Literature DB >> 19003718

Identifiability of DNA data: the need for consistent federal policy.

Amy L McGuire1.   

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Year:  2008        PMID： 19003718      PMCID： PMC2771195          DOI： 10.1080/15265160802478511

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  6 in total

1.  Genetics. Genomic research and human subject privacy.

Authors:  Zhen Lin; Art B Owen; Russ B Altman
Journal:  Science       Date:  2004-07-09       Impact factor: 47.728

2.  Genetics. No longer de-identified.

Authors:  Amy L McGuire; Richard A Gibbs
Journal:  Science       Date:  2006-04-21       Impact factor: 47.728

3.  Meeting the growing demands of genetic research.

Authors:  Amy L McGuire; Richard A Gibbs
Journal:  J Law Med Ethics       Date:  2006       Impact factor: 1.718

4.  Ethics. Identifiability in genomic research.

Authors:  William W Lowrance; Francis S Collins
Journal:  Science       Date:  2007-08-03       Impact factor: 47.728

5.  Patients' views on identifiability of samples and informed consent for genetic research.

Authors:  Sara Chandros Hull; Richard R Sharp; Jeffrey R Botkin; Mark Brown; Mark Hughes; Jeremy Sugarman; Debra Schwinn; Pamela Sankar; Dragana Bolcic-Jankovic; Brian R Clarridge; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2008-10       Impact factor: 11.229

6.  Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Authors:  Nils Homer; Szabolcs Szelinger; Margot Redman; David Duggan; Waibhav Tembe; Jill Muehling; John V Pearson; Dietrich A Stephan; Stanley F Nelson; David W Craig
Journal:  PLoS Genet       Date:  2008-08-29       Impact factor: 5.917
  6 in total
  11 in total

Review 1.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

2.  Public perspectives regarding data-sharing practices in genomics research.

Authors:  S B Haga; J O'Daniel
Journal:  Public Health Genomics       Date:  2011-03-24       Impact factor: 2.000

3.  Biobanking, consent, and certificates of confidentiality: does the ANPRM muddy the water?

Authors:  Brett A Williams; Leslie E Wolf
Journal:  J Law Med Ethics       Date:  2013       Impact factor: 1.718

4.  How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.

Authors:  Harald Schmidt; Shawneequa Callier
Journal:  J Med Ethics       Date:  2012-02-16       Impact factor: 2.903

5.  Human embryos and eggs: from long-term storage to biobanking.

Authors:  Françoise Baylis; Heather Widdows
Journal:  Monash Bioeth Rev       Date:  2015-12

6.  Eyes wide open: the personal genome project, citizen science and veracity in informed consent.

Authors:  Misha Angrist
Journal:  Per Med       Date:  2009-11       Impact factor: 2.512

7.  Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues.

Authors:  Kelly E Ormond; Mildred K Cho
Journal:  Per Med       Date:  2014       Impact factor: 2.512

8.  Gay and Bisexual Men's Perceptions of the Donation and Use of Human Biological Samples for Research: A Qualitative Study.

Authors:  Chris Patterson; Lisa M McDaid; Shona Hilton
Journal:  PLoS One       Date:  2015-06-08       Impact factor: 3.240

9.  IRB practices and policies regarding the secondary research use of biospecimens.

Authors:  Aaron J Goldenberg; Karen J Maschke; Steven Joffe; Jeffrey R Botkin; Erin Rothwell; Thomas H Murray; Rebecca Anderson; Nicole Deming; Beth F Rosenthal; Suzanne M Rivera
Journal:  BMC Med Ethics       Date:  2015-05-08       Impact factor: 2.652

10.  Identifying genetic relatives without compromising privacy.

Authors:  Dan He; Nicholas A Furlotte; Farhad Hormozdiari; Jong Wha J Joo; Akshay Wadia; Rafail Ostrovsky; Amit Sahai; Eleazar Eskin
Journal:  Genome Res       Date:  2014-03-10       Impact factor: 9.043
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