Literature DB >> 20579283

The evolution of health care advance planning law and policy.

Charles P Sabatino1.   

Abstract

CONTEXT: The legal tools of health care advance planning have substantially changed since their emergence in the mid-1970s. Thirty years of policy development, primarily at the state legislative level addressing surrogate decision making and advance directives, have resulted in a disjointed policy landscape, yet with important points of convergence evolving over time. An understanding of the evolution of advance care planning policy has important implications for policy at both the state and federal levels.
METHODS: This article is a longitudinal statutory and literature review of health care advance planning from its origins to the present.
FINDINGS: While considerable variability across the states still remains, changes in law and policy over time suggest a gradual paradigm shift from what is described as a "legal transactional approach" to a "communications approach," the most recent extension of which is the emergence of Physician Orders for Life-Sustaining Treatment, or POLST. The communications approach helps translate patients' goals into visible and portable medical orders.
CONCLUSIONS: States are likely to continue gradually moving away from a legal transactional mode of advance planning toward a communications model, albeit with challenges to authentic and reliable communication that accurately translates patients' wishes into the care they receive. In the meantime, the states and their health care institutions will continue to serve as the primary laboratory for advance care planning policy and practice.

Entities:  

Mesh:

Year:  2010        PMID: 20579283      PMCID: PMC2980344          DOI: 10.1111/j.1468-0009.2010.00596.x

Source DB:  PubMed          Journal:  Milbank Q        ISSN: 0887-378X            Impact factor:   4.911


  32 in total

1.  "Revolutionary" national living will unveiled; document is legally valid in 33 states.

Authors:  M Katz
Journal:  Balance       Date:  1999 Sep-Oct

Review 2.  Current research findings on end-of-life decision making among racially or ethnically diverse groups.

Authors:  Jung Kwak; William E Haley
Journal:  Gerontologist       Date:  2005-10

Review 3.  The state of advance care planning: one decade after SUPPORT.

Authors:  Lauren G Collins; Susan M Parks; Laraine Winter
Journal:  Am J Hosp Palliat Care       Date:  2006 Oct-Nov       Impact factor: 2.500

4.  The POLST (Physician Orders for Life-Sustaining Treatment) paradigm to improve end-of-life care: potential state legal barriers to implementation.

Authors:  Susan E Hickman; Charles P Sabatino; Alvin H Moss; Jessica Wehrle Nester
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

5.  Association between advance directives and quality of end-of-life care: a national study.

Authors:  Joan M Teno; Andrea Gruneir; Zachary Schwartz; Aman Nanda; Terrie Wetle
Journal:  J Am Geriatr Soc       Date:  2007-02       Impact factor: 5.562

6.  Beyond advance directives: importance of communication skills at the end of life.

Authors:  James A Tulsky
Journal:  JAMA       Date:  2005-07-20       Impact factor: 56.272

7.  Development of an interactive computer program for advance care planning.

Authors:  Michael J Green; Benjamin H Levi
Journal:  Health Expect       Date:  2008-09-25       Impact factor: 3.377

Review 8.  The accuracy of surrogate decision makers: a systematic review.

Authors:  David I Shalowitz; Elizabeth Garrett-Mayer; David Wendler
Journal:  Arch Intern Med       Date:  2006-03-13

9.  Use of the Physician Orders for Life-Sustaining Treatment (POLST) paradigm program in the hospice setting.

Authors:  Susan E Hickman; Christine A Nelson; Alvin H Moss; Bernard J Hammes; Allison Terwilliger; Ann Jackson; Susan W Tolle
Journal:  J Palliat Med       Date:  2009-02       Impact factor: 2.947

10.  Inconsistency over time in the preferences of older persons with advanced illness for life-sustaining treatment.

Authors:  Terri R Fried; John O'Leary; Peter Van Ness; Liana Fraenkel
Journal:  J Am Geriatr Soc       Date:  2007-07       Impact factor: 5.562

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  31 in total

1.  Surrogate decision-making in Korean patients with advanced cancer: a longitudinal study.

Authors:  June Koo Lee; Bhumsuk Keam; Ah Reum An; Tae Min Kim; Se-Hoon Lee; Dong-Wan Kim; Dae Seog Heo
Journal:  Support Care Cancer       Date:  2012-05-31       Impact factor: 3.603

2.  Failure of the Current Advance Care Planning Paradigm: Advocating for a Communications-Based Approach.

Authors:  Laura Vearrier
Journal:  HEC Forum       Date:  2016-12

3.  Who Decides When a Patient Can't? Statutes on Alternate Decision Makers.

Authors:  Erin S DeMartino; David M Dudzinski; Cavan K Doyle; Beau P Sperry; Sarah E Gregory; Mark Siegler; Daniel P Sulmasy; Paul S Mueller; Daniel B Kramer
Journal:  N Engl J Med       Date:  2017-04-13       Impact factor: 91.245

4.  An assessment of social diffusion in the Respecting Choices advance care planning program.

Authors:  Sara M Moorman; Deborah Carr; Karin T Kirchhoff; Bernard J Hammes
Journal:  Death Stud       Date:  2012-04

5.  The POLST paradigm and form:Facts and analysis.

Authors:  Christian Brugger; Louis C Breschi; Edith Mary Hart; Mark Kummer; John I Lane; Peter T Morrow; Franklin L Smith; William L Toffler; Marisa Beffel; John F Brehany; Sara Buscher; Rita L Marker
Journal:  Linacre Q       Date:  2013-05

6.  Do-Not-Resuscitate Orders among Patients with ESKD Admitted to the Intensive Care Unit: A Bird's Eye View.

Authors:  Jennifer S Scherer; Ann M O'Hare
Journal:  J Am Soc Nephrol       Date:  2020-08-27       Impact factor: 10.121

7.  Persistent problems in end-of-life planning among young- and middle-aged American couples.

Authors:  Sara M Moorman; Megumi Inoue
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2012-11-12       Impact factor: 4.077

Review 8.  The Voice Is As Mighty As the Pen: Integrating Conversations into Advance Care Planning.

Authors:  Kunal Bailoor; Leslie H Kamil; Ed Goldman; Laura M Napiewocki; Denise Winiarski; Christian J Vercler; Andrew G Shuman
Journal:  J Bioeth Inq       Date:  2018-03-17       Impact factor: 1.352

9.  Improving Medical-Legal Advance Care Planning.

Authors:  Sarah Hooper; Charles P Sabatino; Rebecca L Sudore
Journal:  J Pain Symptom Manage       Date:  2020-03-30       Impact factor: 3.612

Review 10.  Evaluation of the capacity to appoint a healthcare proxy.

Authors:  Jennifer Moye; Charles P Sabatino; Rebecca Weintraub Brendel
Journal:  Am J Geriatr Psychiatry       Date:  2013-04       Impact factor: 4.105

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