Literature DB >> 29550975

The Voice Is As Mighty As the Pen: Integrating Conversations into Advance Care Planning.

Kunal Bailoor1, Leslie H Kamil1, Ed Goldman1, Laura M Napiewocki1, Denise Winiarski1, Christian J Vercler1, Andrew G Shuman2.   

Abstract

Advance care planning allows patients to articulate preferences for their medical treatment, lifestyle, and surrogate decision-makers in order to anticipate and mitigate their potential loss of decision-making capacity. Written advance directives are often emphasized in this regard. While these directives contain important information, there are several barriers to consider: veracity and accuracy of surrogate decision-makers in making choices consistent with the substituted judgement standard, state-to-state variability in regulations, literacy issues, lack of access to legal resources, lack of understanding of medical options, and cultural disparities. Given these issues, it is vital to increase the use of patient and healthcare provider conversations as an advance care planning tool and to increase integration of such discourse into advance care planning policy as adjuncts and complements to written advance directives. This paper reviews current legislation about written advance directives and dissects how documentation of spoken interactions might be integrated and considered. We discuss specific institutional policy changes required to facilitate implementation. Finally, we explore the ethical issues surrounding the increased usage and recognition of clinician-patient conversations in advance care planning.

Entities:  

Keywords:  Advance care planning; Advance directive; Substituted judgement; Surrogate decision-making

Mesh:

Year:  2018        PMID: 29550975     DOI: 10.1007/s11673-018-9848-7

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  34 in total

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2.  The POLST (Physician Orders for Life-Sustaining Treatment) paradigm to improve end-of-life care: potential state legal barriers to implementation.

Authors:  Susan E Hickman; Charles P Sabatino; Alvin H Moss; Jessica Wehrle Nester
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

3.  Predicting changes in preferences for life-sustaining treatment among patients with advanced chronic organ failure.

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4.  POST Forms More Than Advance Directives Associated With Out-of-Hospital Death: Insights From a State Registry.

Authors:  Sandra L Pedraza; Stacey Culp; Evan C Falkenstine; Alvin H Moss
Journal:  J Pain Symptom Manage       Date:  2015-10-23       Impact factor: 3.612

5.  Seven legal barriers to end-of-life care: myths, realities, and grains of truth.

Authors:  A Meisel; L Snyder; T Quill
Journal:  JAMA       Date:  2000-11-15       Impact factor: 56.272

6.  The role of perceived team effectiveness in improving chronic illness care.

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Journal:  Med Care       Date:  2004-11       Impact factor: 2.983

7.  Readability of state-sponsored advance directive forms in the United States: a cross sectional study.

Authors:  Luke A Mueller; Kevin I Reid; Paul S Mueller
Journal:  BMC Med Ethics       Date:  2010-04-25       Impact factor: 2.652

8.  Use of the Physician Orders for Life-Sustaining Treatment among California Nursing Home Residents.

Authors:  Lee A Jennings; David Zingmond; Rachel Louie; Chi-Hong Tseng; Judy Thomas; Kate O'Malley; Neil S Wenger
Journal:  J Gen Intern Med       Date:  2016-05-17       Impact factor: 5.128

9.  Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics.

Authors: 
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124

10.  Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study.

Authors:  Julia D Lotz; Ralf J Jox; Gian Domenico Borasio; Monika Führer
Journal:  Palliat Med       Date:  2014-11-11       Impact factor: 4.762

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  4 in total

1.  Bioethics and the Freedom Road. The JBI Community and the Change We Want To See.

Authors:  Michael A Ashby; Bronwen Morrell
Journal:  J Bioeth Inq       Date:  2018-06       Impact factor: 1.352

2.  The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research.

Authors:  Linghui Chen; Guo Yin; Siting Lin; Yuanxia Li
Journal:  BMC Psychiatry       Date:  2022-07-13       Impact factor: 4.144

3.  The Effect of Health Literacy on a Brief Intervention to Improve Advance Directive Completion: A Randomized Controlled Study.

Authors:  Paige C Barker; Neal P Holland; Oliver Shore; Robert L Cook; Yang Zhang; Carrie D Warring; Melanie G Hagen
Journal:  J Prim Care Community Health       Date:  2021 Jan-Dec

4.  Introducing a Supportive Care Team for Advance Directive Education in a Neurological and Neurosurgical Patient Population.

Authors:  Charlotte Henke; Emily Mroz; Ngoc Anh Le; Hannah M Gregory; Ashley Ghiaseddin; Nikolaus R McFarland; Jacqueline Baron-Lee
Journal:  J Patient Exp       Date:  2020-06-23
  4 in total

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