Literature DB >> 19843971

Protecting respondent confidentiality in qualitative research.

Karen Kaiser1.   

Abstract

For qualitative researchers, maintaining respondent confidentiality while presenting rich, detailed accounts of social life presents unique challenges. These challenges are not adequately addressed in the literature on research ethics and research methods. Using an example from a study of breast cancer survivors, I argue that by carefully considering the audience for one's research and by reenvisioning the informed consent process, qualitative researchers can avoid confidentiality dilemmas that might otherwise lead them not to report rich, detailed data.

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Year:  2009        PMID: 19843971      PMCID: PMC2805454          DOI: 10.1177/1049732309350879

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  15 in total

1.  Ethical considerations in qualitative research with vulnerable groups: exploring lesbians' and gay men's experiences of health care--a personal perspective.

Authors:  T James; H Platzer
Journal:  Nurs Ethics       Date:  1999-01       Impact factor: 2.874

2.  Ethics and ethnography: an experiential account.

Authors:  Dawn Goodwin; Catherine Pope; Maggie Mort; Andrew Smith
Journal:  Qual Health Res       Date:  2003-04

3.  Confidentiality and autonomy: the challenge(s) of offering research participants a choice of disclosing their identity.

Authors:  James Giordano; Michelle O'Reilly; Helen Taylor; Nisha Dogra
Journal:  Qual Health Res       Date:  2007-02

4.  Power relations in qualitative research.

Authors:  Orit Karnieli-Miller; Roni Strier; Liat Pessach
Journal:  Qual Health Res       Date:  2009-02

5.  Replacing personally-identifying information in medical records, the Scrub system.

Authors:  L Sweeney
Journal:  Proc AMIA Annu Fall Symp       Date:  1996

6.  Gaining and maintaining consent: ethical concerns raised in a study of dying patients.

Authors:  J Lawton
Journal:  Qual Health Res       Date:  2001-09

7.  Research with bereaved parents: a question of how not why.

Authors:  J L Hynson; R Aroni; C Bauld; S M Sawyer
Journal:  Palliat Med       Date:  2006-12       Impact factor: 4.762

8.  Benefits of participating in internet interviews: women helping women.

Authors:  Cheryl Tatano Beck
Journal:  Qual Health Res       Date:  2005-03

9.  The narrative correspondence method: what a follow-up study can tell us about the longer term effect on participants in emotionally demanding research.

Authors:  Anne Grinyer
Journal:  Qual Health Res       Date:  2004-12

10.  Bereaved parents' experience of research participation.

Authors:  Kari Dyregrov
Journal:  Soc Sci Med       Date:  2004-01       Impact factor: 4.634

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  40 in total

1.  Online health community experiences of sexual minority women with cancer.

Authors:  Young Ji Lee; Charles Kamen; Liz Margolies; Ulrike Boehmer
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

2.  Trajectories of Well-Being Among Latina Adolescents Who Attempt Suicide: A Longitudinal Qualitative Analysis.

Authors:  Lauren E Gulbas; Samantha Guz; Carolina Hausmann-Stabile; Hannah S Szlyk; Luis H Zayas
Journal:  Qual Health Res       Date:  2019-03-28

3.  Informants a potential threat to confidentiality in small studies.

Authors:  Gert Helgesson
Journal:  Med Health Care Philos       Date:  2015-02

4.  Educator of the Court: The Role of the Expert Witness in Cases Involving Autism Spectrum Disorder.

Authors:  Colleen M Berryessa
Journal:  Psychol Crime Law       Date:  2017-01-18

5.  Intergenerational Trauma and Its Relationship to Mental Health Care: A Qualitative Inquiry.

Authors:  Sophie Isobel; Andrea McCloughen; Melinda Goodyear; Kim Foster
Journal:  Community Ment Health J       Date:  2020-08-17

6.  Implementing "insider" ethnography: lessons from the Public Conversations about HIV/AIDS project in rural South Africa.

Authors:  Nicole Angotti; Christie Sennott
Journal:  Qual Res       Date:  2014-07-23

7.  A Narrative Analysis Examining Influential Factors of a Minority Research and Training Program.

Authors:  S Burton Gretchen; H Vicente Maria da Graça
Journal:  J Vocat Behav       Date:  2018-11-22

8.  "Who's Really Regulating? Who's Benefiting?" Exploring Black Stakeholders' Awareness and Trust in the Food and Drug Administration's Role as a Tobacco Regulator.

Authors:  Sabrina L Smiley; Kacie C A Blackman; Ricky N Bluthenthal; Yaneth L Rodriguez; Rosa Barahona; Steve Sussman; Mary Ann Pentz; Jonathan M Samet; Lourdes Baezconde-Garbanati
Journal:  Tob Regul Sci       Date:  2018-07

9.  Experiences and perspectives of chiropractic students graduating from an alternate admission track plan.

Authors:  Norman B Strutin; Suzanne L Ray; David Straub; Donna Odierna; Monica Smith
Journal:  J Chiropr Educ       Date:  2022-03-01

10.  A comparative assessment of two tools designed to support patient safety culture in UK general practice.

Authors:  Ian Litchfield; Kate Marsden; Lucy Doos; Katherine Perryman; Anthony Avery; Sheila Greenfield
Journal:  BMC Fam Pract       Date:  2021-05-21       Impact factor: 2.497

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