AIM: To describe an Internet-based data acquisition facility for a European 10-year clinical follow-up study project of a population-based cohort of inflammatory bowel disease (IBD) patients and to investigate the influence of demographic and disease related patient characteristics on response rates. METHODS: Thirteen years ago, the European Collaborative study group of IBD (EC-IBD) initiated a population-based prospective inception cohort of 2 201 uniformly diagnosed IBD patients within 20 well-described geographical areas in 11 European countries and Israel. For the 10-year follow-up of this cohort, an electronic patient questionnaire (ePQ) and electronic physician per patient follow-up form (ePpPFU) were designed as two separate data collecting instruments and made available through an Internet-based website. Independent demographic and clinical determinants of ePQ participation were analyzed using multivariate logistic regression. RESULTS: In 958 (316 CD and 642 UC) out of a total number of 1 505 (64%) available IBD patients, originating from 13 participating centers from nine different countries, both ePQ and ePpPFU were completed. Patients older than 40 years at ePQ completion (OR: 1.53 (95%CI: 1.14-2.05)) and those with active disease during the 3 mo previous to ePQ completion (OR: 3.32 (95%CI: 1.57-7.03)) were significantly more likely to respond. CONCLUSION: An Internet-based data acquisition tool appeared successful in sustaining a unique Western-European and Israelian multi-center 10-year clinical follow-up study project in patients afflicted with IBD.
AIM: To describe an Internet-based data acquisition facility for a European 10-year clinical follow-up study project of a population-based cohort of inflammatory bowel disease (IBD) patients and to investigate the influence of demographic and disease related patient characteristics on response rates. METHODS: Thirteen years ago, the European Collaborative study group of IBD (EC-IBD) initiated a population-based prospective inception cohort of 2 201 uniformly diagnosed IBD patients within 20 well-described geographical areas in 11 European countries and Israel. For the 10-year follow-up of this cohort, an electronic patient questionnaire (ePQ) and electronic physician per patient follow-up form (ePpPFU) were designed as two separate data collecting instruments and made available through an Internet-based website. Independent demographic and clinical determinants of ePQ participation were analyzed using multivariate logistic regression. RESULTS: In 958 (316 CD and 642 UC) out of a total number of 1 505 (64%) available IBD patients, originating from 13 participating centers from nine different countries, both ePQ and ePpPFU were completed. Patients older than 40 years at ePQ completion (OR: 1.53 (95%CI: 1.14-2.05)) and those with active disease during the 3 mo previous to ePQ completion (OR: 3.32 (95%CI: 1.57-7.03)) were significantly more likely to respond. CONCLUSION: An Internet-based data acquisition tool appeared successful in sustaining a unique Western-European and Israelian multi-center 10-year clinical follow-up study project in patients afflicted with IBD.
Authors: J Witte; S Shivananda; J E Lennard-Jones; M Beltrami; P Politi; A Bonanomi; E V Tsianos; I Mouzas; T B Schulz; E Monteiro; J Clofent; S Odes; C B Limonard; R W Stockbrügger; M G Russel Journal: Scand J Gastroenterol Date: 2000-12 Impact factor: 2.423
Authors: F L Wolters; M G Russel; J Sijbrandij; L J Schouten; S Odes; L Riis; P Munkholm; P Bodini; C O'Morain; I A Mouzas; E Tsianos; S Vermeire; E Monteiro; C Limonard; M Vatn; G Fornaciari; S Pereira; B Moum; R W Stockbrügger Journal: Gut Date: 2005-09-08 Impact factor: 23.059
Authors: Shou-Jiang Tang; Sun-Young Lee; Linda S Hynan; Jingsheng Yan; Fransell C Riley; Luis Armstrong; Edmundo Rodriguez-Frias; Lin Xu; Ernesto Pruna; Luis F Lara; Jayaprakash Sreenarasimhaiah; Kyoo Wan Choi; Don C Rockey Journal: Dig Dis Sci Date: 2009-01-22 Impact factor: 3.199
Authors: F L Wolters; M G Russel; J Sijbrandij; T Ambergen; S Odes; L Riis; E Langholz; P Politi; A Qasim; I Koutroubakis; E Tsianos; S Vermeire; J Freitas; G van Zeijl; O Hoie; T Bernklev; M Beltrami; D Rodriguez; R W Stockbrügger; B Moum Journal: Gut Date: 2005-12-16 Impact factor: 23.059
Authors: O Höie; L J Schouten; F L Wolters; I C Solberg; L Riis; I A Mouzas; P Politi; S Odes; E Langholz; M Vatn; R W Stockbrügger; B Moum Journal: Gut Date: 2006-10-06 Impact factor: 23.059