Literature DB >> 24577786

Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol.

Renske Hoefman1, Nalin Payakachat, Job van Exel, Karen Kuhlthau, Erica Kovacs, Jeffrey Pyne, J Mick Tilford.   

Abstract

This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs.

Entities:  

Mesh：

Year:  2014        PMID： 24577786      PMCID： PMC4167350          DOI： 10.1007/s10803-014-2066-1

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  44 in total

1.  Family caregivers' subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence.

Authors:  Signe Andrén; Sölve Elmståhl
Journal:  Scand J Caring Sci       Date:  2005-06

2.  How to include informal care in economic evaluations.

Authors:  Renske J Hoefman; Job van Exel; Werner Brouwer
Journal:  Pharmacoeconomics       Date:  2013-12       Impact factor: 4.981

3.  Caring for and caring about: disentangling the caregiver effect and the family effect.

Authors:  Ana Bobinac; N Job A van Exel; Frans F H Rutten; Werner B F Brouwer
Journal:  J Health Econ       Date:  2010-06-01       Impact factor: 3.883

4.  The impact of child symptom severity on depressed mood among parents of children with ASD: the mediating role of stress proliferation.

Authors:  Paul R Benson
Journal:  J Autism Dev Disord       Date:  2006-07

5.  Relatives of the impaired elderly: correlates of feelings of burden.

Authors:  S H Zarit; K E Reever; J Bach-Peterson
Journal:  Gerontologist       Date:  1980-12

6.  Mothers supporting children with autistic spectrum disorders: social support, mental health status and satisfaction with services.

Authors:  Jo Bromley; Dougal Julian Hare; Kerry Davison; Eric Emerson
Journal:  Autism       Date:  2004-12

7.  Parental perception of sleep problems in children of normal intelligence with pervasive developmental disorders: prevalence, severity, and pattern.

Authors:  Jennifer L Couturier; Kathy N Speechley; Margaret Steele; Ross Norman; Bernadette Stringer; Rob Nicolson
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2005-08       Impact factor: 8.829

8.  What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden.

Authors:  N J A van Exel; W B F Brouwer; B van den Berg; M A Koopmanschap; G A M van den Bos
Journal:  Clin Rehabil       Date:  2004-09       Impact factor: 3.477

9.  Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders.

Authors:  Lisa A Osborne; Louise McHugh; Jo Saunders; Phil Reed
Journal:  J Autism Dev Disord       Date:  2007-11-20

10.  A new test of the construct validity of the CarerQol instrument: measuring the impact of informal care giving.

Authors:  Renske J Hoefman; N Job A van Exel; Sandra Looren de Jong; W Ken Redekop; Werner B F Brouwer
Journal:  Qual Life Res       Date:  2011-01-01       Impact factor: 4.147
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  34 in total

1.  Practice Patterns for Early Screening and Evaluation for Autism Spectrum Disorder Diagnosis in Bulgaria.

Authors:  Georgi Iskrov; Georgi Vasilev; Martin Mitev; Ralitsa Nikolova; Mariya Stoykova; Rumen Stefanov
Journal:  J Autism Dev Disord       Date:  2021-03

2.  Spillover Effects on Caregivers' and Family Members' Utility: A Systematic Review of the Literature.

Authors:  Eve Wittenberg; Lyndon P James; Lisa A Prosser
Journal:  Pharmacoeconomics       Date:  2019-04       Impact factor: 4.981

Review 3.  Family therapy for autism spectrum disorders.

Authors:  Debbie Spain; Jacqueline Sin; Eleni Paliokosta; Marie Furuta; Jonathan E Prunty; Trudie Chalder; Declan G Murphy; Francesca G Happé
Journal:  Cochrane Database Syst Rev       Date:  2017-05-16

4.  Burden and happiness in head and neck cancer carers: the role of supportive care needs.

Authors:  Paul Hanly; Rebecca Maguire; Myles Balfe; Philip Hyland; Aileen Timmons; Eleanor O'Sullivan; Phyllis Butow; Linda Sharp
Journal:  Support Care Cancer       Date:  2016-05-16       Impact factor: 3.603

5.  Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors.

Authors:  Émilie Cappe; Nathalie Poirier; Carol Sankey; Andréa Belzil; Carmen Dionne
Journal:  Qual Life Res       Date:  2017-12-04       Impact factor: 4.147

6.  Assessment of Caregiver Inventory for Rett Syndrome.

Authors:  Jane B Lane; Amber R Salter; Nancy E Jones; Gary Cutter; Joseph Horrigan; Steve A Skinner; Walter E Kaufmann; Daniel G Glaze; Jeffrey L Neul; Alan K Percy
Journal:  J Autism Dev Disord       Date:  2017-04

7.  Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis.

Authors:  Mark Rodgers; David Marshall; Mark Simmonds; Ann Le Couteur; Mousumi Biswas; Kath Wright; Dheeraj Rai; Stephen Palmer; Lesley Stewart; Robert Hodgson
Journal:  Health Technol Assess       Date:  2020-07       Impact factor: 4.014

8.  Care-related quality of life in caregivers of children with drug-resistant epilepsy.

Authors:  Puneet Jain; Jhananiee Subendran; Mary Lou Smith; Elysa Widjaja
Journal:  J Neurol       Date:  2018-07-20       Impact factor: 4.849

9.  Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders.

Authors:  Leslie A Markowitz; Charina Reyes; Rebecca A Embacher; Leslie L Speer; Nancy Roizen; Thomas W Frazier
Journal:  Autism       Date:  2015-12-10

10.  Homicide Incidents Involving Children with Autism Spectrum Disorder as Victims Reported in the US News Media, 2000-2019.

Authors:  Joseph Guan; Ashley Blanchard; Carolyn G DiGuiseppi; Stanford Chihuri; Guohua Li
Journal:  J Autism Dev Disord       Date:  2021-05-13
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