Literature DB >> 23507182

Incorporating exclusion clauses into informed consent for biobanking.

Zubin Master1, David B Resnik.   

Abstract

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Mesh：

Year:  2013        PMID： 23507182      PMCID： PMC3955050          DOI： 10.1017/S0963180112000576

Source DB:  PubMed          Journal:  Camb Q Healthc Ethics        ISSN： 0963-1801            Impact factor:   1.284


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  49 in total

1.  Archived specimens: a platform for discussion.

Authors:  D C Wertz
Journal:  Community Genet       Date:  1999

2.  The Availability of Human Tissue for Biomedical Research: The Report and Recommendations of the ECVAM Workshop 32.

Authors:  Robert Anderson; Michael O'Hare; Michael Balls; Madeleine Brady; Diana Brahams; Avril Burt; Christophe Chesné; Robert Combes; Ashley Dennison; Bernward Garthoff; Gabrielle Hawksworth; Eric Kalter; Ann Lechat; David Mayer; Vera Rogiers; Dariusz Sladowski; Jacqueline Southee; Jacki Trafford; Jan van der Valk; Anne-Marie van Zeller
Journal:  Altern Lab Anim       Date:  1998 Nov-Dec       Impact factor: 1.303

3.  Biobanks: simplifying consent.

Authors:  Bartha M Knoppers
Journal:  Nat Rev Genet       Date:  2004-07       Impact factor: 53.242

4.  Human genetic banking: altruism, benefit and consent.

Authors:  Garrath Williams; Doris Schroeder
Journal:  New Genet Soc       Date:  2004-04

5.  Research with stored biological samples: what do research participants want?

Authors:  Donna T Chen; Donald L Rosenstein; Palaniappan Muthappan; Susan G Hilsenbeck; Franklin G Miller; Ezekiel J Emanuel; David Wendler
Journal:  Arch Intern Med       Date:  2005-03-28

6.  Banking together. A unified model of informed consent for biobanking.

Authors:  Elena Salvaterra; Lucilla Lecchi; Silvia Giovanelli; Barbara Butti; Maria Teresa Bardella; Pier Alberto Bertazzi; Silvano Bosari; Guido Coggi; Domenico A Coviello; Faustina Lalatta; Maurizio Moggio; Mario Nosotti; Alberto Zanella; Paolo Rebulla
Journal:  EMBO Rep       Date:  2008-04       Impact factor: 8.807

7.  "Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.

Authors:  Carlo Petrini
Journal:  Soc Sci Med       Date:  2009-10-21       Impact factor: 4.634

8.  Biobanks, consent and claims of consensus.

Authors:  Zubin Master; Erin Nelson; Blake Murdoch; Timothy Caulfield
Journal:  Nat Methods       Date:  2012-09       Impact factor: 28.547

9.  Public opinion about the importance of privacy in biobank research.

Authors:  David J Kaufman; Juli Murphy-Bollinger; Joan Scott; Kathy L Hudson
Journal:  Am J Hum Genet       Date:  2009-10-29       Impact factor: 11.025

10.  Qualitative thematic analysis of consent forms used in cancer genome sequencing.

Authors:  Clarissa Allen; William D Foulkes
Journal:  BMC Med Ethics       Date:  2011-07-19       Impact factor: 2.652
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  8 in total

1.  Scientists' perspectives on consent in the context of biobanking research.

Authors:  Zubin Master; Lisa Campo-Engelstein; Timothy Caulfield
Journal:  Eur J Hum Genet       Date:  2014-07-30       Impact factor: 4.246

Review 2.  Challenges of biobanking in South Africa to facilitate indigenous research in an environment burdened with human immunodeficiency virus, tuberculosis, and emerging noncommunicable diseases.

Authors:  Akin Abayomi; Alan Christoffels; Ravnit Grewal; Locunda A Karam; Catherine Rossouw; Ciara Staunton; Carmen Swanepoel; Beverley van Rooyen
Journal:  Biopreserv Biobank       Date:  2013-11-22       Impact factor: 2.300

Review 3.  Challenges in biobank governance in Sub-Saharan Africa.

Authors:  Ciara Staunton; Keymanthri Moodley
Journal:  BMC Med Ethics       Date:  2013-09-11       Impact factor: 2.652

Review 4.  A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine.

Authors:  Judy Illes; Douglas Sipp; Erika Kleiderman; Shelly Benjaminy; Rosario Isasi; Geoff Lomax; Zubin Master; Jennifer McCormick; Ubaka Ogbogu; Vardit Ravitsky; Julie M Robillard; Fabio Rossi; Brenda Wilson; Amy Zarzeczny
Journal:  NPJ Regen Med       Date:  2017-07-05

5.  The generic Informed Consent Service gICS®: implementation and benefits of a modular consent software tool to master the challenge of electronic consent management in research.

Authors:  Henriette Rau; Lars Geidel; Martin Bialke; Arne Blumentritt; Martin Langanke; Wenke Liedtke; Sandra Pasewald; Dana Stahl; Thomas Bahls; Christian Maier; Hans-Ulrich Prokosch; Wolfgang Hoffmann
Journal:  J Transl Med       Date:  2020-07-29       Impact factor: 5.531

Review 6.  Stem cell preservation for regenerative therapies: ethical and governance considerations for the health care sector.

Authors:  Zubin Master; Aidan P Crowley; Cambray Smith; Dennis Wigle; Andre Terzic; Richard R Sharp
Journal:  NPJ Regen Med       Date:  2020-12-01

7.  Cancer patient perceptions on the ethical and legal issues related to biobanking.

Authors:  Zubin Master; Jaime O Claudio; Christen Rachul; Jean C Y Wang; Mark D Minden; Timothy Caulfield
Journal:  BMC Med Genomics       Date:  2013-03-08       Impact factor: 3.063

8.  Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.

Authors:  Yann Joly; Gratien Dalpé; Derek So; Stanislav Birko
Journal:  PLoS One       Date:  2015-07-08       Impact factor: 3.240
  8 in total

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