Literature DB >> 16507657

Ethical issues in predictive genetic testing: a public health perspective.

K G Fulda1, K Lykens.   

Abstract

As a result of the increase in genetic testing and the fear of discrimination by insurance companies, employers, and society as a result of genetic testing, the disciplines of ethics, public health, and genetics have converged. Whether relatives of someone with a positive predictive genetic test should be notified of the results and risks is a matter urgently in need of debate. Such a debate must encompass the moral and ethical obligations of the diagnosing physician and the patient. The decision to inform or not will vary depending on what moral theory is used. Utilising the utilitarian and libertarian theories produces different outcomes. The principles of justice and non-maleficence will also play an important role in the decision.

Entities:  

Mesh:

Year:  2006        PMID: 16507657      PMCID: PMC2564466          DOI: 10.1136/jme.2004.010272

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  21 in total

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2.  US employer agrees to stop genetic testing.

Authors:  S Gottlieb
Journal:  BMJ       Date:  2001-02-24

3.  Ethics instruction in an issues-oriented course on public health genetics.

Authors:  Stephen M Modell; Toby Citrin
Journal:  Health Educ Behav       Date:  2002-02

4.  Genetics in kidney disease: how much do we want to know?

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Journal:  Am J Kidney Dis       Date:  2002-03       Impact factor: 8.860

5.  "Genetic exceptionalism" in medicine: clarifying the differences between genetic and nongenetic tests.

Authors:  Michael J Green; Jeffrey R Botkin
Journal:  Ann Intern Med       Date:  2003-04-01       Impact factor: 25.391

Review 6.  Newborn screening as a model for population screening.

Authors:  Linda L McCabe; Edward R B McCabe
Journal:  Mol Genet Metab       Date:  2002-04       Impact factor: 4.797

Review 7.  Population screening in the age of genomic medicine.

Authors:  Muin J Khoury; Linda L McCabe; Edward R B McCabe
Journal:  N Engl J Med       Date:  2003-01-02       Impact factor: 91.245

8.  What would you do? Specialists' perspectives on cancer genetic testing, prophylactic surgery, and insurance discrimination.

Authors:  E T Matloff; H Shappell; K Brierley; B A Bernhardt; W McKinnon; B N Peshkin
Journal:  J Clin Oncol       Date:  2000-06       Impact factor: 44.544

Review 9.  A general approach to genetic counseling.

Authors:  Katie S Plunkett; Joe Leigh Simpson
Journal:  Obstet Gynecol Clin North Am       Date:  2002-06       Impact factor: 2.844

10.  Laboratory standards and guidelines for population-based cystic fibrosis carrier screening.

Authors:  W W Grody; G R Cutting; K W Klinger; C S Richards; M S Watson; R J Desnick
Journal:  Genet Med       Date:  2001 Mar-Apr       Impact factor: 8.822

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  22 in total

1.  Genes and Cardiovascular Disease: Where do we go from here?

Authors:  Sunil K Nadar; Kully Sandhu
Journal:  Sultan Qaboos Univ Med J       Date:  2015-11-23

2.  Civilian and military genetics: nondiscrimination policy in a post-GINA world.

Authors:  Susannah Baruch; Kathy Hudson
Journal:  Am J Hum Genet       Date:  2008-10       Impact factor: 11.025

3.  Evaluation of genetic tests for susceptibility to common complex diseases: why, when and how?

Authors:  Caroline Fiona Wright; Mark Kroese
Journal:  Hum Genet       Date:  2009-11-20       Impact factor: 4.132

4.  Personal genomic information management and personalized medicine: challenges, current solutions, and roles of HIM professionals.

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Journal:  Perspect Health Inf Manag       Date:  2014-04-01

Review 5.  Predictors of genetic testing decisions: a systematic review and critique of the literature.

Authors:  Kate Sweeny; Arezou Ghane; Angela M Legg; Ho Phi Huynh; Sara E Andrews
Journal:  J Genet Couns       Date:  2014-04-11       Impact factor: 2.537

Review 6.  Role of Genetic Testing for Inherited Prostate Cancer Risk: Philadelphia Prostate Cancer Consensus Conference 2017.

Authors:  Veda N Giri; Karen E Knudsen; William K Kelly; Wassim Abida; Gerald L Andriole; Chris H Bangma; Justin E Bekelman; Mitchell C Benson; Amie Blanco; Arthur Burnett; William J Catalona; Kathleen A Cooney; Matthew Cooperberg; David E Crawford; Robert B Den; Adam P Dicker; Scott Eggener; Neil Fleshner; Matthew L Freedman; Freddie C Hamdy; Jean Hoffman-Censits; Mark D Hurwitz; Colette Hyatt; William B Isaacs; Christopher J Kane; Philip Kantoff; R Jeffrey Karnes; Lawrence I Karsh; Eric A Klein; Daniel W Lin; Kevin R Loughlin; Grace Lu-Yao; S Bruce Malkowicz; Mark J Mann; James R Mark; Peter A McCue; Martin M Miner; Todd Morgan; Judd W Moul; Ronald E Myers; Sarah M Nielsen; Elias Obeid; Christian P Pavlovich; Stephen C Peiper; David F Penson; Daniel Petrylak; Curtis A Pettaway; Robert Pilarski; Peter A Pinto; Wendy Poage; Ganesh V Raj; Timothy R Rebbeck; Mark E Robson; Matt T Rosenberg; Howard Sandler; Oliver Sartor; Edward Schaeffer; Gordon F Schwartz; Mark S Shahin; Neal D Shore; Brian Shuch; Howard R Soule; Scott A Tomlins; Edouard J Trabulsi; Robert Uzzo; Donald J Vander Griend; Patrick C Walsh; Carol J Weil; Richard Wender; Leonard G Gomella
Journal:  J Clin Oncol       Date:  2017-12-13       Impact factor: 44.544

7.  Predictors of heart-focused anxiety in patients undergoing genetic investigation and counseling of long QT syndrome or hypertrophic cardiomyopathy: a one year follow-up.

Authors:  Anniken Hamang; Geir Egil Eide; Berit Rokne; Karin Nordin; Cathrine Bjorvatn; Nina Øyen
Journal:  J Genet Couns       Date:  2011-07-20       Impact factor: 2.537

8.  Should I Perform Genetic Testing? A Qualitative Look into the Decision Making Considerations of Religious Israeli Undergraduate Students.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2016-03-15       Impact factor: 2.537

9.  A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research.

Authors:  Andrew J Darnell; Howard Austin; David A Bluemke; Richard O Cannon; Kenneth Fischbeck; William Gahl; David Goldman; Christine Grady; Mark H Greene; Steven M Holland; Sara Chandros Hull; Forbes D Porter; David Resnik; Wendy S Rubinstein; Leslie G Biesecker
Journal:  Am J Hum Genet       Date:  2016-03-03       Impact factor: 11.025

10.  A Systematic Review of Discrete Choice Experiments and Conjoint Analysis on Genetic Testing.

Authors:  Semra Ozdemir; Jia Jia Lee; Isha Chaudhry; Remee Rose Quintana Ocampo
Journal:  Patient       Date:  2021-06-04       Impact factor: 3.883

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