Literature DB >> 29346005

Ethical Issues in Social Media Research for Public Health.

Ruth F Hunter1, Aisling Gough1, Niamh O'Kane1, Gary McKeown1, Aine Fitzpatrick1, Tom Walker1, Michelle McKinley1, Mandy Lee1, Frank Kee1.   

Abstract

Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. Most importantly, public health researchers must work within the ethical principles set out by the Declaration of Helsinki that protect individual users first and foremost.

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Year:  2018        PMID: 29346005      PMCID: PMC5803813          DOI: 10.2105/AJPH.2017.304249

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  15 in total

1.  Ethical considerations when employing fake identities in online social networks for research.

Authors:  Yuval Elovici; Michael Fire; Amir Herzberg; Haya Shulman
Journal:  Sci Eng Ethics       Date:  2013-11-12       Impact factor: 3.525

2.  Ethical Issues of Social Media Usage in Healthcare.

Authors:  K Denecke; P Bamidis; C Bond; E Gabarron; M Househ; A Y S Lau; M A Mayer; M Merolli; M Hansen
Journal:  Yearb Med Inform       Date:  2015-08-13

3.  Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations.

Authors:  Luke Gelinas; Robin Pierce; Sabune Winkler; I Glenn Cohen; Holly Fernandez Lynch; Barbara E Bierer
Journal:  Am J Bioeth       Date:  2017-03       Impact factor: 11.229

4.  Private traits and attributes are predictable from digital records of human behavior.

Authors:  Michal Kosinski; David Stillwell; Thore Graepel
Journal:  Proc Natl Acad Sci U S A       Date:  2013-03-11       Impact factor: 11.205

5.  Developing distress protocols for research on sensitive topics.

Authors:  Claire Burke Draucker; Donna S Martsolf; Candice Poole
Journal:  Arch Psychiatr Nurs       Date:  2009-01-15       Impact factor: 2.218

6.  Experimental evidence of massive-scale emotional contagion through social networks.

Authors:  Adam D I Kramer; Jamie E Guillory; Jeffrey T Hancock
Journal:  Proc Natl Acad Sci U S A       Date:  2014-06-02       Impact factor: 11.205

Review 7.  Social network sites as a mode to collect health data: a systematic review.

Authors:  Fahdah Alshaikh; Farzan Ramzan; Salman Rawaf; Azeem Majeed
Journal:  J Med Internet Res       Date:  2014-07-14       Impact factor: 5.428

8.  "The Danger of Lurking": Different Conceptualizations of "User Awareness" in Social Media Research.

Authors:  Gabrielle Samuel
Journal:  Am J Bioeth       Date:  2017-03       Impact factor: 11.229

Review 9.  Social media and internet-based data in global systems for public health surveillance: a systematic review.

Authors:  Edward Velasco; Tumacha Agheneza; Kerstin Denecke; Göran Kirchner; Tim Eckmanns
Journal:  Milbank Q       Date:  2014-03       Impact factor: 4.911

Review 10.  Social media: a review and tutorial of applications in medicine and health care.

Authors:  Francisco Jose Grajales; Samuel Sheps; Kendall Ho; Helen Novak-Lauscher; Gunther Eysenbach
Journal:  J Med Internet Res       Date:  2014-02-11       Impact factor: 5.428

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  28 in total

1.  Malicious Actors on Twitter: A Guide for Public Health Researchers.

Authors:  Amelia M Jamison; David A Broniatowski; Sandra Crouse Quinn
Journal:  Am J Public Health       Date:  2019-03-21       Impact factor: 9.308

2.  Toward Real-Time Infoveillance of Twitter Health Messages.

Authors:  Jason B Colditz; Kar-Hai Chu; Sherry L Emery; Chandler R Larkin; A Everette James; Joel Welling; Brian A Primack
Journal:  Am J Public Health       Date:  2018-06-21       Impact factor: 9.308

Review 3.  Social Media and Obesity in Adults: a Review of Recent Research and Future Directions.

Authors:  Molly E Waring; Danielle E Jake-Schoffman; Marta M Holovatska; Claudia Mejia; Jamasia C Williams; Sherry L Pagoto
Journal:  Curr Diab Rep       Date:  2018-04-18       Impact factor: 4.810

4.  Social Media as an Emerging Data Resource for Epidemiologic Research: Characteristics of Regular and Nonregular Social Media Users in Nurses' Health Study II.

Authors:  Eric S Kim; Peter James; Emily S Zevon; Claudia Trudel-Fitzgerald; Laura D Kubzansky; Francine Grodstein
Journal:  Am J Epidemiol       Date:  2020-02-28       Impact factor: 4.897

5.  Ethical Perspectives in Sharing Digital Data for Public Health Surveillance Before and Shortly After the Onset of the COVID-19 Pandemic.

Authors:  Romina A Romero; Sean D Young
Journal:  Ethics Behav       Date:  2021-03-04

Review 6.  Cardiovascular Disease Screening in Women: Leveraging Artificial Intelligence and Digital Tools.

Authors:  Demilade A Adedinsewo; Amy W Pollak; Sabrina D Phillips; Taryn L Smith; Anna Svatikova; Sharonne N Hayes; Sharon L Mulvagh; Colleen Norris; Veronique L Roger; Peter A Noseworthy; Xiaoxi Yao; Rickey E Carter
Journal:  Circ Res       Date:  2022-02-17       Impact factor: 23.213

7.  Vaccine misinformation on social media - topic-based content and sentiment analysis of Polish vaccine-deniers' comments on Facebook.

Authors:  Krzysztof Klimiuk; Agnieszka Czoska; Karolina Biernacka; Łukasz Balwicki
Journal:  Hum Vaccin Immunother       Date:  2021-01-30       Impact factor: 3.452

Review 8.  Public Health and Epidemiology Informatics: Recent Research Trends Moving toward Public Health Data Science.

Authors:  Sébastien Cossin; Rodolphe Thiébaut
Journal:  Yearb Med Inform       Date:  2020-08-21

9.  Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study.

Authors:  Mariana Rodriguez-Patarroyo; Angelica Torres-Quintero; Andres I Vecino-Ortiz; Kristina Hallez; Aixa Natalia Franco-Rodriguez; Eduardo A Rueda Barrera; Stephanie Puerto; Dustin G Gibson; Alain Labrique; George W Pariyo; Joseph Ali
Journal:  J Empir Res Hum Res Ethics       Date:  2020-09-25       Impact factor: 1.742

Review 10.  The Use of Social Media for Health Research Purposes: Scoping Review.

Authors:  Charline Bour; Adrian Ahne; Susanne Schmitz; Camille Perchoux; Coralie Dessenne; Guy Fagherazzi
Journal:  J Med Internet Res       Date:  2021-05-27       Impact factor: 5.428

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