Amy M Lin1,2, Barbara G Vickrey3, Frances Barry4, Martin L Lee4,5, Monica Ayala-Rivera1,6,7, Eric Cheng5, Ana V Montoya8, Elizabeth Mojarro-Huang6, Patricia Gomez7, Marissa Castro6,7, Marilyn Corrales7, Theresa Sivers-Teixeira1,7, Jamie L Tran8, Renee Johnson7, Chris Ediss7, Betty Shaby9, Phyllis Willis10, Nerses Sanossian1,6, Bijal Mehta4,8, Tara Dutta7,11, Ali Razmara7,12, Robert Bryg13,14, Shlee Song15, Amytis Towfighi1,6,7. 1. Department of Neurology, University of Southern California (A.M.L., M.A.-R., T.S.-T., N.S., A.T.), Los Angeles. 2. Department of Neurology, Washington University in St. Louis, MO (A.M.L.). 3. Department of Neurology, Icahn School of Medicine at Mount Sinai, New York (B.G.V.). 4. Department of Neurology (F.B., M.L.L., B.M.), University of California, Los Angeles. 5. VA Greater Los Angeles Healthcare System, CA (M.L.L., E.C.). 6. Department of Neurology, LAC+USC Medical Center (M.A.-R., E.M.-H., M.C., N.S., A.T.), Los Angeles. 7. Department of Neurology, Rancho Los Amigos National Rehabilitation Center, Downey, CA (M.A.-R., P.G., M.C., M.C., T.S.-T., R.J., C.E., A.T., T.D., A.R.). 8. Department of Neurology, Harbor-UCLA Medical Center, Torrance, CA (A.V.M., J.L.T., B.M.). 9. Department of Neurology (B.S.), Olive View-UCLA Medical Center, Sylmar, CA. 10. Watts Labor Community Action Committee, Los Angeles, CA (P.W.). 11. Department of Neurology, University of Maryland, Baltimore (T.D.). 12. Department of Neurology, Kaiser Permanente, Irvine, CA (A.R.). 13. Department of Medicine (R.B.), University of California, Los Angeles. 14. Department of Medicine (R.B.), Olive View-UCLA Medical Center, Sylmar, CA. 15. Department of Neurology, Cedars-Sinai Medical Center, Los Angeles, CA (S.S.).
Abstract
BACKGROUND AND PURPOSE: Self-management programs may improve quality of life and self-efficacy for stroke survivors, but participation is low. In a randomized controlled trial of a complex, multidisciplinary, team-based secondary stroke prevention intervention, we offered participants Chronic Disease Self-Management Program (CDSMP) workshops in addition to clinic visits and home visits. To enhance participation, workshops were facilitated by community health workers who were culturally and linguistically concordant with most participants and scheduled CDSMP sessions at convenient venues and times. Over time, we implemented additional strategies such as free transportation and financial incentives. In this study, we aimed to determine factors associated with CDSMP participation and attendance. METHODS: From 2014 to 2018, 18 CDSMP workshop series were offered to 241 English and Spanish-speaking individuals (age ≥40 years) with recent stroke or transient ischemic attack. Zero-inflated Poisson regression was used to identify factors associated with participation and attendance (ie, number of sessions attended) in CDSMP. Missing values were imputed using multiple imputation methods. RESULTS: Nearly one-third (29%) of intervention subjects participated in CDSMP. Moderate disability and more clinic/home visits were associated with participation. Participants with higher numbers of clinic and home visits (incidence rate ratio [IRR], 1.06 [95% CI, 1.01-1.12]), severe (IRR, 2.34 [95% CI, 1.65-3.31]), and moderately severe disability (IRR, 1.55 [95% CI, 1.07-2.23]), and who enrolled later in the study (IRR, 1.12 [95% CI, 1.08-1.16]) attended more sessions. Individuals with higher chaos scores attended fewer sessions (IRR, 0.97 [95% CI, 0.95-0.99]). CONCLUSIONS: Less than one-third of subjects enrolled in the SUCCEED (Secondary Stroke Prevention by Uniting Community and Chronic Care Model Teams Early to End Disparities) intervention participated in CDSMP; however, participation improved as transportation and financial barriers were addressed. Strategies to address social determinants of health contributing to chaos and engage individuals in healthcare may facilitate attendance. Registration: URL: https://www.clinicaltrials.gov. Unique identifier: NCT01763203.
