Literature DB >> 18254832

'Ordinary people only': knowledge, representativeness, and the publics of public participation in healthcare.

Graham P Martin1.   

Abstract

Public involvement in healthcare is a prominent policy in countries across the economically developed world. A growing body of academic literature has focused on public participation, often presenting dichotomies between good and bad practice: between initiatives that offer empowerment and those constrained by consumerism, or between those which rely for recruitment on self-selecting members of the public, and those including a more broad-based, statistically representative group. In this paper I discuss the apparent tensions between differing rationales for participation, relating recent discussions about the nature of representation in public involvement to parallel writings about the contribution of laypeople's expertise and experience. In the academic literature, there is, I suggest, a thin line between democratic justifications for involvement, suggesting a representative role for involved publics, and technocratic ideas about the potential 'expert' contributions of particular subgroups of the public. Analysing recent policy documents on participation in healthcare in England, I seek moreover to show how contemporary policy transcends both categories, demanding complex roles of involved publics which invoke various qualities seen as important in governing the interface between state and society. I relate this to social-theoretical perspectives on the relationship between governmental authority and citizens in late-modern society.

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Mesh:

Year:  2008        PMID: 18254832     DOI: 10.1111/j.1467-9566.2007.01027.x

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  66 in total

1.  Mutual powerlessness in client participation practices in mental health care.

Authors:  Tineke Broer; Anna P Nieboer; Roland Bal
Journal:  Health Expect       Date:  2012-03-06       Impact factor: 3.377

2.  Ordinary and effective: the Catch-22 in managing the public voice in health care?

Authors:  Mark Learmonth; Graham P Martin; Philip Warwick
Journal:  Health Expect       Date:  2009-03       Impact factor: 3.377

3.  Social participation in health in Brazil and England: inclusion, representation and authority.

Authors:  Marian Barnes; Vera Schattan Coelho
Journal:  Health Expect       Date:  2009-09       Impact factor: 3.377

4.  The integration of citizens into a science/policy network in genetics: governance arrangements and asymmetry in expertise.

Authors:  Geneviève Daudelin; Pascale Lehoux; Julia Abelson; Jean L Denis
Journal:  Health Expect       Date:  2010-10-28       Impact factor: 3.377

5.  Mission, margin, and the role of consumer governance in decision-making at community health centers.

Authors:  Brad Wright; Graham P Martin
Journal:  J Health Care Poor Underserved       Date:  2014-05

6.  A proposed framework for patient engagement throughout the broader research enterprise.

Authors:  Camila L Strassle; Steven D Pearson
Journal:  J Comp Eff Res       Date:  2020-04-07       Impact factor: 1.744

7.  Challenges Facing Healthwatch, a New Consumer Champion in England.

Authors:  Pam Carter; Graham Martin
Journal:  Int J Health Policy Manag       Date:  2016-01-21

8.  Involving patients in health technology funding decisions: stakeholder perspectives on processes used in Australia.

Authors:  Edilene Lopes; Jackie Street; Drew Carter; Tracy Merlin
Journal:  Health Expect       Date:  2015-02-21       Impact factor: 3.377

9.  Citizens' participation in the Italian health-care system: the experience of the Mixed Advisory Committees.

Authors:  Mauro Serapioni; Nancy Duxbury
Journal:  Health Expect       Date:  2012-04-19       Impact factor: 3.377

10.  Health researchers' attitudes towards public involvement in health research.

Authors:  Jill Thompson; Rosemary Barber; Paul R Ward; Jonathan D Boote; Cindy L Cooper; Christopher J Armitage; Georgina Jones
Journal:  Health Expect       Date:  2009-04-22       Impact factor: 3.377

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