Literature DB >> 21181445

Training community health workers about cancer clinical trials.

Lidia Schapira1, Russell Schutt.   

Abstract

Innovative projects to reduce disparities in cancer treatment and research include partnerships between academic and community cancer centers, patient navigation programs and strategies to promote community awareness, education and engagement. A 4 h training program about cancer clinical trials was developed through a needs assessment and in collaboration with community health workers who served as consultants and a larger advisory board comprised of community health workers, educators and clinical trialists. This program was delivered first as a collaboration between a phsycian who is experienced in the conduct of clinical research and two community health workers, and subsequently by the community health workers alone. We report on four workshops attended by a total of 61 community health workers recruited from Boston-area hospitals, community health centers and outreach programs. Support for and knowledge of clinical trials was measured in a pretest and post-test, which also included a satisfaction rating. Participants had a range of prior experience with clinical trials in the context of their personal and professional experience. Mean accuracy of knowledge about clinical trials increased from 72 to 84%, support for clinical trials improved considerably, and satisfaction with the training experience was high. Knowledge gaps and low levels of support for cancer clinical trials among community health workers can be improved with a short training program delivered by other community health workers. Further research is needed to identify the impact of this training on accrual to cancer clinical trials.

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Year:  2011        PMID: 21181445     DOI: 10.1007/s10903-010-9432-7

Source DB:  PubMed          Journal:  J Immigr Minor Health        ISSN: 1557-1912


  33 in total

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Journal:  Cancer       Date:  2007-02-01       Impact factor: 6.860

Review 3.  Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review.

Authors:  Jean G Ford; Mollie W Howerton; Gabriel Y Lai; Tiffany L Gary; Shari Bolen; M Chris Gibbons; Jon Tilburt; Charles Baffi; Teerath Peter Tanpitukpongse; Renee F Wilson; Neil R Powe; Eric B Bass
Journal:  Cancer       Date:  2008-01-15       Impact factor: 6.860

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Journal:  J Intern Med       Date:  1999-06       Impact factor: 8.989

5.  Barriers to participation in randomized clinical trials for early breast cancer among Australian cancer specialists.

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6.  Retention of minority participants in clinical research studies.

Authors:  Colleen S Keller; Adelita Gonzales; K Jill Fleuriet
Journal:  West J Nurs Res       Date:  2005-04       Impact factor: 1.967

7.  Lay patient navigator program implementation for equal access to cancer care and clinical trials: essential steps and initial challenges.

Authors:  Michael L Steinberg; Allen Fremont; David C Khan; David Huang; Herschel Knapp; Deborah Karaman; Nell Forge; Keith Andre; Lisa M Chaiken; Oscar E Streeter
Journal:  Cancer       Date:  2006-12-01       Impact factor: 6.860

8.  Medical mistrust and less satisfaction with health care among Native Americans presenting for cancer treatment.

Authors:  B Ashleigh Guadagnolo; Kristin Cina; Petra Helbig; Kevin Molloy; Mary Reiner; E Francis Cook; Daniel G Petereit
Journal:  J Health Care Poor Underserved       Date:  2009-02

9.  Participation in cancer clinical trials: race-, sex-, and age-based disparities.

Authors:  Vivek H Murthy; Harlan M Krumholz; Cary P Gross
Journal:  JAMA       Date:  2004-06-09       Impact factor: 56.272

10.  Informing breast cancer patients about clinical trials: a randomized clinical trial of an educational booklet.

Authors:  P M Ellis; P N Butow; M H N Tattersall
Journal:  Ann Oncol       Date:  2002-09       Impact factor: 32.976

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  8 in total

1.  Cancer patient navigator tasks across the cancer care continuum.

Authors:  Kathryn L Braun; Marjorie Kagawa-Singer; Alan E C Holden; Linda Burhansstipanov; Jacqueline H Tran; Brenda F Seals; Giselle Corbie-Smith; JoAnn U Tsark; Lisa Harjo; Mary Anne Foo; Amelie G Ramirez
Journal:  J Health Care Poor Underserved       Date:  2012-02

2.  Collaborative development of clinical trials education programs for African-American community-based organizations.

Authors:  Natasha Blakeney; Margo Michaels; Melissa Green; Alan Richmond; Debra Long; William S Robinson; Carmelita Spicer; Sharon Elliott-Bynum; Giselle Corbie-Smith
Journal:  J Cancer Educ       Date:  2015-06       Impact factor: 2.037

3.  Helping cancer patients across the care continuum: the navigation program at the Queen's Medical Center.

Authors:  Amanda L Allison; Debra D M Ishihara-Wong; Jermy B Domingo; Jocelyn Nishioka; Andrea Wilburn; JoAnn U Tsark; Kathryn L Braun
Journal:  Hawaii J Med Public Health       Date:  2013-04

4.  Addressing Breast Cancer Health Disparities in the Mississippi Delta Through an Innovative Partnership for Education, Detection, and Screening.

Authors:  Susan Mayfield-Johnson; Danielle Fastring; Melody Fortune; Freddie White-Johnson
Journal:  J Community Health       Date:  2016-06

Review 5.  Training in Patient Navigation: A Review of the Research Literature.

Authors:  Amy E Ustjanauskas; Marissa Bredice; Sumayah Nuhaily; Lisa Kath; Kristen J Wells
Journal:  Health Promot Pract       Date:  2015-12-08

6.  Patient Navigation As a Model to Increase Participation of African Americans in Cancer Clinical Trials.

Authors:  Mona N Fouad; Aras Acemgil; Sejong Bae; Andres Forero; Nedra Lisovicz; Michelle Y Martin; Gabriela R Oates; Edward E Partridge; Selwyn M Vickers
Journal:  J Oncol Pract       Date:  2016-05-17       Impact factor: 3.840

Review 7.  State-of-the-science of patient navigation as a strategy for enhancing minority clinical trial accrual.

Authors:  Rahel G Ghebre; Lovell A Jones; Jennifer A Wenzel; Michelle Y Martin; Raegan W Durant; Jean G Ford
Journal:  Cancer       Date:  2014-04-01       Impact factor: 6.860

8.  The State of Lupus Clinical Trials: Minority Participation Needed.

Authors:  Saira Z Sheikh; Nicole I Wanty; Joncel Stephens; Kristen D Holtz; Sheryl McCalla
Journal:  J Clin Med       Date:  2019-08-17       Impact factor: 4.241

  8 in total

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