Literature DB >> 16157604

Recruiting patients to medical research: double blind randomised trial of "opt-in" versus "opt-out" strategies.

Cornelia Junghans1, Gene Feder, Harry Hemingway, Adam Timmis, Melvyn Jones.   

Abstract

OBJECTIVE: To evaluate the effect of opt-in compared with opt-out recruitment strategies on response rate and selection bias.
DESIGN: Double blind randomised controlled trial.
SETTING: Two general practices in England. PARTICIPANTS: 510 patients with angina. INTERVENTION: Patients were randomly allocated to an opt-in (asked to actively signal willingness to participate in research) or opt-out (contacted repeatedly unless they signalled unwillingness to participate) approach for recruitment to an observational prognostic study of patients with angina. MAIN OUTCOME MEASURES: Recruitment rate and clinical characteristics of patients.
RESULTS: The recruitment rate, defined by clinic attendance, was 38% (96/252) in the opt-in arm and 50% (128/258) in the opt-out arm (P = 0.014). Once an appointment had been made, non-attendance at the clinic was similar (20% opt-in arm v 17% opt-out arm; P = 0.86). Patients in the opt-in arm had fewer risk factors (44% v 60%; P = 0.053), less treatment for angina (69% v 82%; P = 0.010), and less functional impairment (9% v 20%; P = 0.023) than patients in the opt-out arm.
CONCLUSIONS: The opt-in approach to participant recruitment, increasingly required by ethics committees, resulted in lower response rates and a biased sample. We propose that the opt-out approach should be the default recruitment strategy for studies with low risk to participants.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach

Mesh:

Year:  2005        PMID: 16157604      PMCID: PMC1261191          DOI: 10.1136/bmj.38583.625613.AE

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


  11 in total

1.  Uptake of HIV screening in genitourinary medicine after change to "opt-out" consent.

Authors:  Belinda Stanley; Jane Fraser; N H Cox
Journal:  BMJ       Date:  2003-05-31

2.  The other face of research governance.

Authors:  Alysun M Jones; Bryony Bamford
Journal:  BMJ       Date:  2004-07-31

Review 3.  Obstacles to conducting epidemiological research in the UK general population.

Authors:  Hester J T Ward; Simon N Cousens; Blaire Smith-Bathgate; Margaret Leitch; Dawn Everington; Robert G Will; Peter G Smith
Journal:  BMJ       Date:  2004-07-31

4.  Obtaining parental consent--opting in or opting out?

Authors:  L Mutch; R King
Journal:  Arch Dis Child       Date:  1985-10       Impact factor: 3.791

5.  Health services research using linked records: who consents and what is the gain?

Authors:  A F Young; A J Dobson; J E Byles
Journal:  Aust N Z J Public Health       Date:  2001-10       Impact factor: 2.939

6.  Selection bias from requiring patients to give consent to examine data for health services research.

Authors:  S H Woolf; S F Rothemich; R E Johnson; D W Marsland
Journal:  Arch Fam Med       Date:  2000 Nov-Dec

7.  Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Authors:  Donald J Willison; Karim Keshavjee; Kalpana Nair; Charlie Goldsmith; Anne M Holbrook
Journal:  BMJ       Date:  2003-02-15

8.  Clustering of risk factors and social class in childhood and adulthood in British women's heart and health study: cross sectional analysis.

Authors:  Shah Ebrahim; David Montaner; Debbie A Lawlor
Journal:  BMJ       Date:  2004-03-08

9.  Has the use of cervical, breast, and colorectal cancer screening increased in the United States?

Authors:  L M Anderson; D S May
Journal:  Am J Public Health       Date:  1995-06       Impact factor: 9.308

Review 10.  Methods to increase response to postal and electronic questionnaires.

Authors:  Philip James Edwards; Ian Roberts; Mike J Clarke; Carolyn Diguiseppi; Reinhard Wentz; Irene Kwan; Rachel Cooper; Lambert M Felix; Sarah Pratap
Journal:  Cochrane Database Syst Rev       Date:  2009-07-08
View more
  89 in total

1.  Parental views on informed consent for expanded newborn screening.

Authors:  Louise Moody; Kubra Choudhry
Journal:  Health Expect       Date:  2011-08-12       Impact factor: 3.377

2.  Are consenters representative of a target population?

Authors:  David S Millson
Journal:  BMJ       Date:  2005-11-05

Review 3.  Overcoming barriers to recruitment in health research.

Authors:  Jenny Hewison; Andy Haines
Journal:  BMJ       Date:  2006-08-05

4.  An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations.

Authors:  Paboda Ratnayake; Claire E Wakefield; Bettina Meiser; Graeme Suthers; Melanie A Price; Jessica Duffy; Kathy Tucker
Journal:  Fam Cancer       Date:  2011-03       Impact factor: 2.375

Review 5.  Legal and institutional fictions in medical ethics: a common, and yet largely overlooked, phenomenon.

Authors:  Miran Epstein
Journal:  J Med Ethics       Date:  2007-06       Impact factor: 2.903

6.  Consent bias in research: how to avoid it.

Authors:  Cornelia Junghans; Melvyn Jones
Journal:  Heart       Date:  2007-09       Impact factor: 5.994

7.  Evaluating predictors of geographic area population size cut-offs to manage re-identification risk.

Authors:  Khaled El Emam; Ann Brown; Philip AbdelMalik
Journal:  J Am Med Inform Assoc       Date:  2008-12-11       Impact factor: 4.497

8.  Development of a large-scale de-identified DNA biobank to enable personalized medicine.

Authors:  D M Roden; J M Pulley; M A Basford; G R Bernard; E W Clayton; J R Balser; D R Masys
Journal:  Clin Pharmacol Ther       Date:  2008-05-21       Impact factor: 6.875

9.  A trial of consent procedures for future research with clinically derived biological samples.

Authors:  E Vermeulen; M K Schmidt; N K Aaronson; M Kuenen; M-J Baas-Vrancken Peeters; H van der Poel; S Horenblas; H Boot; V J Verwaal; A Cats; F E van Leeuwen
Journal:  Br J Cancer       Date:  2009-09-29       Impact factor: 7.640

10.  Identifying strategies to maximise recruitment and retention of practices and patients in a multicentre randomised controlled trial of an intervention to optimise secondary prevention for coronary heart disease in primary care.

Authors:  Claire S Leathem; Margaret E Cupples; Mary C Byrne; Mary O'Malley; Ailish Houlihan; Andrew W Murphy; Susan M Smith
Journal:  BMC Med Res Methodol       Date:  2009-06-19       Impact factor: 4.615

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.