| Literature DB >> 16295921 |
Abstract
The government of Iceland has authorized a private, for-profit firm, deCODE Genetics, to construct a database of the population's medical records as part of a larger plan by deCODE for human genetics research. This article presents the background for genetics research in Iceland, the history of deCODE, and the terms of the law authorizing the database. It then examines five objections to the law, based on commercialization, lack of informed consent, risks to privacy, the effects of other research, and financial unfairness. It concludes that the Icelandic model is not a good precedent for similar research elsewhere.Entities:
Keywords: Biomedical and Behavioral Research; Genetics and Reproduction; Legal Approach; deCode Genetics
Mesh:
Year: 2000 PMID: 16295921
Source DB: PubMed Journal: Jurimetrics ISSN: 0897-1277