Literature DB >> 18411019

Does palliative care improve quality? A survey of bereaved family members.

Laura P Gelfman1, Diane E Meier, R Sean Morrison.   

Abstract

Palliative care is the interdisciplinary specialty that aims to relieve suffering and improve the quality of care for patients with serious illness and their families. Although palliative care programs are becoming increasingly prevalent in U.S. hospitals, the impact of hospital palliative care consultation programs on the quality of care received by family members is not well understood. We conducted prospective quantitative telephonic interviews of family members of patients who died at Mount Sinai Medical Center between April and December 2005 using the validated "After-Death Bereaved Family Member Interview," to assess quality of medical care at the end of life. Multivariable techniques were used to compare family satisfaction of palliative care patients vs. usual care patients controlling for age, race (white vs. nonwhite), diagnosis (cancer vs. noncancer), socioeconomic status (Medicaid vs. non-Medicaid), and functional status (number of dependent activities of daily living). One hundred ninety eligible subjects were contacted and successful interviews were completed with 149 (78.4%) family members (54 palliative care and 95 usual care patients). Palliative care showed benefit, with 65% of palliative care patients' family members reporting that their emotional or spiritual needs were met, as compared to 35% of usual care patients' family members (P=0.004). Sixty-seven percent of palliative care patients' family members reported confidence in one or more self-efficacy domains, as compared to 44% of usual care patients' family members (P=0.03). Our study shows that palliative care consultation is associated with improved satisfaction, with attention to family and enhanced self-efficacy. Palliative care offers a unique approach by integrating the needs of the family into the care of the patient.

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Year:  2008        PMID: 18411019      PMCID: PMC2527760          DOI: 10.1016/j.jpainsymman.2007.09.008

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  15 in total

1.  The Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) Scale: a measure for assessing caregiver exposure to distress in terminal care.

Authors:  Holly G Prigerson; Emily Cherlin; Joyce H Chen; Stanislav V Kasl; Rosemary Hurzeler; Elizabeth H Bradley
Journal:  Am J Geriatr Psychiatry       Date:  2003 May-Jun       Impact factor: 4.105

Review 2.  Clinical practice. Palliative care.

Authors:  R Sean Morrison; Diane E Meier
Journal:  N Engl J Med       Date:  2004-06-17       Impact factor: 91.245

Review 3.  Avoiding iatrogenic harm to patient and family while discussing goals of care near the end of life.

Authors:  Joseph S Weiner; Jesse Roth
Journal:  J Palliat Med       Date:  2006-04       Impact factor: 2.947

4.  The healing power of listening in the ICU.

Authors:  Craig M Lilly; Barbara J Daly
Journal:  N Engl J Med       Date:  2007-02-01       Impact factor: 91.245

Review 5.  Do hospital-based palliative teams improve care for patients or families at the end of life?

Authors:  Irene J Higginson; Ilora Finlay; Danielle M Goodwin; Alison M Cook; Kerry Hood; Adrian G K Edwards; Hannah-Rose Douglas; Charles E Norman
Journal:  J Pain Symptom Manage       Date:  2002-02       Impact factor: 3.612

6.  Preparing for the end of life: preferences of patients, families, physicians, and other care providers.

Authors:  K E Steinhauser; N A Christakis; E C Clipp; M McNeilly; S Grambow; J Parker; J A Tulsky
Journal:  J Pain Symptom Manage       Date:  2001-09       Impact factor: 3.612

7.  Patient-focused, family-centered end-of-life medical care: views of the guidelines and bereaved family members.

Authors:  J M Teno; V A Casey; L C Welch; S Edgman-Levitan
Journal:  J Pain Symptom Manage       Date:  2001-09       Impact factor: 3.612

