Literature DB >> 18025494

Promoting participatory research by family physicians.

Ann C Macaulay1.   

Abstract

In the past, researchers have inadvertently caused stigmatization of various populations, first by not involving community members and then through publishing negative findings. In contrast, participatory research, which is based on a partnership between researchers and those affected by the issue being studied, promotes the voice of those being researched. This essay highlights key principles, processes, complexities, and challenges of participatory research and outlines when participatory research is not appropriate. It also reflects on the training and skills of family physicians that make them especially suited to participatory research. Family physicians have established clinical partnerships with their patients and sometimes entire communities, are trained in patient-centered care-a good basis for community centered research-and are accustomed to working with uncertainty. In addition, they are frequently pragmatic, interested in questions arising from their patients and communities, and likely to respond well to community requests. The main challenges to participatory research are lack of funding, expertise, and time, which may improve as more funding agencies and universities support this approach to research.

Entities:  

Mesh:

Year:  2007        PMID: 18025494      PMCID: PMC2094025          DOI: 10.1370/afm.755

Source DB:  PubMed          Journal:  Ann Fam Med        ISSN: 1544-1709            Impact factor:   5.166


  19 in total

Review 1.  Participatory research maximises community and lay involvement. North American Primary Care Research Group.

Authors:  A C Macaulay; L E Commanda; W L Freeman; N Gibson; M L McCabe; C M Robbins; P L Twohig
Journal:  BMJ       Date:  1999-09-18

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Using community-based participatory research to address health disparities.

Authors:  Nina B Wallerstein; Bonnie Duran
Journal:  Health Promot Pract       Date:  2006-06-07

Review 4.  How can we increase translation of research into practice? Types of evidence needed.

Authors:  Russell E Glasgow; Karen M Emmons
Journal:  Annu Rev Public Health       Date:  2007       Impact factor: 21.981

5.  Community-based participatory research in practice-based research networks.

Authors:  John M Westfall; Rebecca F VanVorst; Deborah S Main; Carol Herbert
Journal:  Ann Fam Med       Date:  2006 Jan-Feb       Impact factor: 5.166

6.  Strategies for academic and clinician engagement in community-participatory partnered research.

Authors:  Loretta Jones; Kenneth Wells
Journal:  JAMA       Date:  2007-01-24       Impact factor: 56.272

7.  Mom empowerment, too! (ME2): a program for young mothers involved in substance abuse.

Authors:  J H Baldwin; A Rawlings; E S Marshall; C O Conger; K A Abbott
Journal:  Public Health Nurs       Date:  1999-12       Impact factor: 1.462

8.  Socio-cultural factors influencing prevention and treatment of tuberculosis in immigrant and Aboriginal communities in Canada.

Authors:  N Gibson; A Cave; D Doering; L Ortiz; P Harms
Journal:  Soc Sci Med       Date:  2005-09       Impact factor: 4.634

9.  Encouraging Vietnamese-American women to obtain Pap tests through lay health worker outreach and media education.

Authors:  Tram K Lam; Stephen J McPhee; Jeremiah Mock; Ching Wong; Hiep T Doan; Thoa Nguyen; Ky Q Lai; Tuyet Ha-Iaconis; Thien-Nhien Luong
Journal:  J Gen Intern Med       Date:  2003-07       Impact factor: 5.128

Review 10.  Participatory research in pediatric palliative care: benefits and challenges.

Authors:  Suzanne Mongeau; Manon Champagne; Stephen Liben
Journal:  J Palliat Care       Date:  2007       Impact factor: 2.250

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  12 in total

1.  Engaging primary care physicians in care coordination for patients with complex medical conditions.

Authors:  Elizabeth Lockhart; Gillian A Hawker; Noah M Ivers; Tara O'Brien; Geetha Mukerji; Pauline Pariser; Ian Stanaitis; Laura Pus; G Ross Baker
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

2.  Linking practice-based research networks and Clinical and Translational Science Awards: new opportunities for community engagement by academic health centers.

Authors:  Lyle J Fagnan; Melinda Davis; Richard A Deyo; James J Werner; Kurt C Stange
Journal:  Acad Med       Date:  2010-03       Impact factor: 6.893

3.  Rationale and design of the Kanyini guidelines adherence with the polypill (Kanyini-GAP) study: a randomised controlled trial of a polypill-based strategy amongst indigenous and non indigenous people at high cardiovascular risk.

Authors:  Hueiming Liu; Anushka Patel; Alex Brown; Sandra Eades; Noel Hayman; Stephen Jan; Ian Ring; Greg Stewart; Andrew Tonkin; Tarun Weeramanthri; Vicki Wade; Anthony Rodgers; Tim Usherwood; Bruce Neal; David Peiris; Hugh Burke; Christopher Reid; Alan Cass
Journal:  BMC Public Health       Date:  2010-08-05       Impact factor: 3.295

4.  The marriage of community-based participatory research and practice-based research networks: can it work? -A Research Involving Outpatient Settings Network (RIOS Net) study.

Authors:  Robert L Williams; Brian M Shelley; Andrew L Sussman
Journal:  J Am Board Fam Med       Date:  2009 Jul-Aug       Impact factor: 2.657

5.  "Integrated knowledge translation" for globally oriented public health practitioners and scientists: Framing together a sustainable transfrontier knowledge translation vision.

Authors:  Véronique Lapaige
Journal:  J Multidiscip Healthc       Date:  2010-06-01

6.  Improving System Integration: The Art and Science of Engaging Small Community Practices in Health System Innovation.

Authors:  Pauline Pariser; Laura Pus; Ian Stanaitis; Howard Abrams; Noah Ivers; G Ross Baker; Elizabeth Lockhart; Gillian Hawker
Journal:  Int J Family Med       Date:  2016-01-24

7.  Management of Chronic Daily Headache and Psychiatric Co-Morbidities by Lifestyle Modification: Participatory Action Research Combining New Communication Media.

Authors:  Fakhrudin Faizi; Abbas Tavallaee; Abolfazl Rahimi; Masoud Saghafinia
Journal:  Anesth Pain Med       Date:  2017-01-23

8.  Contextual levers for team-based primary care: lessons from reform interventions in five jurisdictions in three countries.

Authors:  Grant M Russell; William L Miller; Jane M Gunn; Jean-Frederic Levesque; Mark F Harris; William E Hogg; Cathie M Scott; Jenny R Advocat; Lisa Halma; Sabrina M Chase; Benjamin F Crabtree
Journal:  Fam Pract       Date:  2018-05-23       Impact factor: 2.267

9.  Variable participation of knowledge users in cancer health services research: results of a multiple case study.

Authors:  Mary Ann O'Brien; Andrea Carson; Lisa Barbera; Melissa C Brouwers; Craig C Earle; Ian D Graham; Nicole Mittmann; Eva Grunfeld
Journal:  BMC Med Res Methodol       Date:  2018-11-22       Impact factor: 4.615

10.  Participatory research-A modernizing science for primary health care.

Authors:  Neil Andersson
Journal:  J Gen Fam Med       Date:  2018-07-11
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