Literature DB >> 19227822

The rise of 'recruitmentology': clinical research, racial knowledge, and the politics of inclusion and difference.

Steven Epstein1.   

Abstract

Recent debates concerning the biomedical meaning and significance of race have paid relatively little attention to the practical implications of new policies in the US mandating the inclusion of racial and ethnic minorities (along with other 'underrepresented groups') as research subjects in clinical studies. I argue that pressures to enroll underrepresented groups have stimulated the development in the US of an auxiliary science I term 'recruitmentology': an empirical body of studies scientifically evaluating the efficacy of various social, cultural, psychological, technological, and economic means of convincing people (especially members of 'hard-to-recruit populations') that they want to become, and remain, human subjects. Via the filtering of social scientific frameworks into the clinical research domain, recruitmentology has promoted hybrid ways of thinking about race--awkward encounters in which depictions of race as a bounded, quasi-biological medical and administrative category sit uneasily alongside an interest in understanding racial identities and communities as sociocultural phenomena. I analyze how recruitmentologists, in addressing the mandate to recruit racially diverse subject populations, conceptualize race while simultaneously grappling with problems of trust, collective memory, and participation. I also examine how the increasingly transnational character of biomedical research is intensifying the exploitative dimensions of recruitment while further transforming the racialized character of human experimentation. This analysis highlights the tensions underlying projects to eliminate health disparities by race.

Entities:  

Mesh:

Year:  2008        PMID: 19227822     DOI: 10.1177/0306312708091930

Source DB:  PubMed          Journal:  Soc Stud Sci        ISSN: 0306-3127            Impact factor:   3.885


  31 in total

1.  Problems with the collection and interpretation of Asian-American health data: omission, aggregation, and extrapolation.

Authors:  Ariel T Holland; Latha P Palaniappan
Journal:  Ann Epidemiol       Date:  2012-06       Impact factor: 3.797

2.  "Ready-to-Recruit" or "Ready-to-Consent" Populations?: Informed Consent and the Limits of Subject Autonomy.

Authors:  Jill A Fisher
Journal:  Qual Inq       Date:  2007-09

3.  Homogeneity and heterogeneity as situational properties: producing--and moving beyond?--race in post-genomic science.

Authors:  Janet K Shim; Katherine Weatherford Darling; Martine D Lappe; L Katherine Thomson; Sandra Soo-Jin Lee; Robert A Hiatt; Sara L Ackerman
Journal:  Soc Stud Sci       Date:  2014-08       Impact factor: 3.885

Review 4.  International Society of Psychiatric Genetics Ethics Committee: Issues facing us.

Authors:  Gabriel Lázaro-Muñoz; Maya Sabatello; Laura Huckins; Holly Peay; Franziska Degenhardt; Bettina Meiser; Todd Lencz; Takahiro Soda; Anna Docherty; David Crepaz-Keay; Jehannine Austin; Roseann E Peterson; Lea K Davis
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2019-05-23       Impact factor: 3.568

5.  Increasing Asian American women's research participation: the Asian grocery store-based cancer education program.

Authors:  Georgia Robins Sadler; Celine M Ko; Mitsuko Takahashi; Christy R Ching; Irene Lee; Gin C Chuang; Kathy K Lee
Journal:  Contemp Clin Trials       Date:  2010-03-15       Impact factor: 2.226

6.  The challenges of collaboration for academic and community partners in a research partnership: points to consider.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
Journal:  J Empir Res Hum Res Ethics       Date:  2010-03       Impact factor: 1.742

7.  Engaging African American breast cancer survivors in an intervention trial: culture, responsiveness and community.

Authors:  Barbara B Germino; Merle H Mishel; G Rumay Alexander; Coretta Jenerette; Diane Blyler; Carol Baker; Anissa I Vines; Melissa Green; Debra G Long
Journal:  J Cancer Surviv       Date:  2010-10-01       Impact factor: 4.442

8.  Social networking and online recruiting for HIV research: ethical challenges.

Authors:  Brenda L Curtis
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

9.  Randomized controlled trial to test a computerized psychosocial cancer assessment and referral program: methods and research design.

Authors:  Erin L O'Hea; Alexandra Cutillo; Laura Dietzen; Tina Harralson; Grant Grissom; Sharina Person; Edwin D Boudreaux
Journal:  Contemp Clin Trials       Date:  2013-02-07       Impact factor: 2.226

10.  Planning for translational research in genomics.

Authors:  Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Catherine Heeney
Journal:  Genome Med       Date:  2009-09-29       Impact factor: 11.117

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