Literature DB >> 16047094

An assessment of risk understanding in Hispanic genetic counseling patients.

Jennifer N Eichmeyer1, Hope Northrup, Michael A Assel, Thomas J Goka, Dennis A Johnston, Aimee Tucker Williams.   

Abstract

This study sought to identify if differences existed in risk comprehension and risk format understanding between genetic counseling patients of Hispanic and Caucasian ethnicity. A total of 107 questionnaires were collected, 56 from Hispanic patients, and 51 from Caucasian controls. Of the total population 41.1% (44/107) could not demonstrate sufficient risk understanding, which was 71.4% (40/56) of Hispanics and 7.8% (4/51) of Caucasians. Fractions were the best-understood format for all participants. However, both Hispanics and Caucasians had difficulties with the percentage risk format. Discrepancies were also noted in qualitative word format understanding. Awareness of differences in risk comprehension may affect the selection of counseling techniques and strategies utilized by genetic counselors when educating patients about risk related information.

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Year:  2005        PMID: 16047094     DOI: 10.1007/s10897-005-0759-5

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  22 in total

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2.  Amniocentesis in sociocultural perspective.

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Journal:  J Genet Couns       Date:  1993-09       Impact factor: 2.537

3.  Genetic counseling gone awry: miscommunication between prenatal genetic service providers and Mexican-origin clients.

Authors:  C H Browner; H Mabel Preloran; Maria Christina Casado; Harold N Bass; Ann P Walker
Journal:  Soc Sci Med       Date:  2003-05       Impact factor: 4.634

4.  Genetic counselling: information given, recall and satisfaction.

Authors:  S Michie; V McDonald; T M Marteau
Journal:  Patient Educ Couns       Date:  1997 Sep-Oct

5.  Communicating with patients who cannot read.

Authors:  B D Weiss; C Coyne
Journal:  N Engl J Med       Date:  1997-07-24       Impact factor: 91.245

6.  How do parents of babies interpret qualitative expressions of probability?

Authors:  N J Shaw; P R Dear
Journal:  Arch Dis Child       Date:  1990-05       Impact factor: 3.791

7.  Patients' subjective interpretation of risks offered in genetic counselling.

Authors:  J H Pearn
Journal:  J Med Genet       Date:  1973-06       Impact factor: 6.318

8.  An Assessment of Ethnocultural Beliefs Regarding the Causes of Birth Defects and Genetic Disorders.

Authors:  L H Cohen; B A Fine; E Pergament
Journal:  J Genet Couns       Date:  1998-02       Impact factor: 2.537

9.  "Talking About Chance": The Presentation of Risk Information During Genetic Counseling for Breast and Ovarian Cancer.

Authors:  N Hallowell; H Statham; F Murton; J Green; M Richards
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

10.  Psychological aspects of genetic counseling. IV. The subjective assessment of probability.

Authors:  S Kessler; E K Levine
Journal:  Am J Med Genet       Date:  1987-10
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  9 in total

1.  To worry or not to worry: breast cancer genetic counseling communication with low-income Latina immigrants.

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2.  Effective communication in the era of precision medicine: A pilot intervention with low health literacy patients to improve genetic counseling communication.

Authors:  Galen Joseph; Robin Lee; Rena J Pasick; Claudia Guerra; Dean Schillinger; Sara Rubin
Journal:  Eur J Med Genet       Date:  2018-12-13       Impact factor: 2.708

3.  Rural Mexican-Americans' perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination.

Authors:  Rachel Malen; Sarah Knerr; Fernanda Delgado; Stephanie M Fullerton; Beti Thompson
Journal:  J Community Genet       Date:  2015-07-04

4.  If we build it ... will they come?--establishing a cancer genetics services clinic for an underserved predominantly Latina cohort.

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Journal:  J Genet Couns       Date:  2006-12       Impact factor: 2.537

5.  Attitudes of African Americans toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Holly K Tabor; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2013-05       Impact factor: 2.802

6.  Perceptions of prenatal testing for birth defects among rural Latinas.

Authors:  Courtney Griffiths; Miriam Kuppermann
Journal:  Matern Child Health J       Date:  2007-10-05

Review 7.  Clinical Cancer Genetics Disparities among Latinos.

Authors:  Marcia Cruz-Correa; Julyann Pérez-Mayoral; Julie Dutil; Miguel Echenique; Rafael Mosquera; Keila Rivera-Román; Sharee Umpierre; Segundo Rodriguez-Quilichini; Maria Gonzalez-Pons; Myrta I Olivera; Sherly Pardo
Journal:  J Genet Couns       Date:  2016-12-12       Impact factor: 2.537

8.  Information Mismatch: Cancer Risk Counseling with Diverse Underserved Patients.

Authors:  Galen Joseph; Rena J Pasick; Dean Schillinger; Judith Luce; Claudia Guerra; Janice Ka Yan Cheng
Journal:  J Genet Couns       Date:  2017-03-13       Impact factor: 2.537

9.  Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies.

Authors:  Anita Yeomans Kinney; Amanda Gammon; James Coxworth; Sara E Simonsen; Maritza Arce-Laretta
Journal:  Genet Med       Date:  2010-02       Impact factor: 8.822

  9 in total

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