Literature DB >> 19278947

Palliative care for Latino patients and their families: whenever we prayed, she wept.

Alexander K Smith1, Rebecca L Sudore, Eliseo J Pérez-Stable.   

Abstract

Latinos account for 15% of the US population, a proportion projected to grow to 30% by the year 2050. Although there is tremendous diversity within this community, commonalities of language, beliefs, attitudes, and behaviors unite Latinos, making them more similar than different. Differences by national origin, although important, are attenuated when immigrants come to the United States, dominated by an English-language, Anglo-centric culture. For non-Latino and non-Spanish-speaking clinicians, communication barriers and cultural misunderstandings can impede the care of dying Latino patients and their families. We present the case of a young, pregnant, Spanish-speaking woman from Central America diagnosed with a fatal leukemia. As illustrated by this case, Latino immigrants face a number of external challenges to optimal end-of-life care: (1) geographic distance as well as political and economic realities often separate patients from their valued families; (2) undocumented immigrants are frequently uninsured and fear of deportation may create a barrier to accessing health services; (3) language and literacy barriers; and (4) concerns about discrimination. Other Latino issues that may be more pronounced in end-of-life settings include cultural themes and religious and spiritual influences. We recommend that professional interpreters must be used for discussions about goals of care with Spanish-speaking patients and families or when negotiating conflict between the patient, family, and the health care team. Concrete suggestions are provided for clinicians in working with interpreters, eliciting culturally based attitudes and beliefs, and implementing universal strategies for clear health communication.

Entities:  

Mesh:

Year:  2009        PMID: 19278947      PMCID: PMC2782583          DOI: 10.1001/jama.2009.308

Source DB:  PubMed          Journal:  JAMA        ISSN: 0098-7484            Impact factor:   56.272


  71 in total

1.  African-American participation in clinical trials: situating trust and trustworthiness.

Authors:  L M Crawley
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2.  Latino populations: a unique opportunity for the study of race, genetics, and social environment in epidemiological research.

Authors:  Esteban González Burchard; Luisa N Borrell; Shweta Choudhry; Mariam Naqvi; Hui-Ju Tsai; Jose R Rodriguez-Santana; Rocio Chapela; Scott D Rogers; Rui Mei; William Rodriguez-Cintron; Jose F Arena; Rick Kittles; Eliseo J Perez-Stable; Elad Ziv; Neil Risch
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Review 3.  Patient navigation: a culturally competent strategy to address disparities in palliative care.

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5.  Negotiating cross-cultural issues at the end of life: "You got to go where he lives".

Authors:  M Kagawa-Singer; L J Blackhall
Journal:  JAMA       Date:  2001-12-19       Impact factor: 56.272

6.  Spiritual issues in the care of dying patients: ". . . it's okay between me and god".

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  46 in total

1.  "Her husband doesn't speak much English": conducting a family meeting with an interpreter.

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3.  Interpretation for discussions about end-of-life issues: results from a National Survey of Health Care Interpreters.

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Review 4.  A review of cancer in U.S. Hispanic populations.

Authors:  Robert W Haile; Esther M John; A Joan Levine; Victoria K Cortessis; Jennifer B Unger; Melissa Gonzales; Elad Ziv; Patricia Thompson; Donna Spruijt-Metz; Katherine L Tucker; Jonine L Bernstein; Thomas E Rohan; Gloria Y F Ho; Melissa L Bondy; Maria Elena Martinez; Linda Cook; Mariana C Stern; Marcia Cruz Correa; Jonelle Wright; Seth J Schwartz; Lourdes Baezconde-Garbanati; Victoria Blinder; Patricia Miranda; Richard Hayes; George Friedman-Jiménez; Kristine R Monroe; Christopher A Haiman; Brian E Henderson; Duncan C Thomas; Paolo Boffetta
Journal:  Cancer Prev Res (Phila)       Date:  2012-02

5.  'The worst thing about hospice is that they talk about death': contrasting hospice decisions and experience among immigrant Central and South American Latinos with US-born White, non-Latino cancer caregivers.

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6.  Patients rate physician communication about lung cancer.

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Journal:  Cancer       Date:  2011-04-14       Impact factor: 6.860

7.  From "Kickeando las malias" (kicking the withdrawals) to "Staying clean": The impact of cultural values on cessation of injection drug use in aging Mexican-American men.

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Review 8.  The Voice Is As Mighty As the Pen: Integrating Conversations into Advance Care Planning.

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9.  Trends in Receipt of Intensive Procedures at the End of Life Among Patients Treated With Maintenance Dialysis.

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10.  Examining patient conceptions: a case of metastatic breast cancer in an African American male to female transgender patient.

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