Literature DB >> 19697111

Challenges faced by genetics service providers' practicing in a culturally and linguistically diverse population: an Australian experience.

Mona Saleh1, Kristine Barlow-Stewart, Bettina Meiser, Ian Muchamore.   

Abstract

This paper explores the perceived challenges facing clinical genetics practitioners in multicultural Australia. Focus groups conducted with 53 practitioners explored: 1) participants' experiences and definitions of cultural diversity; 2) their use of educational resources with clients; 3) their experiences with culturally diverse groups/individuals in practice; 4) their experiences working with interpreters; and 5) the impact culturally specific educational training and/or experiential learning had on their confidence or practice when dealing with culturally diverse clients. Participants viewed culture as extending beyond traditional definitions such as ethnicity, language and religion. Most respondents had experienced positive results working with health care interpreters, although at times, this was a challenge for the family as they preferred privacy and the use of family members as interpreters. Another commonly reported challenge was the limited availability of reliable, culturally appropriate translated resources. Some participants expressed concern that learning theories about specific cultures may lead to stereotypes and that opportunities for formal cultural competence training were limited. Recommendations for practice include the targeting of educational resources to meet the needs of a diverse community and placing cultural competence on the agenda for ongoing training and maintenance of professional standards for clinical genetics practitioners to avoid the current ad hoc approach.

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Year:  2009        PMID: 19697111     DOI: 10.1007/s10897-009-9234-z

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  29 in total

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Authors:  C Pope; S Ziebland; N Mays
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Authors:  C H Browner; H Mabel Preloran; Maria Christina Casado; Harold N Bass; Ann P Walker
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3.  Health literacy: a policy challenge for advancing high-quality health care.

Authors:  Ruth M Parker; Scott C Ratzan; Nicole Lurie
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4.  Transcultural genetic counselling in the UK.

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Journal:  Community Genet       Date:  2002

5.  The focus group as a tool for health research: issues in design and analysis.

Authors:  D E Bender; D Ewbank
Journal:  Health Transit Rev       Date:  1994-04

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7.  Cultural variation in values attached to informed choice in the context of prenatal diagnosis.

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8.  Eliminating language barriers for non-English-speaking patients.

Authors:  J C Hornberger; C D Gibson; W Wood; C Dequeldre; I Corso; B Palla; D A Bloch
Journal:  Med Care       Date:  1996-08       Impact factor: 2.983

9.  Race and ethnicity in the genome era: the complexity of the constructs.

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Journal:  Am Psychol       Date:  2005-01

Review 10.  Do professional interpreters improve clinical care for patients with limited English proficiency? A systematic review of the literature.

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Journal:  Health Serv Res       Date:  2007-04       Impact factor: 3.402

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  7 in total

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Journal:  J Genet Couns       Date:  2014-08-15       Impact factor: 2.537

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3.  An exploration of the cultural context of kinship and genetics amongst Arabic-Australians: implications for practice.

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4.  Understanding genomic health information: how to meet the needs of the culturally and linguistically diverse community-a mixed methods study.

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5.  What hinders minority ethnic access to cancer genetics services and what may help?

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Journal:  Eur J Hum Genet       Date:  2013-11-20       Impact factor: 4.246

6.  Identifying and Addressing Genetic Counseling Challenges among Indigenous People of Oaxaca-One Center's Experience with Two Immigrant Farmworker Families in the Central Valley of California.

Authors:  Joseph J Shen; Jason Carmichael; Leoncio Vásquez Santos
Journal:  J Genet Couns       Date:  2018-02-03       Impact factor: 2.537

Review 7.  Equity across the cancer care continuum for culturally and linguistically diverse migrants living in Australia: a scoping review.

Authors:  Brighid Scanlon; Mark Brough; David Wyld; Jo Durham
Journal:  Global Health       Date:  2021-07-28       Impact factor: 4.185

  7 in total

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