Literature DB >> 19076943

Challenging the rhetoric of choice in prenatal screening.

Victoria Seavilleklein1.   

Abstract

Prenatal screening, consisting of maternal serum screening and nuchal translucency screening, is on the verge of expansion, both by being offered to more pregnant women and by screening for more conditions. The Society of Obstetricians and Gynaecologists of Canada and the American College of Obstetricians and Gynecologists have each recently recommended that screening be extended to all pregnant women regardless of age, disease history, or risk status. This screening is commonly justified by appeal to the value of autonomy, or women's choice. In this paper, I critically examine the value of autonomy in the context of prenatal screening to determine whether it justifies the routine offer of screening and the expansion of screening services. I argue that in the vast majority of cases the option of prenatal screening does not promote or protect women's autonomy. Both a narrow conception of choice as informed consent and a broad conception of choice as relational reveal difficulties in achieving adequate standards of free informed choice. While there are reasons to worry that women's autonomy is not being protected or promoted within the limited scope of current practice, we should hesitate before normalizing it as part of standard prenatal care for all.

Entities:  

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Year:  2009        PMID: 19076943     DOI: 10.1111/j.1467-8519.2008.00674.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  16 in total

1.  Genetic Counselors' Perspectives About Cell-Free DNA: Experiences, Challenges, and Expectations for Obstetricians.

Authors:  Patricia K Agatisa; Mary Beth Mercer; Marissa Coleridge; Ruth M Farrell
Journal:  J Genet Couns       Date:  2018-06-27       Impact factor: 2.537

2.  Non-invasive prenatal testing: ethical issues explored.

Authors:  Antina de Jong; Wybo J Dondorp; Christine E M de Die-Smulders; Suzanne G M Frints; Guido M W R de Wert
Journal:  Eur J Hum Genet       Date:  2009-12-02       Impact factor: 4.246

3.  Patients' Knowledge of Prenatal Screening for Trisomy 21.

Authors:  Michal Sheinis; Kira Bensimon; Amanda Selk
Journal:  J Genet Couns       Date:  2017-07-14       Impact factor: 2.537

4.  Benefits, challenges and ethical principles associated with implementing noninvasive prenatal testing: a Delphi study.

Authors:  Charles Dupras; Stanislav Birko; Aliya Affdal; Hazar Haidar; Marie-Eve Lemoine; Vardit Ravitsky
Journal:  CMAJ Open       Date:  2018-10-31

Review 5.  Pre- and post-test genetic counseling for chromosomal and Mendelian disorders.

Authors:  Jill Fonda Allen; Katie Stoll; Barbara A Bernhardt
Journal:  Semin Perinatol       Date:  2015-12-21       Impact factor: 3.300

6.  Non-invasive prenatal testing for single gene disorders: exploring the ethics.

Authors:  Zuzana Deans; Melissa Hill; Lyn S Chitty; Celine Lewis
Journal:  Eur J Hum Genet       Date:  2012-11-28       Impact factor: 4.246

7.  The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study.

Authors:  Erin Rothwell; Erin Johnson; Bob Wong; Nancy C Rose; Gwen Latendresse; Roger Altizer; Jose Zagal; Marcela Smid; Abby Watson; Jeffrey R Botkin
Journal:  Am J Perinatol       Date:  2018-08-14       Impact factor: 1.862

8.  Informed decision-making about prenatal cfDNA screening: An assessment of written materials.

Authors:  Marsha Michie; Stephanie A Kraft; Mollie A Minear; Roberta R Ryan; Megan A Allyse
Journal:  Ethics Med Public Health       Date:  2016-09-13

Review 9.  Supporting Patient Autonomy and Informed Decision-Making in Prenatal Genetic Testing.

Authors:  Katie Stoll; Judith Jackson
Journal:  Cold Spring Harb Perspect Med       Date:  2020-06-01       Impact factor: 5.159

10.  Correlates of knowledge of genetic diseases and congenital anomalies among pregnant women attending antenatal clinics in Lagos, South-West Nigeria.

Authors:  Chibuzor Franklin Ogamba; Alero Ann Roberts; Ochuwa Adiketu Babah; Chibuikem Anthony Ikwuegbuenyi; Oluwaseun Joseph Ologunja; Oluyinka Kehinde Amodeni
Journal:  Pan Afr Med J       Date:  2021-03-28
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