Literature DB >> 19642761

Qualitative approaches in craniofacial research.

Pauline A Nelson1.   

Abstract

This article proposes the customary use of qualitative methods as complementary research tools to enhance the evidence base in the craniofacial field. The recognition given to qualitative approaches in other healthcare areas and their value in enhancing understanding of lay and professional beliefs and behaviors is contrasted with the paucity of qualitative studies to date in the craniofacial field. Research tools from the qualitative repertoire are briefly introduced and their underpinning principles are explained. The contribution made to research with children and families in wider healthcare areas and in the craniofacial field to date is outlined. Future potential applications of these methods to craniofacial research are discussed. It is suggested that qualitative methods be integrated into craniofacial research as part of the standard toolbox of inquiry, and that interdisciplinary collaborations with colleagues from the social sciences appropriately skilled in the methods should be developed.

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Year:  2008        PMID: 19642761     DOI: 10.1597/08-121.1

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  9 in total

1.  Nasoalveolar molding: prevalence of cleft centers offering NAM and who seeks it.

Authors:  Lacey Sischo; Jenny W Chan; Margot Stein; Christie Smith; John van Aalst; Hillary L Broder
Journal:  Cleft Palate Craniofac J       Date:  2011-07-08

2.  Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.

Authors:  Daniela V Luquetti; Michelle R Brajcich; Nicola M Stock; Carrie L Heike; Alexis L Johns
Journal:  Int J Pediatr Otorhinolaryngol       Date:  2018-02-07       Impact factor: 1.675

3.  In Their Own Words: Caregiver and Patient Perspectives on Stressors, Resources, and Recommendations in Craniofacial Microsomia Care.

Authors:  Alexis L Johns; Daniela V Luquetti; Michelle R Brajcich; Carrie L Heike; Nicola M Stock
Journal:  J Craniofac Surg       Date:  2018-11       Impact factor: 1.046

4.  Coping With Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding.

Authors:  Lacey Sischo; Hillary L Broder; Ceib Phillips
Journal:  Cleft Palate Craniofac J       Date:  2014-09-16

5.  "When the surgery was over, I felt like the worst part had passed": experiences of parents of children with craniosynostosis.

Authors:  Anna S Zerpe; Daniel Nowinski; Mia Ramklint; Caisa Öster
Journal:  J Spec Pediatr Nurs       Date:  2022-03-09       Impact factor: 1.309

6.  Minimally important difference of the Child Oral Health Impact Profile for children with orofacial anomalies.

Authors:  Ryan Richard Ruff; Lacey Sischo; Hillary L Broder
Journal:  Health Qual Life Outcomes       Date:  2016-10-03       Impact factor: 3.186

Review 7.  Living with a rare disorder: a systematic review of the qualitative literature.

Authors:  Charlotte von der Lippe; Plata S Diesen; Kristin B Feragen
Journal:  Mol Genet Genomic Med       Date:  2017-07-23       Impact factor: 2.183

8.  "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference.

Authors:  Kristin J Billaud Feragen; Anita Myhre; Nicola Marie Stock
Journal:  Qual Health Res       Date:  2021-10-01

9.  'I treat it but I don't know what this disease is': a qualitative study on noma (cancrum oris) and traditional healing in northwest Nigeria.

Authors:  Elise Farley; Hussaina Muhammad Bala; Annick Lenglet; Ushma Mehta; Nura Abubakar; Joseph Samuel; Annette de Jong; Karla Bil; Bukola Oluyide; Adolphe Fotso; Beverley Stringer; Julita Gil Cuesta; Emilie Venables
Journal:  Int Health       Date:  2020-01-01       Impact factor: 2.473

  9 in total

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