Literature DB >> 23764697

Characterizing researchers by strategies used for retaining minority participants: results of a national survey.

James Butler1, Sandra C Quinn, Craig S Fryer, Mary A Garza, Kevin H Kim, Stephen B Thomas.   

Abstract

Limited attention has been given to the optimal strategies for retaining racial and ethnic minorities within studies and during the follow-up period. High attrition limits the interpretation of results and reduces the ability to translate findings into successful interventions. This study examined the retention strategies used by researchers when retaining minorities in research studies. From May to August 2010, we conducted an online survey with researchers (principal investigators, research staff, and IRB members) and examined their use of seven commonly used retention strategies. The number and type of retention strategies used, how these strategies differ by researcher type, and other characteristics (e.g., funding) were explored. We identified three clusters of researchers: comprehensive retention strategy researchers - utilized the greatest number of retention strategies; moderate retention strategy researchers - utilized an average number of retention strategies; and limited retention strategy researchers - utilized the least number of retention strategies. The comprehensive and moderate retention strategy researchers were more likely than the limited retention strategy researchers to conduct health outcomes research, work with a community advisory board, hire minority staff, use steps at a higher rate to overcome retention barriers, develop new partnerships with the minority community, modify study materials for the minority population, and allow staff to work flexible schedules. This study is a novel effort to characterize researchers, without implying a value judgment, according to their use of specific retention strategies. It provides critical information for conducting future research to determine the effectiveness of using a combination of retention strategies.
Copyright © 2013. Published by Elsevier Inc.

Entities:  

Keywords:  Racial and ethnic minorities; Research; Retention; Strategies

Mesh:

Year:  2013        PMID: 23764697      PMCID: PMC3769439          DOI: 10.1016/j.cct.2013.05.014

Source DB:  PubMed          Journal:  Contemp Clin Trials        ISSN: 1551-7144            Impact factor:   2.226


  35 in total

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Authors:  D R Brown; M N Fouad; K Basen-Engquist; G Tortolero-Luna
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2.  Attributes of researchers and their strategies to recruit minority populations: results of a national survey.

Authors:  Sandra Crouse Quinn; James Butler; Craig S Fryer; Mary A Garza; Kevin H Kim; Christopher Ryan; Stephen B Thomas
Journal:  Contemp Clin Trials       Date:  2012-07-05       Impact factor: 2.226

3.  Participation in research studies: factors associated with failing to meet minority recruitment goals.

Authors:  Raegan W Durant; Roger B Davis; Diane Marie M St George; Ishan Canty Williams; Connie Blumenthal; Giselle M Corbie-Smith
Journal:  Ann Epidemiol       Date:  2007-05-25       Impact factor: 3.797

4.  Outcomes research: measuring the end results of health care.

Authors:  C M Clancy; J M Eisenberg
Journal:  Science       Date:  1998-10-09       Impact factor: 47.728

5.  Maximizing retention in community-based clinical trials.

Authors:  Linda Lindsey Davis; Marion E Broome; Ruth P Cox
Journal:  J Nurs Scholarsh       Date:  2002       Impact factor: 3.176

6.  Retention of women enrolled in a prospective study of human immunodeficiency virus infection: impact of race, unstable housing, and use of human immunodeficiency virus therapy.

Authors:  N A Hessol; M Schneider; R M Greenblatt; M Bacon; Y Barranday; S Holman; E Robison; C Williams; M Cohen; K Weber
Journal:  Am J Epidemiol       Date:  2001-09-15       Impact factor: 4.897

7.  Attrition in an exercise intervention: a comparison of early and later dropouts.

Authors:  J A Schmidt; C Gruman; M B King; L I Wolfson
Journal:  J Am Geriatr Soc       Date:  2000-08       Impact factor: 5.562

8.  Ethnic Identity predicts loss-to-follow-up in a health promotion trial.

Authors:  Aisha T Langford; Ken Resnicow; Rachel E Davis; Gwen L Alexander; Josephine Calvi; Cheryl Weise; Dennis Tolsma
Journal:  Contemp Clin Trials       Date:  2010-07-01       Impact factor: 2.226

9.  Going the distance: overcoming challenges in recruitment and retention of Black and White women in multisite, longitudinal study of predictors of coronary heart disease.

Authors:  Jean C McSweeney; Christina M Pettey; Ellen P Fischer; Alisa Spellman
Journal:  Res Gerontol Nurs       Date:  2009-10-27       Impact factor: 1.571

10.  Participant recruitment and retention in a pilot program to prevent weight gain in low-income overweight and obese mothers.

Authors:  Mei-Wei Chang; Roger Brown; Susan Nitzke
Journal:  BMC Public Health       Date:  2009-11-21       Impact factor: 3.295

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Journal:  Prev Med       Date:  2014-10-05       Impact factor: 4.018

2.  A randomized trial to assess retention rates using mobile phone reminders versus physical contact tracing in a potential HIV vaccine efficacy population of fishing communities around Lake Victoria, Uganda.

Authors:  Noah Kiwanuka; Juliet Mpendo; Stephen Asiimwe; Julius Ssempiira; Annet Nalutaaya; Betty Nambuusi; Mathias Wambuzi; Brian Kabuubi; Annemarie Namuniina; Frederick Oporia; Annet Nanvubya; Ali Ssetaala
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Review 3.  Recommendations to encourage participation of individuals from diverse backgrounds in psychiatric genetic studies.

Authors:  Casey MacDermod; Michaela A Pettie; Emily A Carrino; Susana Cruz Garcia; Sophie Padalecki; Jody E Finch; Christina Sanzari; Hannah L Kennedy; Pratiksha S Pawar; Makenna M Mcgough; Ava Iwashita; Mary Takgbajouah; Danielle Coan; Lindsey Szakasits; Rachel W Goode; Ya-Ke Wu; Mae Lynn Reyes-Rodríguez; Eva María Trujillo Chi Vacuán; Martin A Kennedy; Lana Cleland; Jennifer Jordan; Sarah Maguire; Jerry D Guintivano; Paola Giusti-Rodríguez; Jessica H Baker; Laura M Thornton; Cynthia M Bulik
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2022-07-04       Impact factor: 3.358

4.  Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study.

Authors:  Alka M Kanaya; Ann Chang; Michael Schembri; Ankita Puri-Taneja; Shweta Srivastava; Swapna S Dave; Evangeline N Vijayakumar; Zubaida Qamar; Hemalatha D Naik; Faiza Siddiqui; Namratha R Kandula
Journal:  J Clin Transl Sci       Date:  2019-05-27

5.  Developing an online, searchable database to systematically map and organise current literature on retention research (ORRCA2).

Authors:  Anna Kearney; Polly-Anna Ashford; Laura Butlin; Thomas Conway; William J Cragg; Declan Devane; Heidi Gardner; Daisy M Gaunt; Katie Gillies; Nicola L Harman; Andrew Hunter; Athene J Lane; Catherine McWilliams; Louise Murphy; Carrie O'Nions; Edward N Stanhope; Akke Vellinga; Paula R Williamson; Carrol Gamble
Journal:  Clin Trials       Date:  2021-10-24       Impact factor: 2.599

  5 in total

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