PURPOSE: We wanted to describe community-based participatory research in practice-based research networks in the United States. METHODS: We surveyed all identified practice-based research networks (PBRNs) in the United States to find out whether they had a mechanism for obtaining feedback or involvement from the community of patients served by PBRN physicians. We asked open-ended questions on how they involve community members and whether they had plans for future involvement of community members and/or patients. RESULTS: We received 46 completed questionnaires (71% response rate). Twenty-four reported that they have some mechanism to involve community members and/or patients in their research. No PBRN reported full participatory methods; however, several PBRNs reported active involvement by community members to generate research ideas, review research protocols, interpret results, and disseminate findings. CONCLUSION: While perhaps not meeting the classical definition of CBPR, some PBRNs are involving community members and patients in their research. There is a wide spectrum of involvement by community members in PBRN research. Many PBRNs reported plans to involve community members in their research. We believe that community involvement will enhance PBRN research.
PURPOSE: We wanted to describe community-based participatory research in practice-based research networks in the United States. METHODS: We surveyed all identified practice-based research networks (PBRNs) in the United States to find out whether they had a mechanism for obtaining feedback or involvement from the community of patients served by PBRN physicians. We asked open-ended questions on how they involve community members and whether they had plans for future involvement of community members and/or patients. RESULTS: We received 46 completed questionnaires (71% response rate). Twenty-four reported that they have some mechanism to involve community members and/or patients in their research. No PBRN reported full participatory methods; however, several PBRNs reported active involvement by community members to generate research ideas, review research protocols, interpret results, and disseminate findings. CONCLUSION: While perhaps not meeting the classical definition of CBPR, some PBRNs are involving community members and patients in their research. There is a wide spectrum of involvement by community members in PBRN research. Many PBRNs reported plans to involve community members in their research. We believe that community involvement will enhance PBRN research.
Authors: Marilyn M Metzler; Donna L Higgins; Carolyn G Beeker; Nicholas Freudenberg; Paula M Lantz; Kirsten D Senturia; Alison A Eisinger; Edna A Viruell-Fuentes; Bookda Gheisar; Ann-Gel Palermo; Donald Softley Journal: Am J Public Health Date: 2003-05 Impact factor: 9.308
Authors: Alice Ammerman; Giselle Corbie-Smith; Diane Marie M St George; Chanetta Washington; Beneta Weathers; Bethany Jackson-Christian Journal: Am J Public Health Date: 2003-10 Impact factor: 9.308
Authors: Barbara Schneider; Hannah Scissons; Laurie Arney; George Benson; Jeff Derry; Ken Lucas; Michele Misurelli; Dana Nickerson; Mark Sunderland Journal: Qual Health Res Date: 2004-04
Authors: L A Green; M Wood; L Becker; E S Farley; W L Freeman; J Froom; C Hames; L J Niebauer; W W Rosser; M Seifert Journal: J Fam Pract Date: 1984-02 Impact factor: 0.493
Authors: Dale Stratford; Sandra Chamblee; Tedd V Ellerbrock; Rev Johnny W Johnson; Denny Abbott; C Fordham Reyn; C Robert Horsburgh Journal: J Gen Intern Med Date: 2003-07 Impact factor: 5.128
Authors: Thandi Puoane; David Sanders; Ann Ashworth; Mickey Chopra; Susan Strasser; David McCoy Journal: Int J Qual Health Care Date: 2004-02 Impact factor: 2.038
Authors: Ned Norman; Chris Bennett; Shirley Cowart; Maret Felzien; Martha Flores; Rafael Flores; Connie Haynes; Mike Hernandez; Mary Petra Rodriquez; Norah Sanchez; Sergio Sanchez; Kathy Winkelman; Steve Winkelman; Linda Zittleman; John M Westfall Journal: J Am Board Fam Med Date: 2013 May-Jun Impact factor: 2.657
Authors: Mark Helfand; Sean Tunis; Evelyn P Whitlock; Stephen G Pauker; Anirban Basu; Jon Chilingerian; Frank E Harrell; David O Meltzer; Victor M Montori; Donald S Shepard; David M Kent Journal: Clin Transl Sci Date: 2011-06 Impact factor: 4.689
Authors: Christina M Getrich; Andrew L Sussman; Kimberly Campbell-Voytal; Janice Y Tsoh; Robert L Williams; Anthony E Brown; Michael B Potter; William Spears; Nancy Weller; John Pascoe; Kendra Schwartz; Anne Victoria Neale Journal: Ann Fam Med Date: 2013 Nov-Dec Impact factor: 5.166