| Literature DB >> 26432093 |
Emma J Boger1, Matthew Hankins2, Sara H Demain3, Susan M Latter4.
Abstract
BACKGROUND: Self-management is important to the recovery and quality of life of people following stroke. Many interventions to support self-management following stroke have been developed, however to date no reliable and valid outcome measure exists to support their evaluation. This study outlines the development and preliminary investigation of the psychometric performance of a newly developed patient-reported outcome measure (PROM) of self-management competency following stroke; the Southampton Stroke Self-Management Questionnaire (SSSMQ).Entities:
Mesh:
Year: 2015 PMID: 26432093 PMCID: PMC4592550 DOI: 10.1186/s12955-015-0349-7
Source DB: PubMed Journal: Health Qual Life Outcomes ISSN: 1477-7525 Impact factor: 3.186
Full items presented for psychometric testing
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| 7 | There is little point in trying new ways of managing the consequences of stroke, as it will not change my condition (r) |
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| 10 | It is difficult to stay motivated to do tasks or strategies important to my recovery (r) |
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| 19 | I try different ways of doing things, until I find out what works for my health |
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| 36 | My efforts to manage the consequences of stroke turn out how I like |
| 37 | I am able to control my general health |
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Items in BOLD text were retained following analysis (r) = indicate items that are reverse scored Items in italics did not meet model criteria (H coefficients <0.3)
Summary of sample characteristics
| Questionnaire | |||
|---|---|---|---|
| SSSMQa | SSEQa | SISa | |
| No. of complete responses (% of returned responses, | 87 | 83 | 74 |
| (92) | (87) | (78) | |
| Age range (years) | (27–89) | (27–89) | (27–89) |
| Mean | 58.40 | 59.20 | 57.99 |
| [SD] | [14.74] | [14.74] | [14.66] |
| Male gender (%) | 40 (51) | 43 (52) | 37 (50) |
| Mean months since | 55 | 59 | 51 |
| stroke [SD] | [63.36] | [63.82] | [56.29] |
| range# | 319# | 319# | 273# |
| Mode of completion | |||
| Paper (% of returned responses, | 26 | 26 | 23 |
| (38) | (38) | (24) | |
| Online (% of returned responses, | 69 | 69 | 72 |
| (62) | (62) | (76) | |
| Living situation | |||
| Live with others | 79 | 78 | 78 |
| Live alone | 19 | 21 | 22 |
| Unknown | 2 | 1 | 0 |
| Ethnicity | |||
| White European ethnicity | 90 | 90 | 89 |
| Non-white European ethnicity | 10 | 10 | 11 |
a SSSMQ Southampton Self-Management Questionnaire, SSEQ Stroke Self-Efficacy Questionnaire, SIS Stroke Impact Scale
Fig. 1Summary of SSSMQ development
Non-parametric correlation matrix of SSSMQ with additional measures
| SSSMQ | SSEQ | Strength~ | Hand function~ | ADL/IADL~ | Mobility~ | Communication~ | Emotion~ | Memory & thinking~ | Participation/role function~ | 0-100 perceived recovery ~ | |
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| SSSMQ | .62a | .05 | .10 | .24a | .25a | .38a | .59a | .49a | .36a | .61a |
SSSMQ Southampton Stroke Self-Management Questionnaire (n = 87), SSEQ Stroke self-efficacy questionnaire (n = 83) ~ domain of the Stroke Impact Scale (n = 74) aSignificant at the 0.01 level or lower
Item response summaries for SSSMQ (n=87) avalues rounded to 2 decimal places
| Item No | Item (r- denotes reverse score) | Meana | SDa |
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| 1 | The effects of stroke mean that I cannot manage my recovery and health (r) | 4.23 | 1.54 |
| 2 | When things do not go well with my stroke, it is hard to stay positive (r) | 3.04 | 1.45 |
| 3 | It is not up to me to decide what the best ways to manage my stroke are (r) | 2.72 | 1.19 |
| 4 | The physical effects of stroke mean that I cannot manage my health as I would like (r) | 3.84 | 1.60 |
| 5 | It is hard to be motivated to seek out solutions to problems relating to stroke (r) | 3.25 | 1.47 |
| 6 | I am not sure what signs or symptoms might mean my health is changing (r) | 4.27 | 1.56 |
| 7 | My problems with communication mean that I cannot manage my health as I would like (r) | 3.92 | 1.68 |
| 8 | Whatever I do, I will not improve my condition (r) | 4.50 | 1.15 |
| 9 | The efforts I take to manage my health have a positive effect | 4.84 | 1.11 |
| 10 | I find it difficult to tell health care professionals what I want or need (r) | 4.83 | 1.27 |
| 11 | I work out ways of managing my health following stroke together with health care professionals | 3.68 | 1.41 |
| 12 | I am confident that health care professionals can answer my questions | 4.87 | 1.41 |
| 13 | I feel confident at discussing any advice I don’t understand with Doctors | 3.90 | 1.64 |
| 14 | I feel confident at getting the information I need from health care professionals | 3.50 | 1.58 |
| 15 | I know how to get help if I am concerned about my condition | 3.86 | 1.41 |
| 16 | I plan my day so I can get things done without being tired | 4.18 | 1.41 |
| 17 | I feel confident asking family members to help me do things important to my health | 4.08 | 1.29 |
| 18 | I manage things related to stroke as well as other people with stroke | 3.19 | 1.64 |
| 19 | I try different ways of doing things, until I find out what works for me | 4.24 | 1.66 |
| 20 | Ideas and things that work for other people with stroke are helpful to my recovery | 4.27 | 1.62 |
| 21 | I have useful information or advice to give to others regarding managing stroke | 3.83 | 1.57 |
| 22 | I feel comfortable asking friends to help me do things important to my health | 4.12 | 1.48 |
| 23 | I am concerned that the things I do to manage stroke, may cause harm if not guided by health care professionals (r) | 4.58 | 1.09 |
| 24 | I cannot alter what my healthcare professionals decide to do about my stroke (r) | 4.67 | 1.03 |
| 25 | My condition would improve if I received more professional help (r) | 4.55 | 1.23 |
| 26 | Following advice from health care professionals is the only way I will manage stroke (r) | 4.10 | 1.50 |
| 27 | I always follow professional advice about my health, to the letter (r) | 4.53 | 1.49 |
| 28 | Constant professional advice would help me to manage my stroke (r) | 4.56 | 1.03 |