Literature DB >> 24572084

Social networking and online recruiting for HIV research: ethical challenges.

Brenda L Curtis1.   

Abstract

Social networking sites and online advertising organizations provide HIV/AIDS researchers access to target populations, often reaching difficult-to-reach populations. However, this benefit to researchers raises many issues for the protections of prospective research participants. Traditional recruitment procedures have involved straightforward transactions between the researchers and prospective participants; online recruitment is a more complex and indirect form of communication involving many parties engaged in the collecting, aggregating, and storing of research participant data. Thus, increased access to online data has challenged the adequacy of current and established procedures for participants' protections, such as informed consent and privacy/confidentiality. Internet-based HIV/AIDS research recruitment and its ethical challenges are described, and research participant safeguards and best practices are outlined.

Entities:  

Mesh:

Year:  2014        PMID: 24572084      PMCID: PMC4316828          DOI: 10.1525/jer.2014.9.1.58

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  26 in total

1.  Harnessing Online Peer Education (HOPE): integrating C-POL and social media to train peer leaders in HIV prevention.

Authors:  Devan Jaganath; Harkiran K Gill; Adam Carl Cohen; Sean D Young
Journal:  AIDS Care       Date:  2011-12-07

Review 2.  Review of sampling hard-to-reach and hidden populations for HIV surveillance.

Authors:  Robert Magnani; Keith Sabin; Tobi Saidel; Douglas Heckathorn
Journal:  AIDS       Date:  2005-05       Impact factor: 4.177

3.  Evaluating the risk and attractiveness of romantic partners when confronted with contradictory cues.

Authors:  Michael Hennessy; Martin Fishbein; Brenda Curtis; Daniel W Barrett
Journal:  AIDS Behav       Date:  2007-05

Review 4.  Web-based HIV/AIDS behavioral surveillance among men who have sex with men: potential and challenges.

Authors:  Dapeng Zhang; Peng Bi; Janet E Hiller; Fan Lv
Journal:  Int J Infect Dis       Date:  2007-09-19       Impact factor: 3.623

5.  Recruiting for research.

Authors:  Elaine Souder
Journal:  Res Gerontol Nurs       Date:  2009-10       Impact factor: 1.571

6.  The Internet as recruitment tool for HIV studies: viable strategy for reaching at-risk Hispanic MSM in Miami?

Authors:  M I Fernández; L M Varga; T Perrino; J B Collazo; F Subiaul; A Rehbein; H Torres; M Castro; G S Bowen
Journal:  AIDS Care       Date:  2004-11

7.  The rise of 'recruitmentology': clinical research, racial knowledge, and the politics of inclusion and difference.

Authors:  Steven Epstein
Journal:  Soc Stud Sci       Date:  2008-10       Impact factor: 3.885

Review 8.  Online survey tools: ethical and methodological concerns of human research ethics committees.

Authors:  Elizabeth A Buchanan; Erin E Hvizdak
Journal:  J Empir Res Hum Res Ethics       Date:  2009-06       Impact factor: 1.742

9.  Internet based HIV prevention research targeting rural MSM: feasibility, acceptability, and preliminary efficacy.

Authors:  A M Bowen; M L Williams; C M Daniel; S Clayton
Journal:  J Behav Med       Date:  2008-09-04

10.  Use of the location-based social networking application GRINDR as a recruitment tool in rectal microbicide development research.

Authors:  Earl R Burrell; Heather A Pines; Edward Robbie; Leonardo Coleman; Ryan D Murphy; Kristen L Hess; Peter Anton; Pamina M Gorbach
Journal:  AIDS Behav       Date:  2012-10
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  23 in total

Review 1.  Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.

Authors:  Celia B Fisher; Elise Bragard; Rachel Bloom
Journal:  Curr HIV/AIDS Rep       Date:  2020-06       Impact factor: 5.071

2.  Online Social Networking, Sexual Risk and Protective Behaviors: Considerations for Clinicians and Researchers.

Authors:  Ian W Holloway; Shannon Dunlap; Homero E Del Pino; Keith Hermanstyne; Craig Pulsipher; Raphael J Landovitz
Journal:  Curr Addict Rep       Date:  2014-09

3.  Perceived Barriers to HIV Prevention Services for Transgender Youth.

Authors:  Celia B Fisher; Adam L Fried; Margaret Desmond; Kathryn Macapagal; Brian Mustanski
Journal:  LGBT Health       Date:  2018-08-02       Impact factor: 4.151

4.  Bisexual Invisibility and the Sexual Health Needs of Adolescent Girls.

Authors:  Miriam R Arbeit; Celia B Fisher; Kathryn Macapagal; Brian Mustanski
Journal:  LGBT Health       Date:  2016-09-07       Impact factor: 4.151

Review 5.  The CAN-DO-IT Model: a Process for Developing and Refining Online Recruitment in HIV/AIDS and Sexual Health Research.

Authors:  Kathryn Macapagal; Dennis H Li; Antonia Clifford; Krystal Madkins; Brian Mustanski
Journal:  Curr HIV/AIDS Rep       Date:  2020-06       Impact factor: 5.071

6.  Toward Automating HIV Identification: Machine Learning for Rapid Identification of HIV-Related Social Media Data.

Authors:  Sean D Young; Wenchao Yu; Wei Wang
Journal:  J Acquir Immune Defic Syndr       Date:  2017-02-01       Impact factor: 3.731

7.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

8.  A Web 2.0 and Epidemiology Mash-Up: Using Respondent-Driven Sampling in Combination with Social Network Site Recruitment to Reach Young Transwomen.

Authors:  Sean Arayasirikul; Yea-Hung Chen; Harry Jin; Erin Wilson
Journal:  AIDS Behav       Date:  2016-06

9.  A Facebook Follow-Up Strategy for Rural Drug-Using Women.

Authors:  Megan F Dickson; Michele Staton-Tindall; Kirsten E Smith; Carl Leukefeld; J Matthew Webster; Carrie B Oser
Journal:  J Rural Health       Date:  2016-07-28       Impact factor: 4.333

10.  "They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research.

Authors:  Elise Bragard; Celia B Fisher; Brenda L Curtis
Journal:  Ethics Behav       Date:  2019-11-27
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