Literature DB >> 20038649

Ethics and community-based participatory research: perspectives from the field.

Elena M Bastida1, Tung-Sung Tseng, Corliss McKeever, Leonard Jack.   

Abstract

Exploring the importance of ethical issues in the conduct of community-based participatory research (CBPR) continues to be an important topic for researchers and practitioners. This article uses the Beyond Sabor Project, a CBPR project implemented in the Lower Rio Grande Valley, as a case example to discuss ethical issues such as the importance of increasing community involvement in research, ensuring that communities benefit from the research, sharing leadership roles, and sensitive issues regarding data collection and sharing. Thereafter, this article concludes with a brief discussion of six principles that can inform the practice of ethical conduct when implementing CBPR studies. This article also lists additional reading resources on the importance of ethics in the conduct of CBPR.

Entities:  

Mesh:

Year:  2010        PMID: 20038649      PMCID: PMC3012623          DOI: 10.1177/1524839909352841

Source DB:  PubMed          Journal:  Health Promot Pract        ISSN: 1524-8399


  9 in total

1.  Ethics and community-based participatory research: commentary on Minkler.

Authors:  Lawrence W Green
Journal:  Health Educ Behav       Date:  2004-12

Review 2.  Awareness and knowledge of the U.S. Public Health Service syphilis study at Tuskegee: implications for biomedical research.

Authors:  Jan M McCallum; Dhananjaya M Arekere; B Lee Green; Ralph V Katz; Brian M Rivers
Journal:  J Health Care Poor Underserved       Date:  2006-11

3.  The influence of ethical theories in the practice of health education.

Authors:  Steven E Shive; Ray Marks
Journal:  Health Promot Pract       Date:  2006-07

4.  "It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research.

Authors:  Ruth E Malone; Valerie B Yerger; Carol McGruder; Erika Froelicher
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

5.  Awareness of the Tuskegee Syphilis Study and the US presidential apology and their influence on minority participation in biomedical research.

Authors:  Ralph V Katz; S Stephen Kegeles; Nancy R Kressin; B Lee Green; Sherman A James; Min Qi Wang; Stefanie L Russell; Cristina Claudio
Journal:  Am J Public Health       Date:  2007-09-27       Impact factor: 9.308

6.  Statewide Tuskegee Alliance for clinical trials. A community coalition to enhance minority participation in medical research.

Authors:  M N Fouad; E Partridge; T Wynn; B L Green; C Kohler; S Nagy
Journal:  Cancer       Date:  2001-01-01       Impact factor: 6.860

7.  An examination of community members', researchers' and health professionals' perceptions of barriers to minority participation in medical research: an application of concept mapping.

Authors:  JaMuir M Robinson; William M K Trochim
Journal:  Ethn Health       Date:  2007-11       Impact factor: 2.772

8.  The project IMPACT experience to date: increasing minority participation and awareness of clinical trials.

Authors:  James H Powell; Yolanda Fleming; Cheryl Lynn Walker-McGill; Michael Lenoir
Journal:  J Natl Med Assoc       Date:  2008-02       Impact factor: 1.798

9.  The legacy of the Tuskegee Syphilis Study: assessing its impact on willingness to participate in biomedical studies.

Authors:  Ralph V Katz; B Lee Green; Nancy R Kressin; S Stephen Kegeles; Min Qi Wang; Sherman A James; Stefanie L Russell; Cristina Claudio; Jan M McCallum
Journal:  J Health Care Poor Underserved       Date:  2008-11
  9 in total
  14 in total

1.  Sharing of grant funds between academic institutions and community partners in community-based participatory research.

Authors:  Katrice D Cain; Jacqueline R Theurer; Ashwini R Sehgal
Journal:  Clin Transl Sci       Date:  2014-03-21       Impact factor: 4.689

2.  Developing Research and Community Literacies to Recruit Latino Researchers and Practitioners to Address Health Disparities.

Authors:  Phillip J Granberry; María Idalí Torres; Jeroan J Allison; Milagros C Rosal; Sarah Rustan; Melissa Colón; Mayara Fontes; Ivettte Cruz
Journal:  J Racial Ethn Health Disparities       Date:  2015-05-08

3.  Building community-engaged health research and discovery infrastructure on the South Side of Chicago: science in service to community priorities.

Authors:  Stacy Tessler Lindau; Jennifer A Makelarski; Marshall H Chin; Shane Desautels; Daniel Johnson; Waldo E Johnson; Doriane Miller; Susan Peters; Connie Robinson; John Schneider; Florence Thicklin; Natalie P Watson; Marcus Wolfe; Eric Whitaker
Journal:  Prev Med       Date:  2011-01-12       Impact factor: 4.018

4.  A community engagement process for families with children with disabilities: lessons in leadership and policy.

Authors:  Claudia María Vargas; Consuelo Arauza; Kim Folsom; María del Rosario Luna; Lucy Gutiérrez; Patricia Ohliger Frerking; Kathleen Shelton; Carl Foreman; David Waffle; Richard Reynolds; Phillip J Cooper
Journal:  Matern Child Health J       Date:  2012-01

5.  Ethics and Community-Based Rehabilitation: Eight Ethical Questions from a Review of the Literature.

Authors:  Stephen Clarke; Jessica Barudin; Matthew Hunt
Journal:  Physiother Can       Date:  2016       Impact factor: 1.037

6.  Faculty beliefs, perceptions, and level of community involvement in their research: a survey at one urban academic institution.

Authors:  Clara Goldberg-Freeman; Nancy Kass; Andrea Gielen; Patricia Tracey; Barbara Bates-Hopkins; Mark Farfel
Journal:  J Empir Res Hum Res Ethics       Date:  2010-12       Impact factor: 1.742

7.  From subject to participant: ethics and the evolving role of community in health research.

Authors:  Elizabeth Bromley; Lisa Mikesell; Felica Jones; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

8.  Achieving health for a lifetime: a community engagement assessment focusing on school-age children to decrease obesity in Durham, North Carolina.

Authors:  Leonor Corsino; Jennifer R McDuffie; Jonathan Kotch; Remy Coeytaux; Bernard F Fuemmeler; Gwen Murphy; Marie Lynn Miranda; Brenda Poirier; Janet Morton; David Reese; Sharon Baker; Heidi Carter; Rebecca Freeman; Colleen Blue; William S Yancy
Journal:  N C Med J       Date:  2013 Jan-Feb

9.  Views of academic and community partners regarding participant protections and research integrity: a pilot focus group study.

Authors:  Emily E Anderson
Journal:  J Empir Res Hum Res Ethics       Date:  2013-02       Impact factor: 1.742

10.  Consent and community engagement in diverse research contexts.

Authors: 
Journal:  J Empir Res Hum Res Ethics       Date:  2013-10       Impact factor: 1.742

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