| Literature DB >> 29346005 |
Ruth F Hunter1, Aisling Gough1, Niamh O'Kane1, Gary McKeown1, Aine Fitzpatrick1, Tom Walker1, Michelle McKinley1, Mandy Lee1, Frank Kee1.
Abstract
Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. Most importantly, public health researchers must work within the ethical principles set out by the Declaration of Helsinki that protect individual users first and foremost.Entities:
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Year: 2018 PMID: 29346005 PMCID: PMC5803813 DOI: 10.2105/AJPH.2017.304249
Source DB: PubMed Journal: Am J Public Health ISSN: 0090-0036 Impact factor: 9.308