Literature DB >> 31413969

A Critical Discussion of Patient Engagement in Research.

Andrea Elaine Bombak1, Heather M Hanson2,3.   

Abstract

Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients' viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve these aims. Presently, there may be issues of valuing only certain epistemologies, failing to evaluate existing programs and their impacts, marginalizing less "engaged" patients, and promoting only tokenism. These are areas that require exploration and reflection before assuming that patient engagement approaches are sufficient or the only means of incorporating patient perspectives into research.

Entities:  

Keywords:  patient activations; patient engagement; patient-centered outcomes research; public involvement

Year:  2017        PMID: 31413969      PMCID: PMC6664365          DOI: 10.17294/2330-0698.1273

Source DB:  PubMed          Journal:  J Patient Cent Res Rev        ISSN: 2330-068X


  8 in total

1.  Building capacity for service user and carer involvement in research: the implications and impact of best research for best health.

Authors:  Virginia Minogue; John Girdlestone
Journal:  Int J Health Care Qual Assur       Date:  2010

Review 2.  Patients' perceptions of sharing in decisions: a systematic review of interventions to enhance shared decision making in routine clinical practice.

Authors:  France Légaré; Stéphane Turcotte; Dawn Stacey; Stéphane Ratté; Jennifer Kryworuchko; Ian D Graham
Journal:  Patient       Date:  2012       Impact factor: 3.883

Review 3.  The impact of patient and public involvement on UK NHS health care: a systematic review.

Authors:  Carole Mockford; Sophie Staniszewska; Frances Griffiths; Sandra Herron-Marx
Journal:  Int J Qual Health Care       Date:  2011-11-22       Impact factor: 2.038

Review 4.  Patients' and clinicians' research priorities.

Authors:  Ruth J Stewart; Jenny Caird; Kathryn Oliver; Sandy Oliver
Journal:  Health Expect       Date:  2010-12-22       Impact factor: 3.377

Review 5.  Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material.

Authors:  E S Nilsen; H T Myrhaug; M Johansen; S Oliver; A D Oxman
Journal:  Cochrane Database Syst Rev       Date:  2006-07-19

6.  Health researchers' attitudes towards public involvement in health research.

Authors:  Jill Thompson; Rosemary Barber; Paul R Ward; Jonathan D Boote; Cindy L Cooper; Christopher J Armitage; Georgina Jones
Journal:  Health Expect       Date:  2009-04-22       Impact factor: 3.377

7.  Developing patient-centred care: an ethnographic study of patient perceptions and influence on quality improvement.

Authors:  Alicia Renedo; Cicely Marston
Journal:  BMC Health Serv Res       Date:  2015-04-23       Impact factor: 2.655

Review 8.  Patient engagement in research: a systematic review.

Authors:  Juan Pablo Domecq; Gabriela Prutsky; Tarig Elraiyah; Zhen Wang; Mohammed Nabhan; Nathan Shippee; Juan Pablo Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia Erwin; David Eton; Jeff Sloan; Victor Montori; Noor Asi; Abd Moain Abu Dabrh; Mohammad Hassan Murad
Journal:  BMC Health Serv Res       Date:  2014-02-26       Impact factor: 2.655

  8 in total
  6 in total

1.  Real World Survey of Patient Engagement Status in Clinical Research: The First Input from Japan.

Authors:  Nanae Tanemura; Tsuyoshi Sasaki; Junko Sato; Hisashi Urushihara
Journal:  Patient       Date:  2020-10       Impact factor: 3.883

2.  Every Story Is Different: Experiences With Body Changes Related to Cancer.

Authors:  Linda Cole; Julie Easley; Leslie Grightmire; Ellil Mathiyan Lakshmanan; Sharon J Matthias; Karen McBoyle; Emily Piercell; Amelia Purdy; Nancy Schneider; Richard J Wassersug; Rosemary Martino; Margaret I Fitch
Journal:  Front Psychol       Date:  2022-05-23

3.  Patients as research partners; how to value their perceptions, contribution and labor?

Authors:  Elise Smith; Jean-Chrisophe Bélisle-Pipon; David Resnik
Journal:  Citiz Sci       Date:  2019-03-08

4.  Validating online approaches for rare disease research using latent class mixture modeling.

Authors:  Andrew A Dwyer; Ziwei Zeng; Christopher S Lee
Journal:  Orphanet J Rare Dis       Date:  2021-05-10       Impact factor: 4.123

5.  Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study.

Authors:  Alice M Biggane; Bridget Young; Paula R Williamson; Erin Whittingham; Jessie Cooper
Journal:  BMC Health Serv Res       Date:  2022-03-18       Impact factor: 2.655

6.  PPI in research: a reflection from early stage researchers.

Authors:  Alice M Biggane; Maria Olsen; Paula R Williamson
Journal:  Res Involv Engagem       Date:  2019-11-19
  6 in total

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