Literature DB >> 20077981

Going the distance: overcoming challenges in recruitment and retention of Black and White women in multisite, longitudinal study of predictors of coronary heart disease.

Jean C McSweeney1, Christina M Pettey, Ellen P Fischer, Alisa Spellman.   

Abstract

High recruitment and retention rates are hallmarks of scientifically rigorous longitudinal research. However, recruitment and retention are challenging, especially with older adults and minorities. In this article, we discuss strategies that have enabled us to retain more than 80% of both Black and White women in a 5-year observational study. To overcome challenges such as staff turnover and introduction of computerized record systems, we developed a time-saving handout, streamlined procedures for documenting contact information, and motivated site staff through weekly personal contact. We responded to problems with mailed privacy consent forms by garnering approval for verbal consent that allowed immediate response to participants' questions. In addition to standard steps to minimize attrition, we encouraged ongoing participation with personal letters following interviews, "refrigerator reminders" of the next interview date, and "missing you" letters following missed appointments. We believe these and other strategies described in this article were responsible for our high retention rate. Copyright 2009, SLACK Incorporated.

Entities:  

Mesh:

Year:  2009        PMID: 20077981      PMCID: PMC2854651          DOI: 10.3928/19404921-20090803-01

Source DB:  PubMed          Journal:  Res Gerontol Nurs        ISSN: 1938-2464            Impact factor:   1.571


  32 in total

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3.  Recruitment and retention of older adults in influenza immunization study.

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Review 4.  Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research.

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Journal:  J Consult Clin Psychol       Date:  1996-10

5.  Correlates of Mini-Mental Status Examination scores among elderly demented patients: the influence of race-ethnicity.

Authors:  M Bohnstedt; P J Fox; N D Kohatsu
Journal:  J Clin Epidemiol       Date:  1994-12       Impact factor: 6.437

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7.  Global burden of diabetes, 1995-2025: prevalence, numerical estimates, and projections.

Authors:  H King; R E Aubert; W H Herman
Journal:  Diabetes Care       Date:  1998-09       Impact factor: 19.112

8.  Age-specific norms for the Mini-Mental State Exam.

Authors:  M L Bleecker; K Bolla-Wilson; C Kawas; J Agnew
Journal:  Neurology       Date:  1988-10       Impact factor: 9.910

9.  Preventing HIV infection: the effects of community linkages, time, and money on recruiting and retaining women in intervention groups.

Authors:  J Greenberg; J Lifshay; N Van Devanter; V Gonzales; D Celentano
Journal:  J Womens Health       Date:  1998-06       Impact factor: 2.681

10.  A longitudinal study of functional status and correlates following coronary artery bypass graft surgery in women.

Authors:  Mary Jane K DiMattio; Lorraine Tulman
Journal:  Nurs Res       Date:  2003 Mar-Apr       Impact factor: 2.381

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  14 in total

1.  Retention of Ethnic Participants in Longitudinal Studies.

Authors:  Pavneet Singh; Twyla Ens; K Alix Hayden; Shane Sinclair; Pam LeBlanc; Moaz Chohan; Kathryn M King-Shier
Journal:  J Immigr Minor Health       Date:  2018-08

2.  Using the McSweeney Acute and Prodromal Myocardial Infarction Symptom Survey to Predict the Occurrence of Short-Term Coronary Heart Disease Events in Women.

Authors:  Jean C McSweeney; Mario A Cleves; Ellen P Fischer; Christina M Pettey; Brittany Beasley
Journal:  Womens Health Issues       Date:  2017-08-19

3.  Perceptions of Study Newsletters for Older Cancer Patients in Longitudinal Studies.

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Journal:  J Cancer Educ       Date:  2018-04       Impact factor: 2.037

4.  Why do people participate in epidemiological research?

Authors:  Claudia Slegers; Deborah Zion; Deborah Glass; Helen Kelsall; Lin Fritschi; Ngiare Brown; Bebe Loff
Journal:  J Bioeth Inq       Date:  2015-02-12       Impact factor: 1.352

5.  Characterizing researchers by strategies used for retaining minority participants: results of a national survey.

Authors:  James Butler; Sandra C Quinn; Craig S Fryer; Mary A Garza; Kevin H Kim; Stephen B Thomas
Journal:  Contemp Clin Trials       Date:  2013-06-10       Impact factor: 2.226

6.  Challenge and Yield of Enrolling Racially and Ethnically Diverse Patient Populations in Low Event Rate Clinical Trials.

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Journal:  Stroke       Date:  2017-11-30       Impact factor: 7.914

7.  Racial/ethnic concordance between patients and researchers as a predictor of study attrition.

Authors:  Irina Mindlis; David Livert; Alex D Federman; Juan P Wisnivesky; Tracey A Revenson
Journal:  Soc Sci Med       Date:  2020-04-22       Impact factor: 4.634

8.  Using Vignette-Based Methodology to Examine Study Recruitment in Older African American Adults: A Methods Paper.

Authors:  Charlene J Gamboa; Wrenetha A Julion; Louis Fogg; Dawn T Bounds
Journal:  J Urban Health       Date:  2021-07-28       Impact factor: 5.801

9.  Recruitment and retention of underrepresented and vulnerable populations to research.

Authors:  Shelby L Langer; Felipe González Castro; Angela Chia-Chen Chen; Kelly Cue Davis; Rodney P Joseph; Wonsun Sunny Kim; Linda Larkey; Rebecca E Lee; Megan E Petrov; Elizabeth Reifsnider; Shawn D Youngstedt; Gabriel Q Shaibi
Journal:  Public Health Nurs       Date:  2021-07-08       Impact factor: 1.462

10.  Differences in recruitment and early retention among ethnic minority participants in a large pediatric cohort: the TEDDY Study.

Authors:  Judith Baxter; Kendra Vehik; Suzanne Bennett Johnson; Barbro Lernmark; Roswith Roth; Tuula Simell
Journal:  Contemp Clin Trials       Date:  2012-03-29       Impact factor: 2.261

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