BACKGROUND AND PURPOSE: Self-management programs may improve quality of life and self-efficacy for stroke survivors, but participation is low. In a randomized controlled trial of a complex, multidisciplinary, team-based secondary stroke prevention intervention, we offered participants Chronic Disease Self-Management Program (CDSMP) workshops in addition to clinic visits and home visits. To enhance participation, workshops were facilitated by community health workers who were culturally and linguistically concordant with most participants and scheduled CDSMP sessions at convenient venues and times. Over time, we implemented additional strategies such as free transportation and financial incentives. In this study, we aimed to determine factors associated with CDSMP participation and attendance. METHODS: From 2014 to 2018, 18 CDSMP workshop series were offered to 241 English and Spanish-speaking individuals (age ≥40 years) with recent stroke or transient ischemic attack. Zero-inflated Poisson regression was used to identify factors associated with participation and attendance (ie, number of sessions attended) in CDSMP. Missing values were imputed using multiple imputation methods. RESULTS: Nearly one-third (29%) of intervention subjects participated in CDSMP. Moderate disability and more clinic/home visits were associated with participation. Participants with higher numbers of clinic and home visits (incidence rate ratio [IRR], 1.06 [95% CI, 1.01-1.12]), severe (IRR, 2.34 [95% CI, 1.65-3.31]), and moderately severe disability (IRR, 1.55 [95% CI, 1.07-2.23]), and who enrolled later in the study (IRR, 1.12 [95% CI, 1.08-1.16]) attended more sessions. Individuals with higher chaos scores attended fewer sessions (IRR, 0.97 [95% CI, 0.95-0.99]). CONCLUSIONS: Less than one-third of subjects enrolled in the SUCCEED (Secondary Stroke Prevention by Uniting Community and Chronic Care Model Teams Early to End Disparities) intervention participated in CDSMP; however, participation improved as transportation and financial barriers were addressed. Strategies to address social determinants of health contributing to chaos and engage individuals in healthcare may facilitate attendance. Registration: URL: https://www.clinicaltrials.gov. Unique identifier: NCT01763203.
Entities:
Keywords:
quality of life; secondary prevention; self-efficacy; self-management
Authors: W E Cunningham; R M Andersen; M H Katz; M D Stein; B J Turner; S Crystal; S Zierler; K Kuromiya; S C Morton; P St Clair; S A Bozzette; M F Shapiro Journal: Med Care Date: 1999-12 Impact factor: 2.983
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Authors: Amytis Towfighi; Eric M Cheng; Monica Ayala-Rivera; Frances Barry; Heather McCreath; David A Ganz; Martin L Lee; Nerses Sanossian; Bijal Mehta; Tara Dutta; Ali Razmara; Robert Bryg; Shlee S Song; Phyllis Willis; Shinyi Wu; Magaly Ramirez; Adam Richards; Nicholas Jackson; Jeremy Wacksman; Brian Mittman; Jamie Tran; Renee R Johnson; Chris Ediss; Theresa Sivers-Teixeira; Betty Shaby; Ana L Montoya; Marilyn Corrales; Elizabeth Mojarro-Huang; Marissa Castro; Patricia Gomez; Cynthia Muñoz; Diamond Garcia; Lilian Moreno; Maura Fernandez; Enrique Lopez; Sarah Valdez; Hilary R Haber; Valerie A Hill; Neal M Rao; Beatrice Martinez; Lillie Hudson; Natalie P Valle; Barbara G Vickrey Journal: JAMA Netw Open Date: 2021-02-01
Authors: David H Saunders; Gillian E Mead; Claire Fitzsimons; Paul Kelly; Frederike van Wijck; Olaf Verschuren; Karianne Backx; Coralie English Journal: Cochrane Database Syst Rev Date: 2021-06-29