8.  A communication strategy and brochure for relatives of patients dying in the ICU.

Authors:  Alexandre Lautrette; Michael Darmon; Bruno Megarbane; Luc Marie Joly; Sylvie Chevret; Christophe Adrie; Didier Barnoud; Gérard Bleichner; Cédric Bruel; Gérald Choukroun; J Randall Curtis; Fabienne Fieux; Richard Galliot; Maité Garrouste-Orgeas; Hugues Georges; Dany Goldgran-Toledano; Mercé Jourdain; Georges Loubert; Jean Reignier; Fayçal Saidi; Bertrand Souweine; François Vincent; Nancy Kentish Barnes; Frédéric Pochard; Benoit Schlemmer; Elie Azoulay
Journal:  N Engl J Med       Date:  2007-02-01       Impact factor: 91.245

9.  Validation of Toolkit After-Death Bereaved Family Member Interview.

Authors:  J M Teno; B Clarridge; V Casey; S Edgman-Levitan; J Fowler
Journal:  J Pain Symptom Manage       Date:  2001-09       Impact factor: 3.612

10.  Mortality after the hospitalization of a spouse.

Authors:  Nicholas A Christakis; Paul D Allison
Journal:  N Engl J Med       Date:  2006-02-16       Impact factor: 91.245

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  26 in total

1.  Study design, precision, and validity in observational studies.

Authors:  Melissa D A Carlson; R Sean Morrison
Journal:  J Palliat Med       Date:  2009-01       Impact factor: 2.947

2.  Racial and ethnic disparities in palliative care.

Authors:  Kimberly S Johnson
Journal:  J Palliat Med       Date:  2013-09-27       Impact factor: 2.947

Review 3.  Measuring Experience With End-of-Life Care: A Systematic Literature Review.

Authors:  Jessica Penn Lendon; Sangeeta C Ahluwalia; Anne M Walling; Karl A Lorenz; Oluwatobi A Oluwatola; Rebecca Anhang Price; Denise Quigley; Joan M Teno
Journal:  J Pain Symptom Manage       Date:  2014-12-24       Impact factor: 3.612

4.  Variation in medication use in cancer patients at the end of life: a cross-sectional analysis.

Authors:  N J H Raijmakers; L van Zuylen; C J Furst; M Beccaro; L Maiorana; P Pilastri; C Rossi; G Flego; A van der Heide; M Costantini
Journal:  Support Care Cancer       Date:  2012-10-14       Impact factor: 3.603

Review 5.  Palliative Care for People With Hepatocellular Carcinoma, and Specific Benefits for Older Adults.

Authors:  Christopher D Woodrell; Lissi Hansen; Thomas D Schiano; Nathan E Goldstein
Journal:  Clin Ther       Date:  2018-03-20       Impact factor: 3.393

6.  The Surprise Question Can Be Used to Identify Heart Failure Patients in the Emergency Department Who Would Benefit From Palliative Care.

Authors:  Emily L Aaronson; Naomi George; Kei Ouchi; Hui Zheng; Jason Bowman; Derek Monette; Juliet Jacobsen; Vicki Jackson
Journal:  J Pain Symptom Manage       Date:  2019-02-16       Impact factor: 3.612

7.  Cost savings from palliative care teams and guidance for a financially viable palliative care program.

Authors:  Ian M McCarthy; Chessie Robinson; Sakib Huq; Martha Philastre; Robert L Fine
Journal:  Health Serv Res       Date:  2014-07-15       Impact factor: 3.402

8.  Hospice Enrollment in Patients With Advanced Heart Failure Decreases Acute Medical Service Utilization.

Authors:  Cindi K Yim; Yolanda Barrón; Stanley Moore; Chris Murtaugh; Anuradha Lala; Melissa Aldridge; Nathan Goldstein; Laura P Gelfman
Journal:  Circ Heart Fail       Date:  2017-03       Impact factor: 8.790

9.  Measuring Patient-Centeredness of Care for Seriously Ill Individuals: Challenges and Opportunities for Accountability Initiatives.

Authors:  Rebecca Anhang Price; Marc N Elliott
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

10.  Randomized controlled trial of SPIRIT: an effective approach to preparing African-American dialysis patients and families for end of life.

Authors:  Mi-Kyung Song; Sandra E Ward; Mary Beth Happ; Beth Piraino; Heidi S Donovan; Anne-Marie Shields; Mary C Connolly
Journal:  Res Nurs Health       Date:  2009-06       Impact factor: 2.228

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