Literature DB >> 24916660

Informants a potential threat to confidentiality in small studies.

Gert Helgesson1.   

Abstract

Providing proper protection of confidentiality, by preventing personal data from falling into the hands of third parties, is one of the core responsibilities of researchers towards research participants. However, even if researchers do their best in this regard, it does not guarantee that breaches of confidentiality will be avoided. This paper addresses the case of small qualitative studies, arguing that researchers cannot guarantee their informants' confidentiality, since that confidentiality may be compromised by actions taken by the informants themselves. In order to reduce the risk of this specific threat to confidentiality, additional precautions need to be taken. Some potential solutions to the problem are suggested and discussed.

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Year:  2015        PMID: 24916660     DOI: 10.1007/s11019-014-9579-4

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  10 in total

1.  What makes clinical research ethical?

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3.  Potential harms, anonymization, and the right to withdraw consent to biobank research.

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4.  Protecting respondent confidentiality in qualitative research.

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5.  Research ethics. The complexities of genomic identifiability.

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6.  Protecting confidentiality in human research.

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7.  Protecting Privacy and Confidentiality in Environmental Health Research.

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8.  Participant identification in genetic association studies: improved methods and practical implications.

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9.  World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.

Authors: 
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10.  Caught you: threats to confidentiality due to the public release of large-scale genetic data sets.

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  10 in total

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