Literature DB >> 20373733

Genetic research with stored biological materials: ethics and practice.

Leslie E Wolf1, Timothy A Bouley, Charles E McCulloch.   

Abstract

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Mesh：

Year:  2010        PMID： 20373733      PMCID： PMC3052851     

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  44 in total

1.  Research with stored biological samples: what do research participants want?

Authors:  Donna T Chen; Donald L Rosenstein; Palaniappan Muthappan; Susan G Hilsenbeck; Franklin G Miller; Ezekiel J Emanuel; David Wendler
Journal:  Arch Intern Med       Date:  2005-03-28

2.  Iceland's central database of health records.

Authors:  R Haraldsdóttir
Journal:  Science       Date:  1999-01-22       Impact factor: 47.728

3.  Informed consent for population-based research involving genetics.

Authors:  L M Beskow; W Burke; J F Merz; P A Barr; S Terry; V B Penchaszadeh; L O Gostin; M Gwinn; M J Khoury
Journal:  JAMA       Date:  2001-11-14       Impact factor: 56.272

4.  Adenocarcinoma of the vagina in adolescence. A report of 7 cases including 6 clear-cell carcinomas (so-called mesonephromas).

Authors:  A L Herbst; R E Scully
Journal:  Cancer       Date:  1970-04       Impact factor: 6.860

5.  Serendipity, science, and a new hantavirus.

Authors:  S Wrobel
Journal:  FASEB J       Date:  1995-10       Impact factor: 5.191

6.  Recommended policies for uses of human tissue in research, education, and quality control. Ad Hoc Committee on Stored Tissue, College of American Pathologists.

Authors:  W Grizzle; W W Grody; W W Noll; M E Sobel; S A Stass; T Trainer; H Travers; V Weedn; K Woodruff
Journal:  Arch Pathol Lab Med       Date:  1999-04       Impact factor: 5.534

7.  Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Authors:  Aaron J Goldenberg; Sara Chandros Hull; Jeffrey R Botkin; Benjamin S Wilfond
Journal:  J Pediatr       Date:  2009-10       Impact factor: 4.406

8.  Research and stored tissues. Persons as sources, samples as persons?

Authors:  B M Knoppers; C M Laberge
Journal:  JAMA       Date:  1995-12-13       Impact factor: 56.272

Review 9.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

10.  Incidental findings in genetics research using archived DNA.

Authors:  Ellen Wright Clayton
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718
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  9 in total

Review 1.  Integrating biobanks: addressing the practical and ethical issues to deliver a valuable tool for cancer research.

Authors:  R William G Watson; Elaine W Kay; David Smith
Journal:  Nat Rev Cancer       Date:  2010-08-12       Impact factor: 60.716

2.  Returning individual research results: development of a cancer genetics education and risk communication protocol.

Authors:  J Scott Roberts; David I Shalowitz; Kurt D Christensen; Jessica N Everett; Scott Y H Kim; Leon Raskin; Stephen B Gruber
Journal:  J Empir Res Hum Res Ethics       Date:  2010-09       Impact factor: 1.742

3.  Return of research results from pharmacogenomic versus disease susceptibility studies: what's drugs got to do with it?

Authors:  Lynn G Dressler
Journal:  Pharmacogenomics       Date:  2012-06       Impact factor: 2.533

4.  Ethics in prevention science involving genetic testing.

Authors:  Celia B Fisher; Erika L Harrington McCarthy
Journal:  Prev Sci       Date:  2013-06

5.  Investigator Experiences and Attitudes About Research With Biospecimens.

Authors:  Suzanne M Rivera; Aaron Goldenberg; Beth Rosenthal; Heide Aungst; Karen J Maschke; Erin Rothwell; Rebecca A Anderson; Jeffrey Botkin; Steven Joffe
Journal:  J Empir Res Hum Res Ethics       Date:  2015-12       Impact factor: 1.742

6.  Blending genetics and sociocultural historical inquiry: ethics, culture, and human subjects protection in international cross cultural research.

Authors:  Deborah A Sampson; Dennis Caldwell; Andre D Taylor; Jacquelyn Y Taylor
Journal:  Yale J Biol Med       Date:  2013-03-12

7.  Testing for sexually transmitted infections in a population-based sexual health survey: development of an acceptable ethical approach.

Authors:  Nigel Field; Clare Tanton; Catherine H Mercer; Soazig Nicholson; Kate Soldan; Simon Beddows; Catherine Ison; Anne M Johnson; Pam Sonnenberg
Journal:  J Med Ethics       Date:  2012-01-17       Impact factor: 2.903

8.  IRB practices and policies regarding the secondary research use of biospecimens.

Authors:  Aaron J Goldenberg; Karen J Maschke; Steven Joffe; Jeffrey R Botkin; Erin Rothwell; Thomas H Murray; Rebecca Anderson; Nicole Deming; Beth F Rosenthal; Suzanne M Rivera
Journal:  BMC Med Ethics       Date:  2015-05-08       Impact factor: 2.652

Review 9.  When Children Become Adults: Should Biobanks Re-Contact?

Authors:  Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden
Journal:  PLoS Med       Date:  2016-02-16       Impact factor: 11.069
  9 in total

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