Literature DB >> 19752639

Barriers to the use of genetic testing: a study of racial and ethnic disparities.

Sandra Suther1, Gebre-Egziabher Kiros.   

Abstract

PURPOSE: Racial and ethnic disparities in health are evident among a range of diseases and health care services. New genetic technologies are likely to increase these disparities as access to expensive genetic tests further widens the gap.
METHODS: Our analysis used data from a national representative sample collected in 2000. The total sample size for our analysis was 1724 men and women (consisting of 946 non-Hispanic whites, 392 Latinos, and 386 blacks) aged 18 to 91 years. Ordered logistic regression and binary logistic regression analysis were applied to investigate differences by race/ethnicity.
RESULTS: Results showed significant differences by racial/ethnic groups in knowledge and concerns about the potential misuse of genetic testing. A significant difference was also found between the types of health insurance coverage by race/ethnicity as well as significantly higher levels of mistrust in a physician and the medical system.
CONCLUSION: Our findings raise concern about several barriers among minorities and calls for a development of educational and communication strategies that facilitate in narrowing the gap between racial and ethnic groups.

Entities:  

Mesh:

Year:  2009        PMID: 19752639     DOI: 10.1097/GIM.0b013e3181ab22aa

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  83 in total

1.  Evaluation findings from genetics and family health history community-based workshops for African Americans.

Authors:  Jo-Anne Manswell Butty; Finie Richardson; Charles P Mouton; Charmaine D M Royal; Rodney D Green; Kerry-Ann Munroe
Journal:  J Community Genet       Date:  2011-11-05

2.  Access to genetic testing and genetic counseling in vulnerable populations: the d/Deaf and hard of hearing population.

Authors:  Sandra Cooke-Hubley; Victor Maddalena
Journal:  J Community Genet       Date:  2011-05-01

3.  Racial and ethnic differences in direct-to-consumer genetic tests awareness in HINTS 2007: sociodemographic and numeracy correlates.

Authors:  Aisha T Langford; Ken Resnicow; J Scott Roberts; Brian J Zikmund-Fisher
Journal:  J Genet Couns       Date:  2012-01-21       Impact factor: 2.537

4.  Perception of direct-to-consumer genetic testing and direct-to-consumer advertising of genetic tests among members of a large managed care organization.

Authors:  Alanna Kulchak Rahm; Heather Spencer Feigelson; Nicole Wagner; Anh Quynh Le; Eve Halterman; Nadine Cornish; James W Dearing
Journal:  J Genet Couns       Date:  2012-01-26       Impact factor: 2.537

Review 5.  Ethical conundrums in pediatric genomics.

Authors:  Seth J Rotz; Eric Kodish
Journal:  Hematology Am Soc Hematol Educ Program       Date:  2018-11-30

6.  Using Public-Private Partnerships to Mitigate Disparities in Access to Genetic Services: Lessons from Wisconsin.

Authors:  Laura Senier; Matthew Kearney; Jason Orne
Journal:  Adv Med Sociol       Date:  2015

7.  Perspective: The Clinical Use of Polygenic Risk Scores: Race, Ethnicity, and Health Disparities.

Authors:  Megan C Roberts; Muin J Khoury; George A Mensah
Journal:  Ethn Dis       Date:  2019-07-18       Impact factor: 1.847

8.  Leveraging Implementation Science to Address Health Disparities in Genomic Medicine: Examples from the Field.

Authors:  Megan C Roberts; George A Mensah; Muin J Khoury
Journal:  Ethn Dis       Date:  2019-02-21       Impact factor: 1.847

9.  Attitudes of African Americans toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Holly K Tabor; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2013-05       Impact factor: 2.802

10.  Regional differences in awareness and attitudes regarding genetic testing for disease risk and ancestry.

Authors:  Charles R Jonassaint; Eunice R Santos; Crystal M Glover; Perry W Payne; Grace-Ann Fasaye; Nefertiti Oji-Njideka; Stanley Hooker; Wenndy Hernandez; Morris W Foster; Rick A Kittles; Charmaine D Royal
Journal:  Hum Genet       Date:  2010-06-13       Impact factor: 4.132

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