
Journal:  J Adolesc Health       Date:  2016-05-13       Impact factor: 5.012

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