Literature DB >> 17220396

Confidentiality and autonomy: the challenge(s) of offering research participants a choice of disclosing their identity.

James Giordano1, Michelle O'Reilly, Helen Taylor, Nisha Dogra.   

Abstract

In this article, the authors present one of the key ethical features of research: confidentiality as maintained by nondis-closure of participants' identities. In light of (a) the contingency that certain participants might vest interest in research studies through their identity and (b) the concept of respect for participants' autonomy, the authors consider the possibilities of offering research participants the choice of nonconfidentiality, afforded as an autonomous (negative) right of refusal of nondisclosure of identity. They address the issue that this possibility generates within the context(s) of current codes of ethics related to health research and the manifest responsibilities of the institutional review process. In this way, they attempt to elucidate potential benefits and consequences that arise from confidentiality and nonconfidentiality.

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Mesh:

Year:  2007        PMID: 17220396     DOI: 10.1177/1049732306297884

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  6 in total

1.  Protecting respondent confidentiality in qualitative research.

Authors:  Karen Kaiser
Journal:  Qual Health Res       Date:  2009-11

2.  Photography and Social Media Use in Community-Based Participatory Research with Youth: Ethical Considerations.

Authors:  Maryam Kia-Keating; Diana Santacrose; Sabrina Liu
Journal:  Am J Community Psychol       Date:  2017-09-25

Review 3.  Considerations for employing intersectionality in qualitative health research.

Authors:  Jasmine A Abrams; Ariella Tabaac; Sarah Jung; Nicole M Else-Quest
Journal:  Soc Sci Med       Date:  2020-06-16       Impact factor: 4.634

4.  Protocol and Researcher's Relationship with Institutional Review Board.

Authors:  A E Orimadegun
Journal:  Afr J Biomed Res       Date:  2020-12

5.  From Offline to Online: Understanding Chinese Single Mothers' Uncertainty Management in Interpersonal and Online Contexts.

Authors:  Kai Kuang; Xiaoman Zhao; Iccha Basnyat; Tianping He
Journal:  Front Psychol       Date:  2022-05-06

6.  Anonymising interview data: challenges and compromise in practice.

Authors:  Benjamin Saunders; Jenny Kitzinger; Celia Kitzinger
Journal:  Qual Res       Date:  2015-10
  6 in total

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