Literature DB >> 18307384

The influence of experiential knowledge on prenatal screening and testing decisions.

Holly Etchegary1, Beth Potter, Heather Howley, Mario Cappelli, Doug Coyle, Ian Graham, Mark Walker, Brenda Wilson.   

Abstract

Minimal research focuses on the process of decision making in the context of prenatal screening and testing. This paper outlines an important contextual influence on these decisions. Specifically, we propose that experiential knowledge, particularly about pregnancy, screening, and disability, has a significant influence on prenatal screening and testing decisions. Drawing upon 38 semistructured interviews with women, this study explored how women made prenatal screening and testing decisions. Qualitative data analysis revealed two types of experiential knowledge, empathetic and embodied, which played a pivotal role in women's thinking about the value of prenatal tests and whether or not they accepted the offer of screening, testing, or both. We conclude that prenatal genetic counseling could benefit from an exploration of clients' experiential knowledge, both empathetic and embodied forms.

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Year:  2008        PMID: 18307384     DOI: 10.1089/gte.2007.0057

Source DB:  PubMed          Journal:  Genet Test        ISSN: 1090-6576


  23 in total

1.  Perceived relevance of genetic carrier screening: observations of the role of health-related life experiences and stage of life in decision making.

Authors:  Alison D Archibald; Belinda J McClaren
Journal:  J Community Genet       Date:  2011-11-17

2.  Genetic testing likelihood: the impact of abortion views and quality of life information on women's decisions.

Authors:  Jessica L Wilson; Gail M Ferguson; Judith M Thorn
Journal:  J Genet Couns       Date:  2010-11-06       Impact factor: 2.537

Review 3.  Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing.

Authors:  Allison Werner-Lin; Judith L M McCoyd; Barbara A Bernhardt
Journal:  J Genet Couns       Date:  2016-05-21       Impact factor: 2.537

4.  Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results.

Authors:  M A Rubel; A Werner-Lin; F K Barg; B A Bernhardt
Journal:  Cult Med Psychiatry       Date:  2017-09

5.  It's complicated - Factors predicting decisional conflict in prenatal diagnostic testing.

Authors:  Cécile Muller; Linda D Cameron
Journal:  Health Expect       Date:  2015-04-13       Impact factor: 3.377

6.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

7.  Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins.

Authors:  Julie Chevalier Sapp; Sara Chandros Hull; Shelby Duffer; Sarah Zornetzer; Erica Sutton; Theresa M Marteau; Barbara Bowles Biesecker
Journal:  Prenat Diagn       Date:  2010-01       Impact factor: 3.050

8.  Maternal age-based prenatal screening for chromosomal disorders: attitudes of women and health care providers toward changes.

Authors:  June C Carroll; Andrea Rideout; Brenda J Wilson; Judith Allanson; Sean Blaine; Mary Jane Esplen; Sandra Farrell; Gail E Graham; Jennifer MacKenzie; Wendy S Meschino; Preeti Prakash; Cheryl Shuman; Sherry Taylor; Stasey Tobin
Journal:  Can Fam Physician       Date:  2013-01       Impact factor: 3.275

9.  Presenting life with cystic fibrosis: a Q-methodological approach to developing balanced, experience-based prenatal screening information.

Authors:  Katherine F Wright; Louise D Bryant; Stephen Morley; Jenny Hewison; Alistair J A Duff; Daniel Peckham
Journal:  Health Expect       Date:  2013-08-02       Impact factor: 3.377

10.  Perceptions of genetic research in three rural Appalachian Ohio communities.

Authors:  Amy N Fullenkamp; Erin N Haynes; Lisa Meloncon; Paul Succop; Daniel W Nebert
Journal:  J Community Genet       Date:  2012-08-05
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