Literature DB >> 20108258

Parental perceptions of the outcome and meaning of normalization.

Kathleen A Knafl1, Blair G Darney, Agatha M Gallo, Denise B Angst.   

Abstract

The purpose of this secondary analysis was to identify the meaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life. (c) 2010 Wiley Periodicals, Inc.

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Year:  2010        PMID: 20108258      PMCID: PMC2943872          DOI: 10.1002/nur.20367

Source DB:  PubMed          Journal:  Res Nurs Health        ISSN: 0160-6891            Impact factor:   2.228


  14 in total

1.  Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed.

Authors:  Roberta S Rehm; Joan F Bradley
Journal:  Qual Health Res       Date:  2005-07

2.  Mothers and their disabled children: refining the concept of normalization.

Authors:  J M Morse; S Wilson; J Penrod
Journal:  Health Care Women Int       Date:  2000-12

3.  Family response to childhood chronic illness: description of management styles.

Authors:  K Knafl; B Breitmayer; A Gallo; L Zoeller
Journal:  J Pediatr Nurs       Date:  1996-10       Impact factor: 2.145

4.  Managing life with a chronic condition: the story of normalization.

Authors:  C A Robinson
Journal:  Qual Health Res       Date:  1993-02

5.  The family APGAR: a proposal for a family function test and its use by physicians.

Authors:  G Smilkstein
Journal:  J Fam Pract       Date:  1978-06       Impact factor: 0.493

Review 6.  Clarifying the concept of normalization.

Authors:  J A Deatrick; K A Knafl; C Murphy-Moore
Journal:  Image J Nurs Sch       Date:  1999

7.  Growing up and living with cystic fibrosis: everyday life and encounters with the health care and social services--a qualitative study.

Authors:  Eva Gjengedal; Tone Rustøen; Astrid K Wahl; Berit Rokne Hanesta
Journal:  ANS Adv Nurs Sci       Date:  2003 Apr-Jun       Impact factor: 1.824

Review 8.  Promoting normalization in families with preschool children with type 1 diabetes.

Authors:  Janice McDougal
Journal:  J Spec Pediatr Nurs       Date:  2002 Jul-Sep       Impact factor: 1.260

9.  As normal a life as possible: mothers and their daughters with congenital heart disease.

Authors:  Laura Gantt
Journal:  Health Care Women Int       Date:  2002 Jul-Aug

10.  Parents' reports of "tricks of the trade" for managing childhood chronic illness.

Authors:  A M Gallo; K A Knafl
Journal:  J Soc Pediatr Nurs       Date:  1998 Jul-Sep
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  9 in total

1.  A longitudinal study of families with technology-dependent children.

Authors:  Valerie Boebel Toly; Carol M Musil; John C Carl
Journal:  Res Nurs Health       Date:  2011-12-07       Impact factor: 2.228

2.  Normalizing: adolescent experiences living with type 1 diabetes.

Authors:  Elizabeth Babler; C June Strickland
Journal:  Diabetes Educ       Date:  2015-03-30       Impact factor: 2.140

3.  Understanding familial response to parental advanced cancer using the family management style framework.

Authors:  Eliza M Park; Kaitlyn L Miller; Kathleen A Knafl
Journal:  J Psychosoc Oncol       Date:  2019-07-18

4.  Patterns of family management of childhood chronic conditions and their relationship to child and family functioning.

Authors:  Kathleen A Knafl; Janet A Deatrick; George J Knafl; Agatha M Gallo; Margaret Grey; Jane Dixon
Journal:  J Pediatr Nurs       Date:  2013-04-19       Impact factor: 2.145

5.  Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: a mixed methods study.

Authors:  Veronica M Swallow; Ruth Nightingale; Julian Williams; Heather Lambert; Nicholas J A Webb; Trish Smith; Lucy Wirz; Leila Qizalbash; Laura Crowther; Davina Allen
Journal:  BMC Health Serv Res       Date:  2013-07-08       Impact factor: 2.655

6.  An interactive health communication application for supporting parents managing childhood long-term conditions: outcomes of a randomized controlled feasibility trial.

Authors:  Veronica M Swallow; Kathleen Knafl; Sheila Santacroce; Malcolm Campbell; Andrew G Hall; Trish Smith; Ian Carolan
Journal:  JMIR Res Protoc       Date:  2014-12-03

7.  A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.

Authors:  Julie Blamires; Annette Dickinson; El Shadan Tautolo; Catherine A Byrnes
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

8.  Full-Time or Working Caregiver? A Health Economics Perspective on the Supply of Care for Type 1 Diabetes Patients.

Authors:  Sayaka Sakoda
Journal:  Int J Environ Res Public Health       Date:  2022-01-31       Impact factor: 3.390

9.  Designing a web-application to support home-based care of childhood CKD stages 3-5: qualitative study of family and professional preferences.

Authors:  Veronica M Swallow; Andrew G Hall; Ian Carolan; Sheila Santacroce; Nicholas J A Webb; Trish Smith; Noreen Hanif
Journal:  BMC Nephrol       Date:  2014-02-18       Impact factor: 2.388

  9 in total

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