Literature DB >> 19392833

Health researchers' attitudes towards public involvement in health research.

Jill Thompson1, Rosemary Barber, Paul R Ward, Jonathan D Boote, Cindy L Cooper, Christopher J Armitage, Georgina Jones.   

Abstract

OBJECTIVE: To investigate health researchers' attitudes to involving the public in research.
BACKGROUND: Public involvement in research is encouraged by the Department of Health in the UK. Despite this, the number of health researchers actively involving the public in research appears to be limited. There is little research specifically addressing the attitudes of health researchers towards involving the public: how they interpret the policy, what motivates and de-motivates them and what their experiences have been to date.
DESIGN: A qualitative research design, using semi-structured telephone interviews. SETTING AND PARTICIPANTS: Fifteen purposively sampled UK-based University health researchers were the participants. Interviews were conducted over the telephone.
FINDINGS: The participants suggested varying constructions of public involvement in research. Arguments based on moral and political principles and consequentialist arguments for involving the public in research were offered and most participants highlighted the potential benefits of involving the public. However, feelings of apprehension expressed by some participants imply that a number of researchers may still be uncomfortable with involving the public, as it presents a different way of working.

Entities:  

Mesh:

Year:  2009        PMID: 19392833      PMCID: PMC5060486          DOI: 10.1111/j.1369-7625.2009.00532.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  23 in total

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2.  From schism to continuum? The problematic relationship between expert and lay knowledge--an exploratory conceptual synthesis of two qualitative studies.

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3.  Medical specialists' accounts of the impact of the Internet on the doctor/patient relationship.

Authors:  Alex Broom
Journal:  Health (London)       Date:  2005-07

Review 4.  Belief, knowledge and expertise: the emergence of the lay expert in medical sociology.

Authors:  Lindsay Prior
Journal:  Sociol Health Illn       Date:  2003

5.  'Ordinary people only': knowledge, representativeness, and the publics of public participation in healthcare.

Authors:  Graham P Martin
Journal:  Sociol Health Illn       Date:  2008-01

6.  The experiential knowledge of patients: a new resource for biomedical research?

Authors:  J Francisca Caron-Flinterman; Jacqueline E W Broerse; Joske F G Bunders
Journal:  Soc Sci Med       Date:  2004-12-21       Impact factor: 4.634

Review 7.  Lay perspectives: advantages for health research.

Authors:  V A Entwistle; M J Renfrew; S Yearley; J Forrester; T Lamont
Journal:  BMJ       Date:  1998-02-07

8.  Reflections on health care consumerism: insights from feminism.

Authors:  Charlotte Williamson
Journal:  Health Expect       Date:  1999-09       Impact factor: 3.377

9.  Involving consumers successfully in NHS research: a national survey.

Authors:  Rosemary Barber; Jonathan D Boote; Cindy L Cooper
Journal:  Health Expect       Date:  2007-12       Impact factor: 3.377

10.  'Take small steps to go a long way' consumer involvement in research into complementary and alternative therapies.

Authors:  Charlotte Paterson
Journal:  Complement Ther Nurs Midwifery       Date:  2004-08
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  76 in total

1.  'But is it a question worth asking?' A reflective case study describing how public involvement can lead to researchers' ideas being abandoned.

Authors:  Jonathan D Boote; Mary Dalgleish; Janet Freeman; Zena Jones; Marianne Miles; Helen Rodgers
Journal:  Health Expect       Date:  2012-05-31       Impact factor: 3.377

2.  Research advisory board members' contributions and expectations in the USA.

Authors:  R M Pinto; Anya Y Spector; R Rahman; J D Gastolomendo
Journal:  Health Promot Int       Date:  2013-06-12       Impact factor: 2.483

3.  Can the impact of public involvement on research be evaluated? A mixed methods study.

Authors:  Rosemary Barber; Jonathan D Boote; Glenys D Parry; Cindy L Cooper; Philippa Yeeles; Sarah Cook
Journal:  Health Expect       Date:  2011-02-17       Impact factor: 3.377

Review 4.  'Talking the talk or walking the walk?' A bibliometric review of the literature on public involvement in health research published between 1995 and 2009.

Authors:  Jonathan Boote; Ruth Wong; Andrew Booth
Journal:  Health Expect       Date:  2012-10-04       Impact factor: 3.377

5.  Citizen expectations of 'academic entrepreneurship' in health research: public science, practical benefit.

Authors:  Fiona A Miller; Michael Painter-Main; Renata Axler; Pascale Lehoux; Mita Giacomini; Barbara Slater
Journal:  Health Expect       Date:  2014-05-14       Impact factor: 3.377

6.  Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives.

Authors:  Janneke E Elberse; J Francisca Caron-Flinterman; Jacqueline E W Broerse
Journal:  Health Expect       Date:  2010-12-22       Impact factor: 3.377

Review 7.  Patients' and clinicians' research priorities.

Authors:  Ruth J Stewart; Jenny Caird; Kathryn Oliver; Sandy Oliver
Journal:  Health Expect       Date:  2010-12-22       Impact factor: 3.377

8.  A Critical Discussion of Patient Engagement in Research.

Authors:  Andrea Elaine Bombak; Heather M Hanson
Journal:  J Patient Cent Res Rev       Date:  2017-01-31

9.  Status, challenges and facilitators of consumer involvement in Australian health and medical research.

Authors:  Carla Saunders; Afaf Girgis
Journal:  Health Res Policy Syst       Date:  2010-11-18

10.  Obesity prevalence in Nepal: public health challenges in a low-income nation during an alarming worldwide trend.

Authors:  Abhinav Vaidya; Suraj Shakya; Alexandra Krettek
Journal:  Int J Environ Res Public Health       Date:  2010-06-23       Impact factor: 3.390

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