Literature DB >> 15994363

Building on relationships of trust in biobank research.

M G Hansson1.   

Abstract

Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on "genetic integrity" in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical research.

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction; Legal Approach

Mesh:

Year:  2005        PMID: 15994363      PMCID: PMC1734187          DOI: 10.1136/jme.2004.009456

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  3 in total

1.  Biobanks. Population databases boom, from Iceland to the U.S.

Authors:  Jocelyn Kaiser
Journal:  Science       Date:  2002-11-08       Impact factor: 47.728

2.  Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.

Authors:  Klaus Hoeyer; Bert-Ove Olofsson; Tom Mjörndal; Niels Lynöe
Journal:  Scand J Public Health       Date:  2004       Impact factor: 3.021

3.  Balancing the quality of consent.

Authors:  M O Hansson
Journal:  J Med Ethics       Date:  1998-06       Impact factor: 2.903

  3 in total
  23 in total

1.  Research ethics in the era of personalized medicine: updating science's contract with society.

Authors:  Eric M Meslin; Mildred K Cho
Journal:  Public Health Genomics       Date:  2010-08-31       Impact factor: 2.000

2.  The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.

Authors:  Eric M Meslin
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

3.  Public support and consent preference for biomedical research and biobanking in Jordan.

Authors:  Mamoun Ahram; Areej Othman; Manal Shahrouri
Journal:  Eur J Hum Genet       Date:  2012-09-12       Impact factor: 4.246

Review 4.  Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Authors:  Blanaid Mee; Eoin Gaffney; Sharon A Glynn; Simona Donatello; Paul Carroll; Elizabeth Connolly; Sarah Mc Garrigle; Terry Boyle; Delia Flannery; Francis J Sullivan; Paul McCormick; Mairead Griffin; Cian Muldoon; Joanna Fay; Tony O'Grady; Elaine Kay; Joe Eustace; Louise Burke; Asim A Sheikh; Stephen Finn; Richard Flavin; Francis J Giles
Journal:  Biopreserv Biobank       Date:  2013-02       Impact factor: 2.300

5.  'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.

Authors:  J E Platt; T Platt; D Thiel; S L R Kardia
Journal:  Public Health Genomics       Date:  2013-06-21       Impact factor: 2.000

6.  Engaging a state: Facebook comments on a large population biobank.

Authors:  Tevah Platt; Jodyn Platt; Daniel Thiel; Sharon L R Kardia
Journal:  J Community Genet       Date:  2017-04-05

7.  Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project.

Authors:  Sylviane Darquy; Grégoire Moutel; Anne-Sophie Lapointe; Diane D'Audiffret; Julie Champagnat; Samia Guerroui; Marie-Louise Vendeville; Odile Boespflug-Tanguy; Nathalie Duchange
Journal:  Eur J Hum Genet       Date:  2015-06-17       Impact factor: 4.246

8.  Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors:  Erisa Mwaka; Lyn Horn
Journal:  J Empir Res Hum Res Ethics       Date:  2019-08-05       Impact factor: 1.742

9.  The use of human tissue in epidemiological research; ethical and legal considerations in two biobanks in Belgium.

Authors:  Carla Truyers; Eliane Kellen; Marc Arbyn; Leen Trommelmans; Herman Nys; Karen Hensen; Bert Aertgeerts; Stefaan Bartholomeeusen; Mats Hansson; Frank Buntinx
Journal:  Med Health Care Philos       Date:  2010-05

10.  Incorporating exclusion clauses into informed consent for biobanking.

Authors:  Zubin Master; David B Resnik
Journal:  Camb Q Healthc Ethics       Date:  2013-04       Impact factor: 1.284

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