Literature DB >> 18255366

Cultural variation in values attached to informed choice in the context of prenatal diagnosis.

Ananda van den Heuvel1, Theresa M Marteau.   

Abstract

One of the ethical implications of the widespread introduction of non-invasive prenatal diagnosis (NIPD) is that it might undermine the making of informed choices. There is an almost universal agreement among health professionals and policy makers that prenatal testing decisions should reflect informed choices. It is, however, unclear the extent to which this is a universally held value. We present evidence to suggest that although informed choice is highly valued in Western, individualistically orientated countries, it is less highly valued in non-Western, more collectivist countries. This raises questions as to whether it is beneficial - and indeed appropriate - to recommend facilitating informed choices in countries where this is not a dominant value.

Mesh:

Year:  2008        PMID: 18255366     DOI: 10.1016/j.siny.2007.12.010

Source DB:  PubMed          Journal:  Semin Fetal Neonatal Med        ISSN: 1744-165X            Impact factor:   3.926


  6 in total

1.  Unintended Pregnancy in the Native Hawaiian Community: Key Informants' Perspectives.

Authors:  Reni Soon; Jennifer Elia; Nina Beckwith; Bliss Kaneshiro; Timothy Dye
Journal:  Perspect Sex Reprod Health       Date:  2015-12

2.  Cell-free fetal DNA and non-invasive prenatal diagnosis.

Authors:  Imran Rafi; Lyn Chitty
Journal:  Br J Gen Pract       Date:  2009-05       Impact factor: 5.386

3.  Is advice incompatible with autonomous informed choice? Women's perceptions of advice in the context of antenatal screening: a qualitative study.

Authors:  Shenaz Ahmed; Louise D Bryant; Zahra Tizro; Darren Shickle
Journal:  Health Expect       Date:  2012-04-19       Impact factor: 3.377

4.  Challenges faced by genetics service providers' practicing in a culturally and linguistically diverse population: an Australian experience.

Authors:  Mona Saleh; Kristine Barlow-Stewart; Bettina Meiser; Ian Muchamore
Journal:  J Genet Couns       Date:  2009-08-21       Impact factor: 2.537

Review 5.  Decision-making factors in prenatal testing: A systematic review.

Authors:  Valentina Di Mattei; Federica Ferrari; Gaia Perego; Valentina Tobia; Fabio Mauro; Massimo Candiani
Journal:  Health Psychol Open       Date:  2021-01-13

6.  Social and cultural influences on genetic screening programme acceptability: A mixed-methods study of the views of adults, carriers, and family members living with thalassemia in the UK.

Authors:  Felicity K Boardman; Corinna Clark; Elsita Jungkurth; Philip J Young
Journal:  J Genet Couns       Date:  2020-03-01       Impact factor: 2.717

  6 in total

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