PURPOSE: The purpose of this study was to explore the experience of people with neurological conditions who take the chronic disease self-management (CDSM) programme. The CDSM programme is used to teach skills to manage chronic conditions, and prevent secondary conditions. Few studies have explored the use of the CDSM programme with people with neurological conditions, in spite of the long standing and sometimes unpredictable nature of those conditions. METHOD: This qualitative study explored the experience of people with stroke, multiple sclerosis (MS) and spinal cord injury (SCI) who participated in the CDSM programme. We completed individual interviews using a semi-structured interview guide with 22 individuals with stroke, MS and SCI. RESULTS: Five categories emerged from the interview discussions including: (1) pre-programme influences; (2) group; (3) factors affecting learning opportunities; (4) workshop content and (5) outcomes. CONCLUSIONS: The results of this study provide insights regarding the optimal way to present the CDSM programme to people with neurological conditions.
PURPOSE: The purpose of this study was to explore the experience of people with neurological conditions who take the chronic disease self-management (CDSM) programme. The CDSM programme is used to teach skills to manage chronic conditions, and prevent secondary conditions. Few studies have explored the use of the CDSM programme with people with neurological conditions, in spite of the long standing and sometimes unpredictable nature of those conditions. METHOD: This qualitative study explored the experience of people with stroke, multiple sclerosis (MS) and spinal cord injury (SCI) who participated in the CDSM programme. We completed individual interviews using a semi-structured interview guide with 22 individuals with stroke, MS and SCI. RESULTS: Five categories emerged from the interview discussions including: (1) pre-programme influences; (2) group; (3) factors affecting learning opportunities; (4) workshop content and (5) outcomes. CONCLUSIONS: The results of this study provide insights regarding the optimal way to present the CDSM programme to people with neurological conditions.
Authors: Sarah E P Munce; Sonya Allin; Dalton L Wolfe; Karen Anzai; Gary Linassi; Vanessa K Noonan; Susan B Jaglal Journal: J Spinal Cord Med Date: 2017-07-30 Impact factor: 1.985
Authors: Gurkaran Singh; Ethan Simpson; Megan K MacGillivray; Bonita Sawatzky; Jared Adams; W Ben Mortenson Journal: Top Spinal Cord Inj Rehabil Date: 2022-04-12
Authors: Amanda McIntyre; Stephanie L Marrocco; Samantha A McRae; Lindsay Sleeth; Sander Hitzig; Susan Jaglal; Gary Linassi; Sarah Munce; Dalton L Wolfe Journal: Top Spinal Cord Inj Rehabil Date: 2020
Authors: Amy M Lin; Barbara G Vickrey; Frances Barry; Martin L Lee; Monica Ayala-Rivera; Eric Cheng; Ana V Montoya; Elizabeth Mojarro-Huang; Patricia Gomez; Marissa Castro; Marilyn Corrales; Theresa Sivers-Teixeira; Jamie L Tran; Renee Johnson; Chris Ediss; Betty Shaby; Phyllis Willis; Nerses Sanossian; Bijal Mehta; Tara Dutta; Ali Razmara; Robert Bryg; Shlee Song; Amytis Towfighi Journal: Stroke Date: 2020-09-11 Impact factor: 10.170