Literature DB >> 15807362

Storing newborn blood spots: modern controversies.

Linda Kharaboyan1, Denise Avard, Bartha Maria Knoppers.   

Abstract

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction; Health Care and Public Health

Mesh：

Year:  2004        PMID： 15807362     DOI： 10.1111/j.1748-720x.2004.tb01979.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


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  11 in total

1.  Policy issues and stakeholder concerns regarding the storage and use of residual newborn dried blood samples for research.

Authors:  Erin Rothwell; Rebecca Anderson; Jeffrey Botkin
Journal:  Policy Polit Nurs Pract       Date:  2010-05-10

2.  Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.

Authors:  Alexa Hart; Michael Petros; Joel Charrow; Claudia Nash; Catherine Wicklund
Journal:  J Genet Couns       Date:  2014-11-20       Impact factor: 2.537

3.  Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.

Authors:  Shannon Cunningham; Kieran C O'Doherty; Karine Sénécal; David Secko; Denise Avard
Journal:  J Community Genet       Date:  2014-12-23

Review 4.  Retention and research use of residual newborn screening bloodspots.

Authors:  Jeffrey R Botkin; Aaron J Goldenberg; Erin Rothwell; Rebecca A Anderson; Michelle Huckaby Lewis
Journal:  Pediatrics       Date:  2012-12-03       Impact factor: 7.124

5.  Feasibility of neonatal dried blood spot retrieval amid evolving state policies (2009-2010): a Children's Oncology Group study.

Authors:  Amy M Linabery; Megan E Slater; Logan G Spector; Andrew F Olshan; Susan K Stork; Michelle A Roesler; Gregory H Reaman; Julie A Ross
Journal:  Paediatr Perinat Epidemiol       Date:  2011-08-10       Impact factor: 3.980

6.  Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.

Authors:  Erin Rothwell; Rebecca Anderson; Aaron Goldenberg; Michelle H Lewis; Louisa Stark; Matthew Burbank; Bob Wong; Jeffrey R Botkin
Journal:  Soc Sci Med       Date:  2012-02-18       Impact factor: 4.634

7.  Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots.

Authors:  Erin W Rothwell; Rebecca A Anderson; Matthew J Burbank; Aaron J Goldenberg; Michelle Huckaby Lewis; Louisa A Stark; Bob Wong; Jeffrey R Botkin
Journal:  Am J Public Health       Date:  2011-02-17       Impact factor: 9.308

Review 8.  If you build it, they will come: unintended future uses of organised health data collections.

Authors:  Kieran C O'Doherty; Emily Christofides; Jeffery Yen; Heidi Beate Bentzen; Wylie Burke; Nina Hallowell; Barbara A Koenig; Donald J Willison
Journal:  BMC Med Ethics       Date:  2016-09-06       Impact factor: 2.652

9.  Governing biological material at the intersection of care and research: the use of dried blood spots for biobanking.

Authors:  Conor M W Douglas; Carla G van El; Alex Faulkner; Martina C Cornel
Journal:  Croat Med J       Date:  2012-08       Impact factor: 1.351

10.  Analysis of motivations that lead women to participate (or not) in a newborn cohort study.

Authors:  Liza Vecchi Brumatti; Marcella Montico; Stefano Russian; Veronica Tognin; Maura Bin; Fabio Barbone; Patrizia Volpi; Luca Ronfani
Journal:  BMC Pediatr       Date:  2013-04-11       Impact factor: 2.125
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