Literature DB >> 19205027

Randomized controlled trial of SPIRIT: an effective approach to preparing African-American dialysis patients and families for end of life.

Mi-Kyung Song1, Sandra E Ward, Mary Beth Happ, Beth Piraino, Heidi S Donovan, Anne-Marie Shields, Mary C Connolly.   

Abstract

This randomized controlled trial tested an intervention, Sharing Patients' Illness Representations to Increase Trust (SPIRIT), designed to enhance communication regarding end-of-life care between African Americans with end-stage renal disease (ESRD) and their chosen surrogate decision makers (N = 58 dyads). We used surveys and semi-structured interviews to determine the feasibility, acceptability, and preliminary effects of SPIRIT on patient and surrogate outcomes at 1 week and 3 months post-intervention. We also evaluated patients' deaths and surrogates' end-of-life decision making to assess surrogates' perceptions of benefits and limitations of the SPIRIT while facing end-of-life decisions. We found that SPIRIT promoted communication between patients and their surrogates and was effective and well received by the participants. (c) 2009 Wiley Periodicals, Inc.

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Year:  2009        PMID: 19205027      PMCID: PMC2719959          DOI: 10.1002/nur.20320

Source DB:  PubMed          Journal:  Res Nurs Health        ISSN: 0160-6891            Impact factor:   2.228


  53 in total

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Journal:  Drug Alcohol Depend       Date:  2000-01-01       Impact factor: 4.492

2.  Promoting intervention fidelity. Conceptual issues, methods, and preliminary results from the EARLY ALLIANCE prevention trial.

Authors:  J E Dumas; A M Lynch; J E Laughlin; E Phillips Smith; R J Prinz
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Review 3.  Real qualitative researchers do not count: the use of numbers in qualitative research.

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4.  Controlling death: the false promise of advance directives.

Authors:  Henry S Perkins
Journal:  Ann Intern Med       Date:  2007-07-03       Impact factor: 25.391

5.  Charlson comorbidity index as a predictor of outcomes in incident peritoneal dialysis patients.

Authors:  L Fried; J Bernardini; B Piraino
Journal:  Am J Kidney Dis       Date:  2001-02       Impact factor: 8.860

6.  Racial variations in end-of-life care.

Authors:  F P Hopp; S A Duffy
Journal:  J Am Geriatr Soc       Date:  2000-06       Impact factor: 5.562

7.  The shifting perspectives model of chronic illness.

Authors:  B L Paterson
Journal:  J Nurs Scholarsh       Date:  2001       Impact factor: 3.176

8.  Validation of Toolkit After-Death Bereaved Family Member Interview.

Authors:  J M Teno; B Clarridge; V Casey; S Edgman-Levitan; J Fowler
Journal:  J Pain Symptom Manage       Date:  2001-09       Impact factor: 3.612

9.  Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study.

Authors:  F P Hopp
Journal:  Gerontologist       Date:  2000-08

10.  Advance directives as acts of communication: a randomized controlled trial.

Authors:  P H Ditto; J H Danks; W D Smucker; J Bookwala; K M Coppola; R Dresser; A Fagerlin; R M Gready; R M Houts; L K Lockhart; S Zyzanski
Journal:  Arch Intern Med       Date:  2001-02-12
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  32 in total

1.  End-of-life decision-making confidence in surrogates of African-American dialysis patients is overly optimistic.

Authors:  Mi-Kyung Song; Sandra E Ward; Feng-Chang Lin
Journal:  J Palliat Med       Date:  2012-04-02       Impact factor: 2.947

2.  Racial Disparities in End-of-Life Communication and Preferences among Chronic Kidney Disease Patients.

Authors:  Nwamaka D Eneanya; Julia B Wenger; Katherine Waite; Stanley Crittenden; Derya B Hazar; Angelo Volandes; Jennifer S Temel; Ravi Thadhani; Michael K Paasche-Orlow
Journal:  Am J Nephrol       Date:  2016-06-29       Impact factor: 3.754

3.  Quality of life of persons living with HIV and congruence with surrogate decision-makers.

Authors:  Katherine B Curtin; Yao I Cheng; Jichuan Wang; Rachel K Scott; Leah Squires; Debra A Benator; Maureen E Lyon
Journal:  Qual Life Res       Date:  2018-09-15       Impact factor: 4.147

4.  FAmily CEntered (FACE) advance care planning: Study design and methods for a patient-centered communication and decision-making intervention for patients with HIV/AIDS and their surrogate decision-makers.

Authors:  Allison L Kimmel; Jichuan Wang; Rachel K Scott; Linda Briggs; Maureen E Lyon
Journal:  Contemp Clin Trials       Date:  2015-06-02       Impact factor: 2.226

5.  Web-based symptom management for women with recurrent ovarian cancer: a pilot randomized controlled trial of the WRITE Symptoms intervention.

Authors:  Heidi S Donovan; Sandra E Ward; Susan M Sereika; Judith E Knapp; Paula R Sherwood; Catherine M Bender; Robert P Edwards; Margaret Fields; Renee Ingel
Journal:  J Pain Symptom Manage       Date:  2013-09-07       Impact factor: 3.612

6.  Pediatric advance care planning (pACP) for teens with cancer and their families: Design of a dyadic, longitudinal RCCT.

Authors:  Katherine B Curtin; Anne E Watson; Jichuan Wang; Obianuju C Okonkwo; Maureen E Lyon
Journal:  Contemp Clin Trials       Date:  2017-08-24       Impact factor: 2.226

7.  Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV.

Authors:  Ronald H Dallas; Allison Kimmel; Megan L Wilkins; Sohail Rana; Ana Garcia; Yao I Cheng; Jichuan Wang; Maureen E Lyon
Journal:  Pediatrics       Date:  2016-11-01       Impact factor: 7.124

8.  Advance care planning and end-of-life decision making in dialysis: a randomized controlled trial targeting patients and their surrogates.

Authors:  Mi-Kyung Song; Sandra E Ward; Jason P Fine; Laura C Hanson; Feng-Chang Lin; Gerald A Hladik; Jill B Hamilton; Jessica C Bridgman
Journal:  Am J Kidney Dis       Date:  2015-06-30       Impact factor: 8.860

9.  End-of-Life Plans for African American Older Adults With Dementia.

Authors:  Karen O Moss; Nancy L Deutsch; Patricia J Hollen; Virginia G Rovnyak; Ishan C Williams; Karen M Rose
Journal:  Am J Hosp Palliat Care       Date:  2018-03-14       Impact factor: 2.500

10.  Can Persons with Dementia Meaningfully Participate in Advance Care Planning Discussions? A Mixed-Methods Study of SPIRIT.

Authors:  Mi-Kyung Song; Sandra E Ward; Kenneth Hepburn; Sudeshna Paul; Hyejin Kim; Raj C Shah; Darby J Morhardt; Laura Medders; James J Lah; Carolyn C Clevenger
Journal:  J Palliat Med       Date:  2019-08-02       Impact factor: 2.947

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