Literature DB >> 20033762

Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network.

Karen Kuhlthau1, Felice Orlich, Trevor A Hall, Darryn Sikora, Erica A Kovacs, Jennifer Delahaye, Traci E Clemons.   

Abstract

We examined data collected as a part of the Autism Treatment Network, a group of 15 autism centers across the United States and Canada. Mean Health-Related Quality of Life (HRQoL) scores of the 286 children assessed were significantly lower than those of healthy populations (according to published norms). When compared to normative data from children with chronic conditions, children with ASD demonstrated worse HRQoL for total, psychosocial, emotional and social functioning, but did not demonstrate differing scores for physical and school functioning. HRQoL was not consistently related to ASD diagnosis or intellectual ability. However, it was consistently related to internalizing and externalizing problems as well as repetitive behaviors, social responsiveness, and adaptive behaviors. Associations among HRQoL and behavioral characteristics suggest that treatments aimed at improvements in these behaviors may improve HRQoL.

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Year:  2010        PMID: 20033762     DOI: 10.1007/s10803-009-0921-2

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  32 in total

1.  Impaired categorical perception of facial expressions in high-functioning adolescents with autism.

Authors:  J P Teunisse; B de Gelder
Journal:  Child Neuropsychol       Date:  2001-03       Impact factor: 2.500

2.  Risk factors for psychopathology in children with intellectual disability: a prospective longitudinal population-based study.

Authors:  J L Wallander; M C Dekker; H M Koot
Journal:  J Intellect Disabil Res       Date:  2006-04

3.  The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism.

Authors:  C Lord; S Risi; L Lambrecht; E H Cook; B L Leventhal; P C DiLavore; A Pickles; M Rutter
Journal:  J Autism Dev Disord       Date:  2000-06

4.  The perception of four basic emotions in human and nonhuman faces by children with autism and other developmental disabilities.

Authors:  Thomas F Gross
Journal:  J Abnorm Child Psychol       Date:  2004-10

5.  Emotional and behavioral problems in children and adolescents with and without intellectual disability.

Authors:  Marielle C Dekker; Hans M Koot; Jan van der Ende; Frank C Verhulst
Journal:  J Child Psychol Psychiatry       Date:  2002-11       Impact factor: 8.982

6.  Quality of life in youth with Tourette's syndrome and chronic tic disorder.

Authors:  Eric A Storch; Lisa J Merlo; Caleb Lack; Vanessa A Milsom; Gary R Geffken; Wayne K Goodman; Tanya K Murphy
Journal:  J Clin Child Adolesc Psychol       Date:  2007 Apr-Jun

7.  Quality of life in children with psychiatric disorders: self-, parent, and clinician report.

Authors:  Dennis Bastiaansen; Hans M Koot; Robert F Ferdinand; Frank C Verhulst
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2004-02       Impact factor: 8.829

8.  The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity.

Authors:  James W Varni; Tasha M Burwinkle; Michael Seid; Douglas Skarr
Journal:  Ambul Pediatr       Date:  2003 Nov-Dec

9.  Brief report: cognitive processing of own emotions in individuals with autistic spectrum disorder and in their relatives.

Authors:  Elisabeth Hill; Sylvie Berthoz; Uta Frith
Journal:  J Autism Dev Disord       Date:  2004-04

10.  The PedsQL as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder: a population-based study.

Authors:  James W Varni; Tasha M Burwinkle
Journal:  Health Qual Life Outcomes       Date:  2006-04-21       Impact factor: 3.186

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  45 in total

Review 1.  Assessment of quality of life in children and youth with autism spectrum disorder: a critical review.

Authors:  Erika Ikeda; Erica Hinckson; Chris Krägeloh
Journal:  Qual Life Res       Date:  2013-12-06       Impact factor: 4.147

Review 2.  Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications.

Authors:  Nalin Payakachat; J Mick Tilford; Erica Kovacs; Karen Kuhlthau
Journal:  Expert Rev Pharmacoecon Outcomes Res       Date:  2012-08       Impact factor: 2.217

3.  Divergent patterns of social cognition performance in autism and 22q11.2 deletion syndrome (22q11DS).

Authors:  Kathryn L McCabe; Jessica L Melville; Dominique Rich; Paul A Strutt; Gavin Cooper; Carmel M Loughland; Ulrich Schall; Linda E Campbell
Journal:  J Autism Dev Disord       Date:  2013-08

4.  Predicting health utilities for children with autism spectrum disorders.

Authors:  Nalin Payakachat; J Mick Tilford; Karen A Kuhlthau; N Job van Exel; Erica Kovacs; Jayne Bellando; Jeffrey M Pyne; Werner B F Brouwer
Journal:  Autism Res       Date:  2014-09-25       Impact factor: 5.216

5.  Cognitive set shifting deficits and their relationship to repetitive behaviors in autism spectrum disorder.

Authors:  Haylie L Miller; Michael E Ragozzino; Edwin H Cook; John A Sweeney; Matthew W Mosconi
Journal:  J Autism Dev Disord       Date:  2015-03

6.  Medical and Behavioral Correlates of Depression History in Children and Adolescents With Autism Spectrum Disorder.

Authors:  Jessica L Greenlee; Angela S Mosley; Amy M Shui; Jeremy Veenstra-VanderWeele; Katherine O Gotham
Journal:  Pediatrics       Date:  2016-02       Impact factor: 7.124

7.  Practice Recommendations for Addressing Problem Behaviors in Siblings with Autism Spectrum Disorder.

Authors:  Joanna E Lomas Mevers; Nathan A Call; Sarah J Miller
Journal:  Behav Anal Pract       Date:  2017-05-17

8.  Optimal outcome in individuals with a history of autism.

Authors:  Deborah Fein; Marianne Barton; Inge-Marie Eigsti; Elizabeth Kelley; Letitia Naigles; Robert T Schultz; Michael Stevens; Molly Helt; Alyssa Orinstein; Michael Rosenthal; Eva Troyb; Katherine Tyson
Journal:  J Child Psychol Psychiatry       Date:  2013-02       Impact factor: 8.982

9.  Sex differences in parent-reported executive functioning and adaptive behavior in children and young adults with autism spectrum disorder.

Authors:  Emily I White; Gregory L Wallace; Julia Bascom; Anna C Armour; Kelly Register-Brown; Haroon S Popal; Allison B Ratto; Alex Martin; Lauren Kenworthy
Journal:  Autism Res       Date:  2017-06-01       Impact factor: 5.216

10.  Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol.

Authors:  Renske Hoefman; Nalin Payakachat; Job van Exel; Karen Kuhlthau; Erica Kovacs; Jeffrey Pyne; J Mick Tilford
Journal:  J Autism Dev Disord       Date:  2014-08
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