Literature DB >> 16510675

From public health emergency to public health service: the implications of evolving criteria for newborn screening panels.

Scott D Grosse1, Coleen A Boyle, Aileen Kenneson, Muin J Khoury, Benjamin S Wilfond.   

Abstract

Mesh:

Year:  2006        PMID: 16510675     DOI: 10.1542/peds.2005-0553

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


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  37 in total

1.  Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders.

Authors:  Yvonne Bombard; Fiona A Miller; Robin Z Hayeems; Brenda J Wilson; June C Carroll; Martha Paynter; Julian Little; Judith Allanson; Jessica P Bytautas; Pranesh Chakraborty
Journal:  Eur J Hum Genet       Date:  2011-11-09       Impact factor: 4.246

2.  Newborn screening education on the internet: a content analysis of North American newborn screening program websites.

Authors:  Makda H Araia; Beth K Potter
Journal:  J Community Genet       Date:  2011-04-15

3.  Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study.

Authors:  Donald B Bailey; Megan A Lewis; Shelly L Harris; Tracey Grant; Carla Bann; Ellen Bishop; Myra Roche; Sonia Guarda; Leah Barnum; Cynthia Powell; Bradford L Therrell
Journal:  J Genet Couns       Date:  2012-06-27       Impact factor: 2.537

4.  Debating clinical utility.

Authors:  Wylie Burke; A-M Laberge; N Press
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

5.  Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families".

Authors:  Benjamin S Wilfond; Conrad V Fernandez; Robert C Green
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

6.  Ethical, legal, and social issues in health technology assessment for prenatal/preconceptional and newborn screening: a workshop report.

Authors:  B K Potter; D Avard; V Entwistle; C Kennedy; P Chakraborty; M McGuire; B J Wilson
Journal:  Public Health Genomics       Date:  2008-09-03       Impact factor: 2.000

7.  A Markov model to analyze cost-effectiveness of screening for severe combined immunodeficiency (SCID).

Authors:  Kee Chan; Joie Davis; Sung-Yun Pai; Francisco A Bonilla; Jennifer M Puck; Michael Apkon
Journal:  Mol Genet Metab       Date:  2011-07-12       Impact factor: 4.797

8.  Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening.

Authors:  Donald B Bailey; F Daniel Armstrong; Alex R Kemper; Debra Skinner; Steven F Warren
Journal:  J Pediatr Psychol       Date:  2008-03-30

9.  Classical Galactosaemia in Ireland: incidence, complications and outcomes of treatment.

Authors:  K P Coss; P P Doran; C Owoeye; M B Codd; N Hamid; P D Mayne; E Crushell; I Knerr; A A Monavari; E P Treacy
Journal:  J Inherit Metab Dis       Date:  2012-07-03       Impact factor: 4.982

10.  Parental intentions to enroll children in a voluntary expanded newborn screening program.

Authors:  Ryan S Paquin; Holly L Peay; Lisa M Gehtland; Megan A Lewis; Donald B Bailey
Journal:  Soc Sci Med       Date:  2016-07-29       Impact factor: 4.634

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